Specialized Information Sources

Provide Feedback

Programs that provide information about a particular topic or service that interested individuals can access on a website or in person, or by telephone, email, chat, text or other communication channel such as a video relay service. Information may be in a self-serve, browsable format (for example a web resource directory or library of audio recordings) or provided by live agents with expertise in the field. (AIRS TJ-3200)

Nationwide Provider
6401 Security Boulevard
Baltimore, MD 21235
Phone: 866-968-7842
Nationwide Provider
Organization Name: Social Security Administration
(Show others in Organization)
Address:
6401 Security Boulevard
Baltimore, MD 21235
Phone: 866-968-7842
TDD: 800-325-0778
Toll Free Phone: 800-772-1213
Services Provided:

Provides information for people with disabilities who are SSI or SSDI recipients and want to work.

Source: MHP-Nationwide
Last Updated: 3/1/2023
Nationwide Provider
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Nationwide Provider
Address:
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 855-653-2273
Fax: 212-689-9261
Email: info@kidney.org
Services Provided:

The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease.

Services Include:

  • Information and resources about kidney disease
  • Patient Information Help Line
  • Peer mentor support program
  • Self management app for food choices
Source: MHP-Nationwide
Last Updated: 5/7/2022
Nationwide Provider
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Nationwide Provider
Address:
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Fax: 801-447-9364
Email: mail@dontshake.org
Wheelchair Access: Complete
Services Provided:

Works to "prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.”

Source: MHP-Nationwide
Last Updated: 1/23/2023
Nationwide Provider
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Nationwide Provider
Address:
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-810-3182
Fax: 301-587-1791
Email: nad.info@nad.org
Eligibility:

deaf and hard of hearing

Services Provided:

Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.

Provider Profiles:

NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.

Source: MHP-Nationwide
Last Updated: 2/24/2022
Nationwide Provider
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Nationwide Provider
Organization Name: Gallaudet University
(Show others in Organization)
Address:
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided:

Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.

Source: MHP-Nationwide
Last Updated: 3/18/2021
Nationwide Provider
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464
TDD: 301-443-8431
Toll Free Phone: 866-615-6464
Fax: 301-443-4279
Email: nimhinfo@nih.gov
Languages Spoken: Spanish
Services Provided:

Provides mental health information on the following topics: getting help, statistics, clinical trials, outreach, research, opportunities for funding, and labs at NIMH. Provides links to descriptions of clinical trials, related to numerous mental health conditions, including ADHD, anxiety, and depression.

Source: MHP-Nationwide
Last Updated: 12/29/2022
The Arc View on Map
Nationwide Provider
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Nationwide Provider
Address:
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Services Provided:

A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.

Source: MHP-Nationwide
Last Updated: 3/1/2022
Nationwide Provider
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Nationwide Provider
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Services Provided:

Works to cure cystic fibrosis and provide all people with CF the opportunity to lead long, fulfilling lives. Conducts research on cystic fibrosis.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.

Source: MHP-Nationwide
Last Updated: 11/24/2022
Virtual VRI View on Map
Nationwide Provider
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Nationwide Provider
Address:
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Toll Free Phone: 866-440-9140
Email: info@virtualvri.com
Eligibility:

Deaf and hard of hearing individuals

Services Provided:

Provide a “green” way of providing Sign Language interpreting. All that is required is a computer/webcam, access to high speed internet and to download free webconferencing software. The hearing employer, doctor, counselor, school etc., pays for the service to be in compliance with the Americans with Disabilities Act.

Provider Profiles:

computer/webcam based service

Source: MHP-Nationwide
Last Updated: 1/2/2023
Nationwide Provider
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Nationwide Provider
Address:
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Fax: 952-838-0199
Services Provided:

Provided advocacy and expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.

Source: MHP-Nationwide
Last Updated: 1/23/2023
Nationwide Provider
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Nationwide Provider
Address:
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided:

Provided advocacy for the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.

Source: MHP-Nationwide
Last Updated: 1/23/2023
Nationwide Provider
161 North Clark Street Ste 3550
Chicago, IL 60601
Nationwide Provider
Address:
161 North Clark Street Ste 3550
Chicago, IL 60601
Toll Free Phone: 800-572-1717
Email: mda@mdausa.org
Services Provided:

A voluntary health agency that works to combat muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related muscle-debilitating diseases. The organization is committed to finding treatments and cures while providing a comprehensive program to empower families with support to help them thrive and stay independent including summer camps for kids, peer support, equipment resources and more. Related volunteer opportunities available.COVID-19 Update: following all CDC and state guidelines.

  • Voluntary Health Organizations
  • Assistive Technology Expense Assistance
  • Health/Disabilities Related Volunteer Opportunities
  • Therapeutic Camps
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 3/14/2023
Nationwide Provider
5335 Wisconsin Avenue NW, Suite 440
Washington, DC 20015
Phone: 202-769-0486
Nationwide Provider
Address:
5335 Wisconsin Avenue NW, Suite 440
Washington, DC 20015
Phone: 202-769-0486
Email: info@GotTransition.org
Services Provided:

Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.

Provider Profiles:

See resources on http://gottransition.org

Source: MHP-Nationwide
Last Updated: 1/10/2023
Nationwide Provider
115 E. 23rd St., 9th Floor
New York, NY 10010
Nationwide Provider
Organization Name: Psychology Today
(Show others in Organization)
Address:
115 E. 23rd St., 9th Floor
New York, NY 10010
Services Provided:

National state-based database of mental health professionals. Detailed professional listings for Psychologists, Psychiatrists, Therapists, Counselors, Group Therapy and Treatment Centers in the United States and Canada.

