Internet Information Resources

Description: Information that is available to people with personal computers equipped with Internet connections and the appropriate software. (AIRS TJ-1800-3300) Information Services (TJ) Programs that provide for the collection, classification, storage, retrieval and dissemination of recorded knowledge for the community. Included are electronic information resources, information and referral programs, information lines, library services, media services, public awareness/education campaigns, research data and rumor control activities.

If you know of a Service that should be listed but isn't, please Suggest a Provider If you find errors in a listing, please let us know by using the "Suggest an Edit" form on the provider's detail page.
Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

UT

Statewide

Organization Name: Intermountain Physician
Address: UT
Services Provided: A web-based source for up-to-date information about infectious diseases currently affecting Utah communities.

Original Source:
Last Updated: 6/24/2015
PO Box 141000
Cannon Health Building
Salt Lake City, UT 84114-1000
Phone: 801-538-6777
Organization Name: Utah Department of Health
Address: PO Box 141000
Cannon Health Building
Salt Lake City, UT 84114-1000
Phone: 801-538-6777
Fax: 801-536-0970
Wheelchair Accessible: Complete
Services Provided: Provides an online multilingual health library, training materials for health care professionals, and other health information resources to reduce health disparities and improve health outcomes for vulnerable populations.
Provider Profiles: online resource
Original Source:
Last Updated: 3/15/2018
Organization Name: Utah Department of Health
Address: UT
Services Provided: Informational website for women and children detailing tips for health, parenting, and relationships.
Provider Profiles: Online resource.
Original Source:
Last Updated: 10/9/2017
Organization Name: 2-1-1 Utah
Address: UT
Eligibility: Salt Lake County area
Services Provided: A 2-page list of resources in Salt Lake County area for single parents
Original Source:
Last Updated: 5/9/2016
Address: UT
Services Provided: A website of helpful information and resources, Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs.
Original Source:
Last Updated: 9/20/2013
Address: UT
Eligibility: A variety of insurances are accepted by different providers, including Medicaid and Medicare.
Services Provided: Trauma-trained and trauma-informed mental health, medical, and complementary providers experienced in the impact of trauma on the physical health and emotional well being of clients and patients in Utah.

The Trauma Informed Care Network (TICN) webpage has a growing list of 30+ providers.
Original Source:
Last Updated: 7/28/2016
254 South 600 East, Suite 200
UT
Phone: 801-359-2722
Address: 254 South 600 East, Suite 200
UT
Phone: 801-359-2722
Services Provided: Use locator to search for afterschool programs in Utah by county, city, schools.
Provider Profiles: Salt Lake City 84102
Original Source:
Last Updated: 10/14/2015
2040 East Murray Holladay Road Ste 112
Holladay, UT 84117
Phone: 801-274-2700
Address: 2040 East Murray Holladay Road Ste 112
Holladay, UT 84117
Phone: 801-274-2700
Fax: 801-274-2707
Email: upa@softsolutions.com
Eligibility: No restrictions
Wheelchair Accessible: Not At All
Services Provided: Professional organization for Utah psychologists. Operates a referral service and speaker's bureau.
Original Source:
Last Updated: 5/8/2018

Ogden, UT

2955 Harrison Boulevard
#102
Ogden, UT 84403
Phone: 801-627-3399
Address: 2955 Harrison Boulevard
#102
Ogden, UT 84403
Phone: 801-627-3399
Fax: 801-627-3321
Wheelchair Accessible: Complete
Services Provided: 1. Educational information and referral.
2. Prevention and training programs.
Original Source:
Last Updated: 3/11/2009

Orem, UT

800 West University Parkway, LC 312
Orem, UT 84058
Phone: 801-863-8747
Address: 800 West University Parkway, LC 312
Orem, UT 84058
Phone: 801-863-8747
Services Provided: Provides a variety of services, software and equipment for students with a wide range of disabilities.
Provider Profiles:
Original Source:
Last Updated: 12/20/2013

Pleasant Grove, UT

Pleasant Grove, UT 84062
Phone: 801-368-5884
Address: Pleasant Grove, UT 84062
Phone: 801-368-5884
Eligibility: No restrictions.
Services Provided: Provides information and support for individuals looking to plan a low cost funeral by giving advice and references over the phone. The website provides ideas on how to receive funds for funerals, information about required paperwork, consultation for conducting home funerals, and general tips and advice. Most information is provided via the website.
The organization does NOT directly provide funds or direct funerals.
Provider Profiles: Internet Resource
Original Source:
Last Updated: 4/4/2018

Price, UT

451 East 400 North SAC 118
Price, UT 84501
Phone: 435-613-5337
Address: 451 East 400 North SAC 118
Price, UT 84501
Phone: 435-613-5337
Fax: 435-613-5112
Services Provided: Providing services and accommodations, in accordance with the ADA Laws and Regulations, to traditional, as well as non-traditional students seeking services and educational opportunities at USU Eastern.

