Education About Disabilities/Diagnoses

If you know of a Service that should be listed but isn't, please Suggest a Provider If you find errors in a listing, please let us know by using the "Suggest an Edit" form on the provider's detail page.
Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

UT

Statewide

Address: 465 South 400 East Ste 110
Salt Lake City, UT 84111
Phone: 801-702-4420
Toll Free Phone: 800-242-8721
Fax: 801-532-2101
Eligibility: Open to everyone.
Wheelchair Accessible: Complete
Services Provided: Advances groundbreaking medical research, spreads lifesaving knowledge, and reaches out to people of all ages about cardiovascular disease and stroke.
Original Source:
Last Updated: 4/25/2018
Address: 5280 South Commerce Drive Ste E-190
Murray, UT 84107
Phone: 801-716-4993
Toll Free Phone: 800-281-8442
Fax: 801-716-4995
Eligibility: Open to those who have had a brain injury. Bring a yoga mat.
Wheelchair Accessible: Complete
Services Provided: Provides education and support through facilitation of resources for the issues of prevention and recovery of brain injury (TBI) in the state of Utah. Annual Family & Professionals Conference. Teen/young adult Post Concussion Syndrome (PCS) Support Group, webinars for people with traumatic brain injury, family caregivers and professionals in the field.
Original Source:
Last Updated: 4/25/2018
Address: 3707 North Canyon Road, Ste. 1D
Provo, UT 84604
Phone: 801-226-5111
Toll Free Phone: 800-869-5277
Fax: 801-226-8278
Eligibility: Patient programs restricted to kidney patients and their families, otherwise, no restrictions.
Wheelchair Accessible: Complete
Services Provided: Works to prevent kidney and urinary tract diseases, improve the health and wellbeing of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
Original Source:
Last Updated: 11/27/2017
2562 Simpson Ave
Salt Lake City, UT 84109
Phone: 801-485-2801
Organization Name: The Children's Tumor Foundation
Address: 2562 Simpson Ave
Salt Lake City, UT 84109
Phone: 801-485-2801
Toll Free Phone: 1-800-323-7938
Eligibility: Patients, Friends or Family of patients affected by neurofibromatosis
Services Provided: Offer support to people with Neurofibromatosis or parents of children with Neurofibromatosis by telephone, through published pamphlets and occasional support group meetings.
Original Source:
Last Updated: 3/27/2018
Organization Name: Utah Department of Health
Address: 288 North 1460 West
UT 84114
Phone: 801-538-6096
Fax: 801-538-9913
Eligibility: Individuals living with HIV disease and family members who have no insurance, are underinsured or are not eligible for a State program, assets not over $10,000 (does not include a home or one car), low income.
Services Provided: 1. Supportive Services Program - ambulatory care, dental care, transportation services, case management, mental health services, substance abuse services, outreach services, and home health care.
2. ADAP (AIDS Drug Assistance Program) - helps eligible individuals pay for all or part of their HIV medications.
3. Health Insurance Continuation Program (COBRA) - can pay for COBRA payments for eligible individuals.
Original Source:
Last Updated: 2/14/2018
Organization Name: Bureau of Health Promotion, Utah Department of Health
Address: 288 North 1460 West
PO Box 142107
UT 84114-2107
Phone: 801-538-6894
Fax: 801-538-9495
Languages Spoken: Spanish
Eligibility: No charge, no health insurance required
Wheelchair Accessible: Complete
Services Provided: Provides comprehensive asthma care by ensuring availability of and access to guidelines-based medical management and pharmacotherapy for all Utahns with asthma, and to link those with poorly controlled asthma to individualized services.
Utah Asthma Home Visiting Program for individuals with asthma living in Salt Lake and Utah Counties.
Prescription Assistance Program for Patients with Asthma http://health.utah.gov/asthma/basics/rxassist.html
Provider Profiles: Brittany Guerra, MPH, Health Program Specialist III
Kellie Baxter, Health Program Specialist
Original Source:
Last Updated: 2/14/2018
PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 888-222-2542
Organization Name: Utah Department of Health
Address: PO Box 142107
Salt Lake City, UT 84114-2107
Phone: 888-222-2542
Eligibility: For the NDPP, individuals must be 18 years or older and have a BMI equal or greater than 24.
Services Provided: Ensure that people with or at high risk of diabetes have access to community resources and support to prevent, delay or manage chronic conditions once they occur. Classes include Living Well with Diabetes and National Diabetes Prevention Program (NDPP).
Provider Profiles: Register on website.
Original Source:
Last Updated: 3/15/2018
Address: UT
Eligibility: Graduate level training, five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Services Provided: URLEND is part of a Maternal Child Health Bureau Grant, one of 43 unique LEND programs in 37 states. Utah Regional LEND is a long-term graduate training program covering five states: Utah, Idaho, Montana, Wyoming and North Dakota. This program uses state-of-the-art technology to connect groups of trainees. As future leaders, URLEND participants are trained to move beyond discipline boundaries to provide optimal treatment to children and adolescents with special health care needs. Because families are essential to wellbeing, this program emphasizes the role of family-centered care.
Provider Profiles: Five states include Utah, Idaho, Montana, Wyoming and North Dakota.
Original Source:
Last Updated: 6/14/2018
Organization Name: Utah Department of Health
Address: PO Box 142106
Salt Lake City, UT 84114-2106
Phone: 800-784-8669
TDD: 877-777-6534
Fax: 801-538-9303
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Programs to help tobacco users quit, prevent youth from starting to use tobacco, protect Utahns and visitors to the state from secondhand smoke, and to eliminate tobacco-related disparities.
Original Source:
Last Updated: 3/15/2018