Search by city, insurance, issues, sexuality, gender, age, language, faith, types of therapy, online therapy, psychiatrists, treatment centers, and support groups.

Provider Profiles:

Psychology Today's Therapy Directory is run here Sussex Directories.

Source: MHP-Nationwide
Last Updated: 8/15/2022
Nationwide Provider
1360 Clifton Avenue, Ste. 327
Clifton, NJ 07012
Nationwide Provider
Address:
1360 Clifton Avenue, Ste. 327
Clifton, NJ 07012
Services Provided:

Provides educational information, resources and inspiring stories for families of children and adults with disabilities and special healthcare needs as well as healthcare and educational professionals. The digital version and newsletter are available for free, by signing up at www.epmagazine.com (EP for Free). 

Source: MHP-Nationwide
Last Updated: 2/24/2023
Nationwide Provider
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Nationwide Provider
Organization Name: National Respite Locator Service
(Show others in Organization)
Address:
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Services Provided:

The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center.

Provider Profiles:

The ARCH National Respite Network includes summer camps for both children and adults with special needs.

A cooperative agreement with the US Administration for Community Living/ Administration on Aging

Source: MHP-Nationwide
Last Updated: 3/2/2022
Nationwide Provider
13750 West Colonial Drive, Suite 350
Winter Garden, FL 34787
Nationwide Provider
Organization Name: Childhood Anxiety Network
(Show others in Organization)
Address:
13750 West Colonial Drive, Suite 350
Winter Garden, FL 34787
Email: info@selectivemutism.org
Services Provided:

Provides information, resources and support to those impacted by a child with the anxiety disorder known as Selective Mutism (SM). Provides a network of professionals, families and affected individuals across the world who understand the struggle of living in silence.

SMA Support Groups by State: list of SMA support groups.

Find a Treating Professional: Directory of professionals that have joined the SMA community.

Source: MHP-Nationwide
Last Updated: 2/15/2023
Nationwide Provider
101 Montgomery Street, Suite 2150
San Francisco, CA 94104
Nationwide Provider
Organization Name: National Center on Caregiving
(Show others in Organization)
Address:
101 Montgomery Street, Suite 2150
San Francisco, CA 94104
Toll Free Phone: 800-445-8106
Services Provided:

Provides information on caregiver services, policy and research. Search for state-based resources using the Services by State tool.

Source: MHP-Nationwide
Last Updated: 12/20/2021
Nationwide Provider
530 Fifth Avenue, 18th Floor
New York, NY 10036
Phone: 855-566-5871
Nationwide Provider
Address:
530 Fifth Avenue, 18th Floor
New York, NY 10036
Phone: 855-566-5871
Email: info@fairhealth.org
Services Provided:

Provides essential information on costs for thousands of procedures and learn insurance basics. A national independent, nonprofit corporation whose mission is to bring transparency to healthcare costs and health insurance information through comprehensive data products and consumer resources. Search for medical and dental costs.

Provider Profiles:

Internet-based service

Source: MHP-Nationwide
Last Updated: 9/25/2022
Nationwide Provider
4500 Cooper Road, Suite 204
Cincinnati, OH 45242
Phone: 513-874-3020
Nationwide Provider
Address:
4500 Cooper Road, Suite 204
Cincinnati, OH 45242
Phone: 513-874-3020
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided:

Provides the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future. Includes research about the condition and medication trials.

Source: MHP-Nationwide
Last Updated: 12/29/2022
Nationwide Provider
601 W. Short Street
Lexington, KY 40508
Nationwide Provider
Address:
601 W. Short Street
Lexington, KY 40508
Toll Free Phone: 888-417-3435
Email: info@childneurologyfoundation.org
Eligibility:

For patients or caregivers, advocacy groups, health care providers, and supporters.

Services Provided:

Offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition. Includes: Transition of Care, Infantile Spasms Awareness, Respite Care, Sudden Unexpected Death in Epilepsy, Grants and Scholarships, Webinars

Provider Profiles:

National, web-based locator for services

Source: MHP-Nationwide
Last Updated: 1/23/2023
Nationwide Provider
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Nationwide Provider
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided:

Provides objective and credible information, advocacy and research for diabetes. Website offers education, legal rights, health insurance, tips for caregivers, etc. Provides camps for children with Type I diabetes and with or at risk of developing Type II diabetes.

Source: MHP-Nationwide
Last Updated: 5/9/2022
Nationwide Provider
663 Thirteenth Street, Suite 100
Oakland, CA 94612
Phone: 415-800-7777
Nationwide Provider
Address:
663 Thirteenth Street, Suite 100
Oakland, CA 94612
Phone: 415-800-7777
Toll Free Phone: 866-968-6642
Email: info@myotonic.org
Services Provided:

Provides support and connections in the myotonic dystrophy community, resources, advocacy, and research toward treatments and a cure.

Services Include:

Source: MHP-Nationwide
Last Updated: 3/3/2023
FASD United View on Map
Nationwide Provider
PO Box 251
McLean, VA 22101
Phone: 202-785-4585
Nationwide Provider
Address:
PO Box 251
McLean, VA 22101
Phone: 202-785-4585
Toll Free Phone: 800-666-6327
Services Provided:

Provides a resource for the Fetal Alcohol Spectrum Disorders (FASD) community, and committed to the prevention of prenatal exposure to alcohol, drugs, and other substances known to harm fetal development, and to supporting individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/ developmental disabilities.