Original Source:
Last Updated: 12/20/2013

Salt Lake City, UT

4424 South 700 East Ste 180
Salt Lake City, UT 84107
Phone: 801-536-0990
Address: 4424 South 700 East Ste 180
Salt Lake City, UT 84107
Phone: 801-536-0990
Toll Free Phone: 888-391-9389
Fax: 801-536-0991
Eligibility: Individuals, family, and healthcare providers of those affected with arthritis.
Services Provided: Arthritis Foundation funds research and provides services including information on arthritis, doctor referral list, a magazine, support groups, self help classes, videos and exercise classes. The Arthritis Foundation Utah/Idaho Chapter serves Idaho and Utah.
Provider Profiles: Internet Resources
Original Source:
Last Updated: 3/28/2018
124 South 400 East, Suite 400
Salt Lake City, UT 84111
Phone: 801-355-4847
Address: 124 South 400 East, Suite 400
Salt Lake City, UT 84111
Phone: 801-355-4847
Toll Free Phone: 866-438-4847
Fax: 801-355-7453
Services Provided: Care About Childcare is an online system designed to help parents locate licensed providers in their area, in partnership with the State Office of Child Care/ Department of Workforce Services. CCR&R

The Child Care Licensing Program regulates child care providers and can make available to the public the provider's complaint history and compliance records if requested.
Original Source:
Last Updated: 3/3/2016
Address: 1135 East South Temple
Salt Lake City, UT 84102
Toll Free Phone: 877-572-8472
Services Provided: The Special Needs Alliance member attorneys work regularly with public benefits, guardianships/ conservatorships, planning for disabilities and special education issues, much on a volunteer basis.
SNA Practice Areas and Services:
Special Needs Trusts and Wills
Medicaid, SSI and Entitlement Program Eligibility
Estate, Trust and Tax Planning for Individuals with Disabilities and their Families
Financial Planning and Legal Assistance for Individuals with Disabilities
Guardianships and Conservatorships
Assistance with Personal Injury/Medical Malpractice Settlements
Trust and Estate Distributions and Fiduciary Accountings
Estate and Trust Administration
Health Care Decisions and Advance Directives
Provider Profiles: See educational resources on website.
See Locate an Attorney page to search for legal expertise by state.
In Utah:
Calvin C. Curtis, CELA, Attorney at Law, PLLC
calvin@curtiselderlaw.com
http://www.curtiselderlaw.com/
1135 East South Temple
Salt Lake City, UT 84102
Tel: (801)534-4430
Fax: (801)534-4431
Original Source:
Last Updated: 1/25/2018
1385 South State Street, 4th floor
Salt Lake City, UT 84115
Phone: 801-468-0091
Organization Name: Utah Division of Housing and Community Development
Address: 1385 South State Street, 4th floor
Salt Lake City, UT 84115
Phone: 801-468-0091
Eligibility: Some rental properties have "set-aside" units specifically for low income; seniors over age of 62; persons with physical and mental disabilities; persons who are HIV positive; homeless individuals and families.
Services Provided: Online database of available and affordable apartments for rent in Utah. Search for housing units that match specific needs, income, and location. Units listed generally serve populations at 80% or below the area median income (AMI).Go to the database online. Do NOT call the number unless the website is down or if they cannot access the website.
Original Source:
Last Updated: 3/12/2018
PO Box 142001
Salt Lake City, UT 84114-2001
Phone: 801-538-9312
Organization Name: Utah Head Start-State Collaboration Office
Address: PO Box 142001
Salt Lake City, UT 84114-2001
Phone: 801-538-9312
Fax: 801-538-6505
Services Provided: 1. Information about early childhood services and providers in Utah. 2. Links to early childhood organizations in Utah. 3. Information about early childhood jobs, degrees, financial aid, training, and conferences in Utah. 4. Links to early childhood standards, guidelines, and projects.
Original Source:
Last Updated: 3/11/2015
P.O. Box 521222
Salt Lake City, UT 84152
Phone: 801-949-0092
Address: P.O. Box 521222
Salt Lake City, UT 84152
Phone: 801-949-0092
Services Provided: Provides a forum for on-line community support for Utahns who have food allergies.
Includes information about food allergies, anaphylaxis, organization meetings, initiatives, and news.
Original Source:
Last Updated: 4/9/2018
288 North 1460 West
Cannon Health Building
Salt Lake City, UT 84116
Phone: 801-538-6003
Organization Name: Utah Department of Health
Address: 288 North 1460 West
Cannon Health Building
Salt Lake City, UT 84116
Phone: 801-538-6003
Languages Spoken: Spanish Services Available
Eligibility: Low income pregnant women, children, elderly, disabilities, parents and women with breast or cervical cancer.
Services Provided: A comprehensive website for Utah's Medicaid Program, with Spanish language option. A state/federal program that pays for medical services for low-income pregnant women, children, individuals who are elderly or have a disability, parents and women with breast or cervical cancer. To qualify, these individuals must meet income and other eligibility requirements. Medicaid assures coverage ONLY when the provider is enrolled as a Utah Medicaid Provider AND agrees to accept the Medicaid payment as payment in full.
Provider Profiles: Mailing Address: Utah Department of Health
P.O. Box 141010
Salt Lake City, UT 84114-1010
Original Source:
Last Updated: 5/9/2016
350 North State Street
Salt Lake City, UT 84114
Organization Name: State of Utah
Address: 350 North State Street
Salt Lake City, UT 84114
Services Provided: The site has all state representatives and senators and their contact information, committees, bills and info on current sessions.
Provider Profiles:
Original Source:
Last Updated: 1/29/2009
7910 South 3500 East, Suite C
Salt Lake City, UT 84121
Address: 7910 South 3500 East, Suite C
Salt Lake City, UT 84121
Toll Free Phone: 800-733-5797
Services Provided: Vitality Medical is an online medical supply company specializing in discounted medical products and supplies for homecare, nursing homes and clinics. Educational articles about choosing diapers, underpads, etc., selecting the best for the person.
Original Source:
Last Updated: 3/2/2017
1595 West 500 South
Salt Lake City, UT 84104
Phone: 877-246-9675
Organization Name: Utah Department of Health
Address: 1595 West 500 South
Salt Lake City, UT 84104
Phone: 877-246-9675
Toll Free Phone: 877-246-9675
Services Provided: Works to increase the employment and health care outcomes for people with disabilities in Utah. Work Ability Utah strives to link employers in the business community with the qualified workforce of people with disabilities.
Original Source:
Last Updated: 3/15/2018