American Fork, UT

Address: 895 North 900 East
American Fork, UT 84003
Phone: 801-763-4008
Fax: 801-763-4214
Eligibility: Anyone interested in the welfare of individuals and families of all ages who deal with mental disabilities and/or developmental disabilities
Services Provided: 1. Establish and coordinate volunteer activities
2. Furnish information, referral, education, newsletters, conferences
3. Promote people-first concepts
4. Help families with guardianship information forms
Original Source:
Last Updated: 3/17/2015

Cedar City, UT

Valley View Medical Center
Cedar City, UT 84720
Phone: 435-586-6587
Address: Valley View Medical Center
Cedar City, UT 84720
Phone: 435-586-6587
Services Provided: Agency Diabetes Support Group with Dixie Regional Medical Center (DRMC).
Original Source:
Last Updated: 2/13/2014

Clearfield, UT

161 Center Street
Clearfield, UT 84015
Phone: 801-773-6781
Address: 161 Center Street
Clearfield, UT 84015
Phone: 801-773-6781
Services Provided: Provides support, training, counseling and education for parents, families, and the community involved with persons who have Down Syndrome
Original Source:
Last Updated: 1/17/2014

Logan, UT

Organization Name: NAMI Utah
Address: 90 East 200 South
Logan, UT 84321
Phone: 435-787-4165
Eligibility: No cost. Individuals living with mental illness and their families.
Services Provided: Serves as Utah's voice on mental illness by ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education, and advocacy. Credentialed Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities.
Original Source:
Last Updated: 3/7/2018

Midvale, UT

8449 South 150 West
Jordan Family Education Center
Midvale, UT 84047
Phone: 801-565-7442
Address: 8449 South 150 West
Jordan Family Education Center
Midvale, UT 84047
Phone: 801-565-7442
Wheelchair Accessible: Entry and Bathroom(s)
Services Provided: A class on causes and treatment of ADHD in children, offered quarterly (September, January, April). Class is not offered every quarter.
Call for schedule or for similar class.
Original Source:
Last Updated: 10/5/2015