Source: MHP-Nationwide
Last Updated: 3/3/2023
Nationwide Provider
4068 Mount Royal Boulevard, Suite 224B
Allison Park, PA 15101
Phone: 412-341-1515
Nationwide Provider
Address:
4068 Mount Royal Boulevard, Suite 224B
Allison Park, PA 15101
Phone: 412-341-1515
Fax: 412-344-0224
Email: info@LDAAmerica.org
Eligibility:

People with disabilities, their parents, teachers, and other professionals

Services Provided:

Provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.

Source: MHP-Nationwide
Last Updated: 4/26/2022
Nationwide Provider
345 Park Boulevard
Itasca, IL 60143
Nationwide Provider
Organization Name: American Academy of Pediatrics (AAP) Specialist Locator
(Show others in Organization)
Address:
345 Park Boulevard
Itasca, IL 60143
Email: info@healthychildren.org
Services Provided:

A website that provides resources to parents from the American Academy of Pediatrics. Includes tools to locate pediatricians and pediatric specialists throughout the US.

Source: MHP-Nationwide
Last Updated: 12/22/2021
Nationwide Provider
1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Nationwide Provider
Organization Name: American Cleft Palate Craniofacial Association
(Show others in Organization)
Address:
1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Fax: 919-933-9604
Email: admin@cleftline.org
Eligibility:

Open to all.

Services Provided:

Connects individuals and families affected by cleft lip/palate and other craniofacial to team care, providing education, and offerings personal support. Awards College scholarships, research grants, and silent auction. Provides patient/family Connections Conferences and 24 hour Cleftline.

Source: MHP-Nationwide
Last Updated: 6/3/2021
Nationwide Provider
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Nationwide Provider
Address:
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-832-4545
Email: info@aedweb.org
Services Provided: Provides research, educational forums, publications, subject matter experts, and current information on treatment and prevention of eating disorders via internet.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Specialized Information and Referral
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Nationwide Provider
Address:
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Email: education@kidneyfund.org
Eligibility:

Kidney patients and health care professionals.

Services Provided:

Provides health information, education, financial assistance, advocacy, and resources for kidney patients and health care professionals in English and Spanish. Services include disease/disability information, medical care expense assistance, and internet information. Programs for children include the Summer Enrichment Program and the annual Calendar Kids Art Contest.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Medical Care Expense Assistance
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 10/23/2022
Nationwide Provider
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Nationwide Provider
Address:
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Eligibility:

Free credit reports available to everyone yearly.

Services Provided: Federal law requires each of the three nationwide consumer credit reporting companies (Equifax, Experian, and TransUnion) provide consumers a free credit report every 12 months if interested. This website allows users to request a credit report from any or all of the companies annually.

  • Credit Reporting Agencies
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Nationwide Provider
Address:
PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Email: info@add.org
Eligibility:

Individuals with ADHD and their families

Services Provided: An international non-profit organization founded twenty-five years ago to help adults with Attention Deficit/Hyperactivity Disorder (ADHD) lead better lives. A volunteer-run organization provides information and resources exclusively for and about adult ADHD, and related support groups.

  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Autism Speaks View on Map
Nationwide Provider
1060 State Road
Princeton, NJ 10016
Nationwide Provider
Address:
1060 State Road
Princeton, NJ 10016
Toll Free Phone: 888-288-4762
Email: help@autismspeaks.org
Services Provided:

Provides the latest autism science and information, funding research into the causes, prevention, treatments and cures for autism, awareness of autism spectrum disorders, advocacy for the needs of individuals with autism and their families and an online store. COVID-19 UPDATE: Offering 30+ hours of free online video learning resources; visit website for programming.

  • Specialized Information and Referral
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 10/23/2022
Nationwide Provider
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Nationwide Provider
Organization Name: National Autism Association
(Show others in Organization)
Address:
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Email: naa@nationalautism.org
Eligibility:

No restrictions

Services Provided: Online specialized information and referral resource of six national non-profit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Nationwide Provider
1150 Connecticut Ave, NW Suite 501
Washington, DC 20036-3904
Phone: 202-454-3970
Nationwide Provider
Address:
1150 Connecticut Ave, NW Suite 501
Washington, DC 20036-3904
Phone: 202-454-3970
Toll Free Phone: 855-227-3640
Email: info@caregiveraction.org
Services Provided:

Provides resources and information to assist caregivers.

Source: Nationwide Suggest Providers Queue
Last Updated: 1/2/2023
Nationwide Provider
733 Third Avenue Ste 510
New York, NY 10017
Phone: 800-932-2423
Nationwide Provider
Address:
733 Third Avenue Ste 510
New York, NY 10017
Phone: 800-932-2423
Toll Free Phone: 888-694-8872
Email: info@crohnscolitisfoundation.org
Services Provided: A non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis. Provides online and telephone access to disease educational materials, support groups, research funds, and specialized information and referral.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Research Funds
  • Internet Information Resources
  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Nationwide Provider
Address:
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Toll Free Phone: 800-332-1000
Email: contactus@efa.org
Services Provided:

Supports people living with epilepsy, families, friends, and caregivers. Many programs, including support groups, are available through local Epilepsy Foundations, which can be located here.  