South Jordan, UT

PO Box 951083
South Jordan, UT 84095
Phone: 801-363-0946
Address: PO Box 951083
South Jordan, UT 84095
Phone: 801-363-0946
Eligibility: Means based. Income guidelines tailored after the Federal Free and Reduced Lunch Program. See agency web site for current guidelines.
Wheelchair Accessible: Complete
Services Provided: Offers tuition assistance to low-income families in Utah, empowering concerned parents with educational options for their children, grades K - 8.
Original Source:
Last Updated: 8/1/2016

Nationwide

107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Address: 107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Fax: 704-948-7779
Services Provided: Committed to full participation of persons with disabilities in post-secondary education. Website resources include civil rights, legal resources, DSS professionals.
Provider Profiles: Affiliate programs Utah AHEAD, New Mexico AHEAD.
Original Source:
Last Updated: 3/22/2018
Address: Chapel Hill, NC
Services Provided: Assists and promotes the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center which is funded by the Administration for Community Living, Administration on Aging (AoA) in the US Department of Health and Human Services.
Provider Profiles: The ARCH National Respite Network includes the National Respite Locator, summer camps for both children and adults with special needs.

A cooperative agreement with the US Administration for Community Living/ Administration on Aging
Original Source:
Last Updated: 5/23/2018
555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Address: 555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Services Provided: A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
Original Source:
Last Updated: 3/22/2018
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Address: 141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Fax: 847-434-8000
Services Provided: Professional association dedicated to the health, safety, and well-being of all infants, children, adolescents, and young adults
Original Source:
Last Updated: 12/18/2017
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Address: PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Eligibility: Free credit reports available to everyone yearly.
Services Provided: Federal law requires each of the three nationwide consumer credit reporting companies, Equifax, Experian, and TransUnion, provide consumers a free credit report every 12 months if interested. This website allows users to request a credit report from any or all of the companies annually.
Original Source:
Last Updated: 4/5/2018
Organization Name: Social Security Administration
Address: Baltimore, MD
Eligibility: SSI denied for medical reasons
Services Provided: For recent applications for Social Security disability benefits or Supplemental Security Income (SSI) that were denied for medical reasons, request an appeal online and provide documents to support appeal electronically. Individuals may also continue an appeal already started.
Provider Profiles: Internet resource
Original Source:
Last Updated: 2/20/2018
Organization Name: National Autism Association
Address:
Email: naa@nationalautism.org
Eligibility: Open to all.
Services Provided: An online resource of six national non-profit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan; Big Red Safety Box program; and Toolkits for caregivers, first-responders and teachers.
Provider Profiles: Website only
Original Source:
Last Updated: 12/19/2017
Address:
Eligibility: Open to all.
Services Provided: Connects people and resources through a nationwide online database of information, referrals, specialized services and opportunities for inclusion for families of children with autism spectrum disorders.
Original Source:
Last Updated: 5/16/2017
302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
Address: 302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
TDD: 919-715-4092
Fax: 919-715-4093
Eligibility: Parents of children who are deaf or hard of hearing
Services Provided: Information on communication options, placement, and educational programs for parents of children who are deaf or hard-of-hearing.
Original Source:
Last Updated: 12/18/2017
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Organization Name: The University of Kansas
Address: Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Based at the University of Kansas.
Original Source:
Last Updated: 12/18/2017
10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Address: 10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Services Provided: A nonprofit providing resources and information to assist caregivers.
Original Source:
Last Updated: 2/22/2018
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Address: 1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Email: info@GotTransition.org
Services Provided: Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.
Provider Profiles: See resources on http://gottransition.org
Original Source:
Last Updated: 5/22/2018
1515 North Courthouse Road, 11th Floor
Arlington, VA 22201
Organization Name: U.S. Department of Health & Human Services
Address: 1515 North Courthouse Road, 11th Floor
Arlington, VA 22201
Services Provided: Find and learn about high-quality child care. State-by-state resources for families, for military, for refugees. Search for child care by zip code. CCR&R Agency
Provider Profiles: National
Original Source:
Last Updated: 12/19/2017
Address: 201 Chicago Avenue, #200
Minneapolis, MN 55415
Services Provided: For patients or caregivers, advocacy groups, health care providers, and supporters.
CNF Family Support and Empowerment Program (FSEP) offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition.
Transition of Care
Infantile Spasms Awareness
Respite Care
Sudden Unexpected Death in Epilepsy
Grants and Scholarships
Webinars
Provider Profiles: National, Web-based locator for services
Original Source:
Last Updated: 3/29/2018
Address:
Services Provided: A commercial on-line resource for resale items including medical equipment, strollers and wheelchairs, and wheelchair-accessible vehicles. Search by city.
Provider Profiles: On-line resource
Original Source:
Last Updated: 5/23/2018
Address: 4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Eligibility: Pediatric and Adult specialized care centers
Services Provided: A web-based location finder for cystic fibrosis accredited care centers nationwide.
The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Provider Profiles: The high quality of specialized care located at teaching and community hospitals across the country, these care centers offer the best care, treatments, and support for those with CF.
Original Source:
Last Updated: 5/23/2018
8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Address: 8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Email: ContactUs@efa.org
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Free educational material in English and Spanish.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source:
Last Updated: 3/28/2018
270 Sparta Ave. Suite 104
Sparta, NJ 07871
Phone: 973-726-6218
Address: 270 Sparta Ave. Suite 104
Sparta, NJ 07871
Phone: 973-726-6218
Toll Free Phone: 800-372-7368 x234
Services Provided: For positive change for the special needs community, award winning publication provides practical advice, emotional support and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals who are involved in their care and development. The eMagazine is available for free, the monthly print publication is available as a paid subscription.
Provider Profiles: Internet-based and print
Original Source:
Last Updated: 4/9/2018
Address: NY
Phone: 855-566-5871
Services Provided: FAIR Health is a national independent, nonprofit corporation whose mission is to bring transparency to healthcare costs and health insurance information through comprehensive data products and consumer resources. FAIR Health uses its database of billions of billed medical and dental services to power a free website that enables consumers to estimate and plan their medical and dental expenditures. The website also offers clear, unbiased educational articles and videos about the healthcare insurance reimbursement system.
Provider Profiles: internet-based service
Original Source:
Last Updated: 1/25/2018
785 Market Street, Suite 750
San Francisco, CA 94103
Organization Name: National Center on Caregiving
Address: 785 Market Street, Suite 750
San Francisco, CA 94103
Toll Free Phone: 800-445-8106
Services Provided: Caregiver services, policy and research. Search state resources with Family Care Navigator.
For Utah, https://www.caregiver.org/state-list-views?field_state_tid=103
Original Source:
Last Updated: 1/11/2018
Organization Name: Psychology Today.com
Address:
Services Provided: National state-based database of mental health professionals. Detailed professional listings for Psychologists, Psychiatrists, Therapists, Counselors, Group Therapy and Treatment Centers in the United States and Canada.