Services Include:

  • Education materials about epilepsy, types of seizures, triggers, diagnosis, treatment, etc.
  • National policy and legal advocacy
  • Research and funding
  • Public awareness
  • Training programs
  • 24/7 information helpline
  • Kids Crew- for kids ages 14 and under
  • Summer Camps
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
Nationwide Provider
Organization Name: U.S. Centers for Medicare and Medicaid Services
(Show others in Organization)
Address:
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
TDD: 855-889-4325
Eligibility:

Anyone looking for health insurance under the Affordable Care Act (ACA). Specifically for those who currently don't have health coverage or looking to change plans.

Services Provided: A new way to find health coverage that fits the individual's budget and needs. With one application, the individual can see all options and enroll. Open enrollment runs from November to December; please see the website for specific dates.COVID-19 UPDATE: Check with health insurance company for specific benefits and coverage for COVID-19. Login to update marketplace application if COVID-19 impacts income or household. May be able to change plan if certain situations apply.

  • General Health Insurance Information/Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Nationwide Provider
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through information education and support groups.COVID-19 HOURS: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 2/9/2023
Joe's House View on Map
Nationwide Provider
505 East 79th Street Ste 17E
New York, NY 10075
Nationwide Provider
Address:
505 East 79th Street Ste 17E
New York, NY 10075
Toll Free Phone: 877-563-7468
Email: info@joeshouse.org
Services Provided: Not an actual house, but a website that lists thousands of places to stay across the country near hospitals and treatment centers that offer a discount for traveling cancer patients and their loved ones. Although Joe's House caters to cancer patients, any patient regardless of diagnosis, may use the lodging facilities listed. Also provides specialized information and referrals.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Patient/Family Housing
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
623 West 38th Street Ste 300
Austin, TX 78705
Phone: 877-236-8820
Nationwide Provider
Address:
623 West 38th Street Ste 300
Austin, TX 78705
Phone: 877-236-8820
Email: livestrong@livestrong.org
Eligibility:

Cancer patients

Services Provided: Provides resources for the cancer community to address the unmet needs of cancer survivors and develops evidence-based solutions to address both the common and unique problems survivors are facing around the world. Offers a prescription drug discount card, and specialized information and referral.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Specialized Information and Referral
  • Prescription Drug Discount Cards
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
220 North Green Street
Chicago, IL 60607
Nationwide Provider
Address:
220 North Green Street
Chicago, IL 60607
Toll Free Phone: 888-375-7767
Email: hello@anad.org
Services Provided: A non-profit organization working in the areas of support, awareness, advocacy, referral, education, and prevention for people, their families and friends struggling with eating disorders. Also provides resources for families, schools and the eating disorder community. Services include recovery mentorship, support groups, an annual conference and a YouTube recovery channel. Related volunteer service opportunities available.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Nationwide Provider
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Nationwide Provider
Address:
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Email: questions@braintumor.org
Services Provided: Provides information, education, advocacy and resources for finding better treatments, and ultimately, a cure for people living with a brain tumor and anyone who will be diagnosed in the future.

  • Specialized Information and Referral
  • Disease/Disability Information
  • Internet Information Resources
Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Nationwide Provider
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Nationwide Provider
Address:
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Email: nciinfo@nuh.gov
Wheelchair Access: Complete
Languages Spoken: Spanish
Services Provided: A free public service providing easy to understand, accurate, up-to-date, and reliable medical information services to answer cancer related questions to patients, friends and family, healthcare providers, or researchers. Includes disease/disability information, answers clinical trial questions, and provides internet information resources on how to find treatment, specialized information and referral, risk factors, symptoms, diagnostics, and treatments. Leads, conducts, and supports cancer research across the nation to help all people live longer, healthier lives.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
  • Medical Information Services
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
4221 Forbes Boulevard Ste 270
Lanham, MD 20706
Phone: 301-306-7070
Nationwide Provider
Organization Name: CHADD
(Show others in Organization)
Address:
4221 Forbes Boulevard Ste 270
Lanham, MD 20706
Phone: 301-306-7070
Toll Free Phone: 866-200-8098
Fax: 301-306-7090
Email: nrc@chadd.org
Services Provided:

A program of CHADD providing an online clearinghouse for the latest evidence-based information and resources on ADHD through support groups and specialized information and referral.

  • Health/Disability Related Support Groups
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
200 Independence Avenue, SW
Washington, DC 20201
Phone: 202-690-7650
Nationwide Provider
Organization Name: U.S. Department of Health and Human Services
(Show others in Organization)
Address:
200 Independence Avenue, SW
Washington, DC 20201
Phone: 202-690-7650
Toll Free Phone: 800-994-9662
Fax: 202-205-2631
Eligibility:

Anyone seeking health information or referral.

Services Provided:

Provides national resources and information about women’s health as well as an information and referral helpline.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2023
Nationwide Provider
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Nationwide Provider
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-272-6226
Fax: 310-725-0029
Email: info@pancan.org
Languages Spoken: Spanish
Services Provided: Provides clinical trials, disease/disability information, and specialized information and referral. Raises money for direct private funding of research, supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aim to create a sense of hope and community so no one has to face pancreatic cancer alone.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Clinical Trials
  • Specialized Information and Referral
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
PO Box 5930
Midlothian, VA 23112
Nationwide Provider
Address:
PO Box 5930
Midlothian, VA 23112
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Languages Spoken: Spanish; other language interpreters available
Services Provided: Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and co-payments. Financial support and guidance available for qualified patients with specific, rare, chronic diseases.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Specialized Information and Referral
  • Medical Care Expense Assistance
Source: MHP-Nationwide
Last Updated: 2/9/2023
Nationwide Provider
7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Nationwide Provider
Address:
7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Toll Free Phone: 866-951-5357
Fax: 440-951-5358
Email: information@smartrecovery.org
Services Provided: Self-Management and Recovery Training (SMART) sponsors face-to-face and daily online meetings for addiction recovery. Offers a variety of support groups for Alcohol/drug use and also support groups for friends/family members of individuals with alcohol and drug use disorders.COVID-19 UPDATE: Fully operational throughout. Please check website often for updates.