Search by city, insurance, issues, sexuality, gender, age, language, faith, types of therapy, online therapy, psychiatrists, treatment centers, and support groups.
Original Source:
Last Updated: 5/23/2018
721 West Abram Street
Arlington, TX 76013
Phone: 817-277-0727
Address: 721 West Abram Street
Arlington, TX 76013
Phone: 817-277-0727
Toll Free Phone: 800-489-0727
Fax: 817-277-2270
Services Provided: Resources, publications, conferences, and links to providers for autism and Asperger's Syndrome.
Original Source:
Last Updated: 3/22/2018
Address:
Services Provided: A website to search for lowest price prescription drugs based on location. Offers coupons, will send refill reminders and alerts when prices change.
Original Source:
Last Updated: 4/25/2018
Address: DC
Services Provided: Govbenefits.com is a free confidential prescreening tool for state and federal government programs. Search for benefits you may be able to receive.
Provider Profiles: Internet resource, State and Federal resources
Partners with USA.gov
Original Source:
Last Updated: 5/22/2018
8th Floor Portals Building
Washington, DC 20024
Phone: 202-737-1030
Organization Name: US Department of Health and Human Services
Address: 8th Floor Portals Building
Washington, DC 20024
Phone: 202-737-1030
Toll Free Phone: 866-763-6481
Fax: 202-737-1151
Services Provided: Information and products for Head Start and related organizations.
Provider Profiles: National
Original Source:
Last Updated: 3/29/2018
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
Organization Name: Centers for Medicare and Medicaid Services
Address: 465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
TDD: 855-889-4325
Toll Free Phone: 800-318-2596
Eligibility: Anyone looking for health insurance under the Affordable Care Act (ACA).
Services Provided: The Marketplace is an internet-based means of finding health coverage that fits your budget and meets your needs. With one application, you can see all your options and enroll.
Original Source:
Last Updated: 4/5/2018
Address: ME
Services Provided: Desired outcome is for all youth with special health care needs (YSHCN) to receive the services necessary to transition to all aspects of adulthood, including adult health care, employment and independence.
Provider Profiles: The HRTW Center is headquartered at the Maine State Title V CSHN Program.
Original Source:
Last Updated: 5/22/2018
Address: Armada, MI 48005
Phone: 586-752-5567
Services Provided: Website provides listings of services in Michigan and nationally that serve low-income families and seniors.
Provider Profiles: internet based resource
Original Source:
Last Updated: 3/29/2018
Address: 4 Pipers Glen
West Nyack, NY 10994
Toll Free Phone: 800-238-5373
Services Provided: Individuals with a disability can post resumes and access thousands of jobs from companies that are specifically trying to reap the benefits of having a diverse workforce.
Original Source:
Last Updated: 3/22/2018
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Organization Name: Family Voices
Address: 3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Toll Free Phone: 888-835-5669
Fax: 505-872-4780
Services Provided: Promotes a holistic, culturally relevant approach to health and wellness for all families and children including those with special healthcare needs and disabilities, with resources for children and families. IMPACT is a project of national Family Voices.
Original Source:
Last Updated: 2/1/2018
Address: 1425 West Foothill Boulevard Ste 235
Upland, CA 91786
Eligibility: Open to the public
Services Provided: Provides online information, publications, discussion forums, support groups, insurance resources, and prescription information for persons with diabetes.
Original Source:
Last Updated: 4/12/2018
505 East 79th Street Ste 17E
New York, NY 10075
Phone: 877-563-7468
Address: 505 East 79th Street Ste 17E
New York, NY 10075
Phone: 877-563-7468
Eligibility: Cancer patients and their loved ones.
Services Provided: Website lists thousands of places to stay across the country near hospitals and treatment centers that offer a discount for traveling cancer patients and their loved ones.
Provider Profiles: national
Original Source:
Last Updated: 3/13/2018
PO Box 175
Ambler, PA 19002-4101
Address: PO Box 175
Ambler, PA 19002-4101
Services Provided: A national education and disability directory with information on schools, camps, museums, and other organizations serving students with various disorders/disabilities as listed (including Down Syndrome).
Provider Profiles: internet-based resource
Original Source:
Last Updated: 5/9/2018
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Address: KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21. Located at Gallaudet University.
Original Source:
Last Updated: 2/21/2018
Organization Name: A.G. Bell
Address: 3714 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Email: info@agbell.org
Languages Spoken: Spanish
Services Provided: AAG Bell Financial Aid programs.
Also information about language development, early intervention, and hearing technology to help you ensure your child has the opportunity to develop language on par with children who have no hearing loss.
Provider Profiles: A.G. Bell, Association for the Deaf and Heard of Hearing
Original Source:
Last Updated: 5/23/2018
Organization Name: ActivityReg
Address:
Services Provided: A website with state listings of recreation programs for youth and adults. Register online for activities, programs at your local recreation center.