  • Drug Use Disorder Support Groups
  • Alcohol Use Disorder Support Groups
  • Families/Friends of Individuals With a Drug Use Disorder Support Groups
  • Families/Friends of Individuals With an Alcohol Use Disorder Support Groups
Source: MHP-Nationwide
Last Updated: 12/20/2022
Nationwide Provider
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Nationwide Provider
Organization Name: Christopher and Dana Reeve Foundation
(Show others in Organization)
Address:
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Toll Free Phone: 800-539-7309
Email: beisenbud@christopherreeve.org
Eligibility:

No restrictions

Services Provided:

Non-profit foundation which promotes the health and well-being of people living with a spinal cord injury, mobility impairment, and paralysis. The Paralysis Resource Center (PRC) is staffed with information specialists who can provide individualized support via phone/email on any topic related to paralysis, such as what to expect in rehab, the best equipment exchange programs, peer mentoring, educational materials, etc.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 2/23/2022
Nationwide Provider
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Nationwide Provider
Address:
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Fax: 703-465-5085
Email: info@acb.org
Wheelchair Access: Yes
Eligibility:

Those who are blind or visually impaired, their families, friends, doctors, caregivers, and anyone who works with blind or visually impaired people

Services Provided:

Non-medical information on blindness, and referrals to various sources of help, state services for the blind, and state libraries for the blind.

Resources: Offers a variety of resources, including Job Connection, Blind/Low Vision resources, peer support, and more

Scholarships: Scholarships for freshman, undergraduate, and graduate students. To be eligible for a scholarship, applicants need to be legally blind, maintain a 3.0 GPA to be eligible for most scholarships, be a full-time student (as well as students who work 32 or more hours per week and attend college part time), and be involved in their school/local community.

Programs and Services: Audio Description Project, Advocacy and Governmental Affairs, Radio, and more.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/8/2022
Nationwide Provider
PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Nationwide Provider
Address:
PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Toll Free Phone: 877-MPS-1001
Services Provided:

Provides support to families of children with mucopolysaccharidoses (MPS) and mucolipidosis (ML) diseases through education, fundraising assistance for medical expense assistance, resource guides, and advocacy.

Source: Nationwide Suggest Providers Queue
Last Updated: 2/1/2022
Nationwide Provider
Crisis Line: 866-331-9474
PO Box 90249
Austin, TX 78709
Nationwide Provider
Crisis Line: 866-331-9474
Address:
PO Box 90249
Austin, TX 78709
Services Provided: Engages, educates, and empowers young people to prevent and end abusive relationships by offering support through 24/7 hotlines and specialized information/ referral.COVID-19 UPDATE: Following all CDC and state guidelines.

  • Specialized Information and Referral
  • Dating Abuse Hotlines
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Nationwide Provider
Organization Name: U.S. National Library of Medicine
(Show others in Organization)
Address:
8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Fax: 301-402-1384
Email: custserv@nlm.nih.gov
Services Provided:

Online medical information resource directs to information to help answer health questions. Information on drugs displays an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. Provides information about conditions including homocystinuria.

Source: Nationwide Suggest Providers Queue
Last Updated: 12/27/2022
Nationwide Provider
3308 Preston Road
Suite 350-111
Plano, TX 75093
Phone: 212-575-6200
Nationwide Provider
Address:
3308 Preston Road
Suite 350-111
Plano, TX 75093
Phone: 212-575-6200
Text: 741741
Toll Free Phone: 800-931-2237
Fax: 212-575-1650
Email: info@nationaleatingdisorders.org
Wheelchair Access: Yes
Eligibility:

Individuals and families affected by eating disorders.

Services Provided:

Provides information and treatment options for eating disorders.

Confidential Helpline Monday-Thursday (800-931-2237) from 9am to 9pm ET and Friday from 9am to 5pm ET.

24/7 crisis support: text 'NEDA' to 741741

Source: MHP-Nationwide
Last Updated: 8/15/2022
Nationwide Provider
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility:

Contact for specific information.

Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 3/1/2023
Nationwide Provider
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Nationwide Provider
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Fax: 202-349-1156
Email: info@lupus.org
Languages Spoken: Spanish
Services Provided:

Provides programs to improve the quality of life for all people affected by lupus through research, education, support and advocacy. The Foundation makes continuous updates to its COVID-19 vaccine and lupus FAQ and COVID-19 and lupus FAQ pages.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Source: MHP-Nationwide
Last Updated: 2/9/2023
Nationwide Provider
5600 Fishers Lane
Rockville, MD 20857
Phone: 888-275-4772
Nationwide Provider
Address:
5600 Fishers Lane
Rockville, MD 20857
Phone: 888-275-4772
Services Provided:

HRSA assures the availability of quality health care to low income, uninsured, isolated, vulnerable, and special needs populations in order to meet their unique health care needs.

[https://bphc.hrsa.gov/ Bureau of Primary Health Care] has information about health center training and funding. There is also a [https://findahealthcenter.hrsa.gov/ Health Centers Locator].

Source: Nationwide Suggest Providers Queue
Last Updated: 1/26/2023
Nationwide Provider
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Nationwide Provider
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Toll Free Phone: 888-242-2453
Services Provided:

Provides information for individuals, families, and professionals regarding heart-related concerns. Includes general health information, information regarding specific conditions, and information about CPR and First Aid training.

The American Stroke Association (https://www.stroke.org/) is a division of the American Heart Association focused on stroke prevention and treatment.

Source: Nationwide Suggest Providers Queue
Last Updated: 1/23/2023
Nationwide Provider
700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Nationwide Provider
Address:
700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Toll Free Phone: 888-894-6361
Fax: 804-782-4817
Email: unethelpdesk@unos.org
Eligibility:

Contact for specific information.

Services Provided:

Provides a national patient hotline for organ transplantation information. Donor cards, booklets, brochures and lists of transplant centers are available. Patient information packets on specific organs are available.

Source: Nationwide Suggest Providers Queue
Last Updated: 1/10/2023
Nationwide Provider
4000 Ridgeway Drive
Birmingham, AL 35209
Nationwide Provider
Address:
4000 Ridgeway Drive
Birmingham, AL 35209
TDD: 800-900-8086
Toll Free Phone: 800-900-8086
Fax: 205-313-7474
Email: email@nchpad.org
Services Provided:

NCHPAD is the premier resource for information on physical activity, health promotion, and disability, serving persons with physical, sensory and cognitive disability across the lifespan. website features a variety of resources and services which can benefit all ages and populations.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/13/2022
Nationwide Provider
PO Box 299
West Orange, NJ 07052
Nationwide Provider
Address:
PO Box 299
West Orange, NJ 07052
Toll Free Phone: 1-800-465-4837
Services Provided:

Provides advocacy, education, support and research for the prevention, treatment and cure of liver disease. The Desert Southwest Division serves Arizona, New Mexico, Texas and Utah.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
1861 International Drive Suite 200
McLean, VA 22102
Phone: 202-747-6210
Nationwide Provider
Address:
1861 International Drive Suite 200
McLean, VA 22102
Phone: 202-747-6210
Toll Free Phone: 800-688-8765
Fax: 202-747-6208
Services Provided:

Provides awareness, education, and research to support families living with Fragile X. Provides a patient and family registry plus a longitudinal database populated by clinician- and parent-reported data from individuals living with FXS.

Source: Nationwide Suggest Providers Queue
Last Updated: 12/29/2022
Nationwide Provider
2134 G Street NW
Washington, DC 20052
Phone: 202-454-1220
Nationwide Provider
Address:
2134 G Street NW
Washington, DC 20052
Phone: 202-454-1220
Email: askheath@gwu.edu
Services Provided:

A national web-based clearinghouse on post-secondary education for individuals with disabilities. Provides national conferences, training sessions, and workshops, develops training modules, publishes resource papers, fact sheets, directories, and website information, and fosters a network of professionals.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
1090 Vermont Avenue NW, Suite 220
Washington, DC 20005
Phone: 202-467-5730
Nationwide Provider
Address:
1090 Vermont Avenue NW, Suite 220
Washington, DC 20005
Phone: 202-467-5730
Toll Free Phone: 202-467-4232
Fax: 202-223-0409
Email: communications@bazelon.org
Services Provided:

Advocates for the rights of adults and children who have mental disabilities. The Bazelon Center envisions an America where people who have mental illnesses or developmental disabilities exercise their own life choices and have access to the resources that enable them to participate fully in their communities.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
1220 L Street, NW Ste. Box 168
Washington, DC 20005
Phone: 301-966-2234
Nationwide Provider
Address:
1220 L Street, NW Ste. Box 168
Washington, DC 20005
Phone: 301-966-2234
Toll Free Phone: 888-575-7373
Email: info@ncld.org
Services Provided:

Aims to ensure success for all individuals with learning disabilities in school, at work and in life.

Services Include:

  • Information and Referral Resources
  • Library Services
  • Special Education Assessment
  • Speech and Language Evaluations
  • System Advocacy
  • Scholarships for two graduating high school seniors with documented learning disabilities and/or ADHD who are pursuing post-secondary education.
Source: Nationwide Suggest Providers Queue
Last Updated: 4/26/2022
Nationwide Provider
1255 23rd Street, NW, Suite 400
Washington, DC 20037-1151
Phone: 202-662-0600
Nationwide Provider
Address:
1255 23rd Street, NW, Suite 400
Washington, DC 20037-1151
Phone: 202-662-0600
Fax: 202-393-2072
Email: info@safekids.org
Services Provided:

Provides general information on child safety and injury prevention. Education materials are available on such topics as car seats inspections, seat belt safety and helmet safety for bicyclists.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/26/2022
Nationwide Provider
350 North Glendale Avenue, Suite B368
Glendale, CA 91206
Phone: 704-364-0016
Nationwide Provider
Address:
350 North Glendale Avenue, Suite B368
Glendale, CA 91206
Phone: 704-364-0016
Email: SolveCFS@SolveCFS.org
Services Provided:

Provides critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/26/2022
Nationwide Provider
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Nationwide Provider
Address:
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Email: staff@birthdefects.org
Services Provided:

Provides parents and expectant parents with information about birth defects and support services for their children; a parent-matching program that links families who have children with similar birth defects; sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and exposures to radiation, medication, alcohol, smoking, chemicals, pesticides, lead, mercury, dioxin and other environmental toxins.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
30 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Nationwide Provider
Address:
30 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Toll Free Phone: 800-232-6372
Fax: 770-604-9898
Email: info@ndsccenter.org
Services Provided:

Promotes the interests of people with Down syndrome and their families through advocacy, public awareness, and information.