Intended for the members or participants of recreation facilities using SportsMan SQL to be able to register for classes or activities online ... without the facility needing a website.
Provider Profiles: Created by Peak Software Systems, Inc
Original Source:
Last Updated: 5/23/2018
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Address: 400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Original Source:
Last Updated: 2/21/2018
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: 800-572-1717
Address: 3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: 800-572-1717
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy with local services locator.
Original Source:
Last Updated: 2/21/2018
Organization Name: Center for Parent Information and Resources (CPIR)
Address: Newark, NJ 97102
Phone: 973-642-8100
Services Provided: Information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals (birth to 22).
Provider Profiles: internet resources
Original Source:
Last Updated: 2/22/2018
Address: 220 N Green Street
Chicago, IL 60607
Phone: 630-557-1330
Eligibility: None
Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.
Original Source:
Last Updated: 4/25/2018
3300 Whitehaven St., NW, Suite 3300
Washington, DC 20007
Organization Name: Georgetown University Center for Child & Human Development
Address: 3300 Whitehaven St., NW, Suite 3300
Washington, DC 20007
Services Provided: The goal of the Community of Practice on Cultural and Linguistic Competence in Developmental Disabilities (CoP)is to increase the number, diversity, and capacity of formal and informal leaders to transform their state/territorial developmental disabilities (DD) systems by: (1) advancing and sustaining cultural and linguistic competence (CLC) systemically through changes in values, policy, structures, and practices; and (2) responding effectively to the growing cultural and linguistic diversity among people with DD and their families who reside in states, territories, and tribal nations.

Resources includes papers on developmental disabilities.
Provider Profiles: In April 2017, the NCCC, in collaboration with AIDD, selected the following states and jurisdiction for membership in the CoP:
Arizona, California, Colorado, District of Columbia, Indiana,
Michigan, New York, Utah, Vermont, Wisconsin

See Resources
Original Source:
Last Updated: 2/28/2018
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: Maryland, VA
Services Provided: Website-based resources for parents and caregivers on The National Center for Child Traumatic Stress website. UCLA and Duke University work with the Substance Abuse and Mental Health Services Administration to develop and maintain the Network structure, provide technical assistance to grantees within the Network, oversee resource development and dissemination, and coordinate national education and training efforts.
Provider Profiles: Utah affiliates: Primary Children's Center for Safe and Healthy Families, The Children's Center
internet-based resource
Original Source:
Last Updated: 2/1/2018
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: 1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Eligibility: No eligibility requirements.
Services Provided: SAMHSA's National Mental Health Information Center was developed for users of mental health services and their families, the general public, policy makers, providers, and the media. The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.

National
Original Source:
Last Updated: 12/18/2017
4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Organization Name: CHADD of Utah
Address: 4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Fax: 301-306-7090
Email: Affiliate_Services@chadd.org
Eligibility: Open to the public.
Services Provided: Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD.
Provider Profiles: internet based resource
Original Source:
Last Updated: 2/1/2018
Organization Name: Nestle HealthCare Nutrition, Inc.
Address: 12 Vreeland Road, 2nd Floor
Florham Park, NJ 07932
Phone: 800-422-2752
Toll Free Phone: 800-422-2752
Services Provided: Funding for nutrition products available, including for people who require a tube feeding to meet 100% of daily nutritional requirements. Must telephone for current application. Outdated applications not accepted.
Original Source:
Last Updated: 3/29/2018
Address: PO Box 524
Crown Point, IN 46308
Eligibility: Open to all.
Services Provided: An online resource for families, individuals, and medical professionals who deal with the challenges of Autism and Autism Spectrum Disorders.
Original Source:
Last Updated: 3/29/2018
2030 M St. NW, Suite 350
Washington, DC 20036
Address: 2030 M St. NW, Suite 350
Washington, DC 20036
Email: memberinfo@p2pusa.org
Services Provided: Emotional and informational support for families of children who have special needs, Parent to Parent-USA (P2P-USA) is a national nonprofit organization committed to assuring access and quality in Parent to Parent support across the country. This site highlights statewide organizations that have parent to parent support as a core program and are committed to implementing evidence-based practices. About Parent to Parent - USA. Parent to Parent programs provide emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained Support Parent.
Original Source:
Last Updated: 12/18/2017
Organization Name: NAMI (National Alliance for the Mentally Ill)
Address: 3803 N Fairfax Dr., Ste. 100
Arlington, VA 22203
Phone: 703-524-7600
Fax: 703-524-9094
Eligibility: Differs by specific pharmaceutical company.
Services Provided: Provides a list of pharmaceutical companies that offer medications through medication assistance programs to low-income individuals and families.
Provider Profiles: internet-based resource
Original Source:
Last Updated: 2/20/2018
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses.
Services Provided: Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes:
Subsidizing the cost of health insurance premiums
Providing pharmacy and treatment copayment assistance
Assisting with Medicare Part D co-insurance
Providing travel assistance for transportation reimbursement