Services Include:

  • programs and resources
  • an adult sibling toolkit
  • a family care toolkit
  • an Ages & Stages development resource library
  • healthcare and medical resources
  • outreach and education including the Down Syndrome Summit and Parent Webinars
  • policy and advocacy including the National Down Syndrome Advocacy Coalition and a tool kit for self-advocates
  • an annual convention that includes a Kids' Camp
Source: Nationwide Suggest Providers Queue
Last Updated: 9/8/2022
Easterseals View on Map
Nationwide Provider
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Nationwide Provider
Address:
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Toll Free Phone: 800-221-6827
Fax: 312-726-1494
Email: info@easterseals.com
Services Provided:

Provides services, education, outreach, and advocacy so that children with disabilities are given full access to quality education, support, and resources.

Services Include:

  • Early Intervention
  • Early Childhood Education
  • Make the First Five Count Childhood Development Screening Tool
  • Nationwide Directory for Inclusive Child Care Programs
  • Camping and Recreation Programs
  • Family Support and Resources
  • Transportation Assistance and Support
  • Employment and Training
  • Financial Capability and Homebuying
Source: Nationwide Suggest Providers Queue
Last Updated: 2/1/2023
Nationwide Provider
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
TDD: 301-565-2966
Toll Free Phone: 877-226-4267
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Services Provided:

Supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.

Source: Nationwide Suggest Providers Queue
Last Updated: 3/1/2023
Nationwide Provider
PO Box 5801
Bethesda, MD 20894
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
PO Box 5801
Bethesda, MD 20894
Toll Free Phone: 800-352-9424
Services Provided:

Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas. Collects and disseminates research information related to neurological disorders.

Source: Nationwide Suggest Providers Queue
Last Updated: 3/3/2023
Nationwide Provider
600 Highway 169 South, Suite 1725
Minneapolis, MN 55426
Phone: 763-553-0020
Nationwide Provider
Address:
600 Highway 169 South, Suite 1725
Minneapolis, MN 55426
Phone: 763-553-0020
Fax: 763-553-0167
Email: naf@ataxia.org
Wheelchair Access: Access w/o Special Facilities
Services Provided:

Facilitates support groups for those with hereditary and sporadic ataxia. The Foundation also provides information about ataxia, current research activities and
a listing of neurologists in the United States who see patients with ataxia.

Family Support Centers/Outreach
Information and Referral
Support Groups

Source: Nationwide Suggest Providers Queue
Last Updated: 10/9/2022
Nationwide Provider
200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Nationwide Provider
Address:
200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Toll Free Phone: 866-672-9466
Fax: 828-855-1672
Email: elizabeth.green@driver-ed.org
Services Provided:

The primary professional organization in this specialized area, encouraging equipment development to maximize the transportation options for persons with disabilities. To find a driver rehabilitation specialist in or near your area, please visit our website.

Driving Safety Education

Source: Nationwide Suggest Providers Queue
Last Updated: 8/15/2022
Nationwide Provider
1550 Crystal Drive, Suite 1300
Arlington, VA 22202
Nationwide Provider
Address:
1550 Crystal Drive, Suite 1300
Arlington, VA 22202
Toll Free Phone: 888-663-4637
Services Provided:

Seeks to improve the health of babies by preventing birth defects and reducing infant mortality. Campaigns for Healthier Babies, which includes programs of research, community service, education and advocacy.

Source: Nationwide Suggest Providers Queue
Last Updated: 3/3/2023
Nationwide Provider
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Nationwide Provider
Address:
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Toll Free Phone: 800-345-4372
Email: HDSAinfo@hdsa.org
Services Provided:

Dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research.

Services Include:

  • Information and Referral
  • Library Services
  • Peer Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Nationwide Provider
Address:
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Fax: 212-279-2066
Email: info@famdys.org
Services Provided:

Supporting treatment and research for familial dysautonomia. FD is a hereditary disease of the sensory and autonomic nervous systems.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 1/23/2023
Nationwide Provider
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Nationwide Provider
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility:

Patients and families of children with congenital heart disease.

Services Provided:

Provides ongoing peer-to-peer support, education, and advocacy to heart patients and their families. Local chapter locator available on website.

Services Include:

  • peer support and education
  • education resources
  • hospital outreach
  • CHD awareness
  • community health education
  • online community
  • advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
733 Third Avenue
New York, NY 10017
Nationwide Provider
Address:
733 Third Avenue
New York, NY 10017
Toll Free Phone: 800-344-4867
Services Provided:

Provides information, advocacy, research, and referrals for individuals with multiple sclerosis and their families. Website includes a locator for local chapters, doctors, resources, and events.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
PO Box 8126
Gaithersburg, MD 20898-8126
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
PO Box 8126
Gaithersburg, MD 20898-8126
Toll Free Phone: 888-205-2311
Languages Spoken: Spanish
Services Provided:

Provides the public with access to current, reliable, and easy-to-understand information about rare or genetic disease. In addition to website-based information you may contact a GARD Information Specialist. Also, GARD develops guides with tips on general topics, important resources, and answers to questions that patients, their families, and friends often ask us.