Call, e-mail or visit website for information.
Provider Profiles: Online resources
Original Source:
Last Updated: 3/28/2018
Address:
Email: info@rxassist.org
Eligibility: Low income families
Services Provided: RxAssist offers a comprehensive database of prescription assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need. Directory of patient assistance programs for free and low cost medicine for low income families. Prices vary, so it pays to shop around.
Site requires free registration.
Provider Profiles: Internet Resource

Sponsored by ASTRA-ZENECA.
Original Source:
Last Updated: 5/23/2018
Address:
Email: info@selectivemutism.org
Eligibility: A child or adolescent with an anxiety disorder of selective mutism
Services Provided: SMG, is a nonprofit organization dedicated to providing information, resources and support to those impacted by a child or adolescent with the anxiety disorder known as Selective Mutism, characterized by a child or adolescent’s inability to speak in one or more social settings.
Original Source:
Last Updated: 5/23/2018
Address:
Services Provided: A website resource center for education and location of services related to service dogs.
Original Source:
Last Updated: 5/23/2018
Organization Name: Sickle Cell Disease Association of America, Inc.
Address: 231 East Baltimore Street, Suite 800
Baltimore, MD 21202
Toll Free Phone: 800-232-4636
Email: cdcinfo@cdc.gov
Services Provided: The Sickle Cell Disease National Resource Directory is a listing of national agencies, specialty care centers, and community-based organizations that provide services and resources for people affected by sickle cell disease (SCD). The goal of this directory is to help people find SCD services and resources.
This directory is sorted by national and state resources and listed in A-Z order. Within each state, the resources are listed by type: Providers/Sickle Cell Centers, Non-Profits/Associations/Foundations, and Support Groups. In many cases, organizations offer both clinical and non-clinical resources and services. When making contact, ask about other services that may be offered such as support groups and social services.
Provider Profiles: National organization, http://www.sicklecelldisease.org/
internet resource
Original Source:
Last Updated: 12/18/2017
100 Morrissey Boulevard
Boston, MA 02125
Phone: 617-287-4310
Organization Name: Institute for Community Inclusion at the University of Massachusetts Boston
Address: 100 Morrissey Boulevard
Boston, MA 02125
Phone: 617-287-4310
TDD: 617-287-4350
Services Provided: Information, discussion board, listserve, resources, student stories, and links to colleges and programs that support youth with intellectual disabilities.
Original Source:
Last Updated: 2/21/2018
Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
Organization Name: Social Security Administration
Address: Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
TDD: 800-325-0778
Toll Free Phone: 800-772-1213
Services Provided: This site provides information for people with disabilities who are SSI or SSDI recipients and want to work.
Provider Profiles: (SSI)
Original Source:
Last Updated: 3/22/2018
Organization Name: National Lekotek Center
Address: 2001 N. Clybourn
Chicago, IL 60614
Phone: 773-528-5766
Toll Free Phone: 800-366-7529
Fax: 773-537-2992
Services Provided: Toy catalog/Guide for children with disabilities, free at Toys "R" Us stores. Toys evaluated and chosen by National Lekotek Center.
Provider Profiles: Internet-based catalog of toys
Original Source:
Last Updated: 2/20/2018
110 Magnolia Circle
Nashville, TN 37203
Phone: 615-322-8240
Address: 110 Magnolia Circle
Nashville, TN 37203
Phone: 615-322-8240
Eligibility: Individuals with disabilities
Services Provided: Resources for individuals with disabilities: Topical List, Printable Resources, Web Resources, Tip Sheets, Video Resources and Toolkit for IDD at www.vkc.mc.vanderbilt.edu/etoolkit/ with Health Watch Tables.
Original Source:
Last Updated: 5/9/2018
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Address: PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Toll Free Phone: 866-440-9140 xe
Services Provided: Video Remote Interpreting is a cutting edge “green” way of providing Sign Language interpreting for consumers who are Deaf and hearing in the same location. All that is required is a computer/webcam, access to high speed internet and to download free webconferencing software. The hearing employer, doctor, counselor, school etc., pays for the service to be in compliance with the Americans with Disabilities Act.
Provider Profiles: computer/webcam based service
Original Source:
Last Updated: 5/15/2018
Organization Name: University of Wisconsin-Madison
Address: 1500 Highland Avenue
Madison, WI 53705-2280
Services Provided: The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases. The Waisman Center encompasses laboratories for biomedical and behavioral research, a brain imaging center, and a clinical biomanufacturing facility for the production of pharmaceuticals for early stage human clinical trials. In addition to its research efforts, the Center provides an array of services to people with developmental disabilities, offers numerous educational, and outreach programs to young children and their families, and trains scientists and clinicians who will serve our nation in the future.
Original Source:
Last Updated: 3/22/2018
Address:
Email: reservations@wctravel.com
Wheelchair Accessible: Yes
Services Provided: Accessibility services including tourist attractions, hotels, restaurants, bed & breakfasts, RV Parks. Searchable listing of wheelchair accessible hotels worldwide.
Online services only.
Provider Profiles: Email addresses are as follows: to cancel or modify a reservation contact customerservice@wctravel.com; for group rates contact group@whenwetravel.com; for problems registering, submitting content or a broken page contact support@whenwetravel.com.
Original Source:
Last Updated: 5/23/2018

CO

Denver, CO

Organization Name: Colorado Department of Public Health and Environment
Address: 430 Cherry Drive
Denver, CO 80222-1530
Phone: 602-870-4752
Services Provided: Listing of genetics-related resources available in the region (AZ, CO, MT, NM, NV, TX, UT, WY) including clinical genetics, consumer support, newborn screening, prenatal genetics, genetics laboratories, and specialty clinics. Established in 1993 to provide private alternatives to support public programs for genetics and maternal health services and education. One of several Regional Genetic Services Directory
Original Source:
Last Updated: 10/15/2015

MA

Cambridge, MA

Address: 155 Second Street
Cambridge, MA 02141
Services Provided: Patients Like Me is a free health information sharing website for patients. Participants have the opportunity to share both personal stories and health data about their conditions; a network of 500,000 patients.
Original Source:
Last Updated: 5/9/2018

MD

Rockville, MD

PO Box 1901
Rockville, MD 20849
Phone: 301-755-9485
Address: PO Box 1901
Rockville, MD 20849
Phone: 301-755-9485
Fax: 888-172-1425
Services Provided: Videos for modeling social skills. Teaching tools for children, adolescents, and teenagers with Autism, Asperger Syndrome, and developmental delays. The videos are used by teachers, parents, and therapists.
Original Source:
Last Updated: 11/23/2016

NY

Statewide

Address: NY 10010
Phone: 877-988-8871
Fax: 646-257-2926
Services Provided: Online curriculum includes goal builders, lesson plans, and materials to teach Community, Home, Employment, Leisure and Social Skills to support special ed students. step-by-step ABA-based video lessons.
Provider Profiles: $59 to $114 / month, Free trial

web-based resource
Original Source:
Last Updated: 5/11/2017

New York, NY

Organization Name: Metropolitan Life Insurance Company
Address: 200 Park Avenue
New York, NY 10166
Toll Free Phone: 800-638-5433
Services Provided: MetDESK helps families who have children and other dependents with special needs through the maze of legal and financial complexities surrounding planning for the future: how to protect eligibility for important government benefits such as Supplemental Security Income (SSI) and Medicaid; and ways in which special needs trust can provide lifetime care while still preserving government benefit eligibility. Trusts, guardianship, financial planning.
Selecting appropriate funding vehicles to fund special needs trusts, including life insurance
Choosing a trustee, guardian or conservator.
Original Source:
Last Updated: 5/23/2018

VA

Richmond, VA

901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Address: 901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Eligibility: Caregivers, seniors and employers
Services Provided: The National Caregivers Library contains online information and resources to assist caregivers and seniors with useful forms, checklists, and topic-specific external resources.
Provider Profiles: Internet resource
Original Source:
Last Updated: 4/9/2018