Provider Profiles:

GARD is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI).

Source: Nationwide Suggest Providers Queue
Last Updated: 3/1/2023
Nationwide Provider
16430 Ventura Blvd Suite 300
Encino, CA 91436
Phone: 818-892-1616
Nationwide Provider
Address:
16430 Ventura Blvd Suite 300
Encino, CA 91436
Phone: 818-892-1616
Toll Free Phone: 800-777-8189
Email: info@spondylitis.org
Services Provided:

Provides of informational materials on spondylitis.

Services Include:

Source: Nationwide Suggest Providers Queue
Last Updated: 2/16/2023
Nationwide Provider
PO Box 1102
Olney, MD 20830
Nationwide Provider
Address:
PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Fax: 630-604-6078
Email: thyca@thyca.org
Eligibility:

Thyroid cancer patients, survivors, caregivers and medical professionals.

Services Provided: Provides current information about thyroid cancer and support group services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as caregivers. Receives ongoing input and review from numerous thyroid cancer specialists. Provides internet information as well as specialized information and referral.COVID-19 UPDATE: Some groups are being held virtually; please call or visit website to verify.

  • Specialized Information and Referral
  • Internet Information Resources
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Nationwide Provider
300 Rosewood Drive, Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Nationwide Provider
Address:
300 Rosewood Drive, Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Toll Free Phone: 800-722-4673
Fax: 978-463-5809
Email: info@scleroderma.org
Eligibility:

Those affected by scleroderma and their families.

Services Provided:

Provides awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/29/2022
Nationwide Provider
1600 Clifton Road
Atlanta, GA 30333
Nationwide Provider
Organization Name: Centers for Disease Control and Prevention
(Show others in Organization)
Address:
1600 Clifton Road
Atlanta, GA 30333
Services Provided:

The Center for Disease and Control national coronavirus website provides up-to-date information about the coronavirus, including prevention, preparedness, travel restrictions, and response including stimulus payments.For those experiencing symptoms or who are concerned about exposure to the virus, please call local coronavirus information lines and/or telehealth lines.

  • COVID-19 Control
  • Temporary Financial Assistance
Source: Nationwide Suggest Providers Queue
Last Updated: 2/22/2023
Nationwide Provider
7918 Jones Branch Drive Ste 300
Mc Lean, VA 22102
Phone: 703-556-7172
Nationwide Provider
Address:
7918 Jones Branch Drive Ste 300
Mc Lean, VA 22102
Phone: 703-556-7172
Toll Free Phone: 866-668-2566
Fax: 703-506-3266
Email: info@resolve.org
Services Provided: Improving the lives of women and men living with the disease of infertility by providing free support to anyone in need, advocating for increased access to all family building options, and reducing the stigma of this disease through information, public education and advocacy.COVID-19 UPDATE: following all CDC and state guidelines.

  • Infertility Support Groups
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Nationwide Provider
300 Longwood Ave
Boston, MA 02115
Nationwide Provider
Organization Name: Boston Children's Hospital
(Show others in Organization)
Address:
300 Longwood Ave
Boston, MA 02115
Email: vaccine@healthmap.org
Services Provided:

General vaccine information and finder.

FAQs about vaccines, including general vaccine safety, and specific vaccines.

Find Vaccine: Locate vaccines by type and location. Call first to schedule an appointment and verify vaccine supplies.

Provider Profiles:

Project of:

  • Boston Children's Hospital
  • Centers for Disease Control and Prevention (CDC)
  • Harvard Medical School
  • HealthMap
Source: MHP-Nationwide
Last Updated: 2/22/2023
Nationwide Provider
716 Soquel Avenue, Suite A
Santa Cruz, CA 95062
Phone: 831-457-1004
Nationwide Provider
Address:
716 Soquel Avenue, Suite A
Santa Cruz, CA 95062
Phone: 831-457-1004
Email: info@bfrb.org
Services Provided:

Provides and online resources for coping with body-focused repetitive behaviors (like hair pulling and skin picking). Website is designed for those with these behaviors, family members, medical and mental health professionals, and others interested in learning about this often-misunderstood disorder.

Services Include:

  • Specialized Information and Referral
  • Therapist Directory
  • Support Group
Source: Nationwide Suggest Providers Queue
Last Updated: 3/2/2023
Nationwide Provider
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Nationwide Provider
Address:
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Email: info@caregiverslibrary.com
Eligibility: Caregivers, seniors, and employers.
Services Provided:

The National Caregivers Library contains online information and resources to assist caregivers and seniors with useful forms, checklists, and topic-specific external resources. The resources are made available at no cost through alliances with professionals, businesses, and other agencies serving seniors and their caregivers with a variety of services.

  • Specialized Information and Referral
Provider Profiles:

Internet resource

Source: Nationwide Suggest Providers Queue
Last Updated: 12/20/2022
Nationwide Provider
Organization Name: American Bar Association
(Show others in Organization)
Address:
321 North Clark Street
Chicago, IL 60654
Toll Free Phone: 800-285-2221
Email: Service@americanbar.org
Services Provided:

Improves the health and well-being of vulnerable populations in partnership with the medical community through the work of volunteer attorneys.

Local programs can be identified using Directory of Programs.

Source: MHP-Nationwide
Last Updated: 4/22/2022