Ogden, UT

Organization Name: Midtown Community Health Centers
Address: 2240 Adams Avenue
Ogden, UT 84403
Phone: 801-393-5355
Fax: 801-394-4609
Eligibility: Open to all
Wheelchair Accessible: Complete
Services Provided: Health care coordination, case management, and prescription assistance for uninsured children, families, and adults including health education and specialty care coordination available at every Midtown Community Health Clinic location from Salt Lake City to Logan. Enrollment Specialist also available by appointment to help with navigation of Medicaid, CHIP, PCN, UPP, and Marketplace plans (ObamaCare).
Original Source:
Last Updated: 11/8/2017
237 26th Street
Ogden, UT 84401
Phone: 801-625-3714
Organization Name: NAMI Utah
Address: 237 26th Street
Ogden, UT 84401
Phone: 801-625-3714
Toll Free Phone: 877-230-6264
Eligibility: Those with mental illness or brain disorders and their family members
Services Provided: NAMI Weber Affiliate offers free education programs and support groups for people with mental illness or brain disorders and support groups and classes for their family members. Suicide prevention trainings and information also provided.
Original Source:
Last Updated: 3/7/2018
2955 Harrison Boulevard
#102
Ogden, UT 84403
Phone: 801-627-3399
Address: 2955 Harrison Boulevard
#102
Ogden, UT 84403
Phone: 801-627-3399
Fax: 801-627-3321
Wheelchair Accessible: Complete
Services Provided: 1. Educational information and referral.
2. Prevention and training programs.
Original Source:
Last Updated: 3/11/2009
727 24th Street Ste 2A
Ogden, UT 84401
Phone: 801-393-4153
Address: 727 24th Street Ste 2A
Ogden, UT 84401
Phone: 801-393-4153
Fax: 801-393-5004
Eligibility: Seniors and disabled individuals in Davis and Weber who are under-served, vulnerable, isolated, and/or non-English speaking; Medicare and Medicaid beneficiaries and caregivers.
Services Provided: Works to enhance awareness of healthy lifestyles and promote, provide resources, and support individuals in protecting themselves from communicable diseases. Offers sexually transmitted infections educational presentations, youth workshops (prevention, self-respect & self-worth, public speaking, etc) classes (relationships, condom negotiation skills, responsibility to communicate, etc.), distributes educational materials, youth tobacco workshops, and senior medicare fraud and identity fraud presentations, and maintains over 20 condom drop-sites.
Provider Profiles: Presentation is available to any facility or organization wishing to learn more about Medicare.
Original Source:
Last Updated: 4/26/2018
Address: 742 Harrison Boulevard (1200 East)
Ogden, UT 84404
Phone: 801-629-4700
TDD: 801-629-4701
Fax: 801-629-4896
Eligibility: Public
Wheelchair Accessible: Complete
Services Provided: Provides consultant, resource, and direct education services to children with hearing and/or visual impairment and their families.
Original Source:
Last Updated: 5/10/2017

Orem, UT

800 West University Parkway
Orem, UT 84058
Phone: 801-863-7620
Organization Name: Utah Valley University (UVU)
Address: 800 West University Parkway
Orem, UT 84058
Phone: 801-863-7620
Email: autismcenter@uvu.edu
Eligibility: Students with ASD and surrounding community
Services Provided: A University support center for students with autism spectrum disorder, Objectives include:
- facilitate diagnostic support for UVU students
- serve as first point of contact for families in Utah County and provide service coordination & resource support for Autism Spectrum Disorder
- provide training to UVU, community partners, educators, families with individuals with an ASD, and to individuals with ASD
- provide transition programming for current and potential UVU students with an ASD (Passages Program)
- solicit university, community, and parent input to support ongoing effective operations and partnerships
Provider Profiles: Academic advising, contact Allison Hurst between 9am and 6pm. 801 863-8425, Allison.Hurst@uvu.edu
Original Source:
Last Updated: 9/20/2017

Provo, UT

Address: 1124 West 500 North
Provo, UT 84603
Phone: 801-377-4629
Eligibility: Unrestricted
Services Provided: 1. Presentations about HIV/AIDS.
2. Assistance with meals to persons with HIV/AIDS.
3. Advocacy on behalf of persons with HIV/AIDS.
4. Referral to support groups.
Original Source:
Last Updated: 12/15/2014
Organization Name: NAMI Utah
Address: 750 Freedom Boulevard Suite L
Provo, UT 84604
Phone: 385-208-1796
Fax: 801-373-0639
Eligibility: families with children 0-18 years of age with a mental illness, families with adults with a mental illness, and individuals with mental illness, no cost
Services Provided: The National Alliance on Mental Illness (NAMI) serves as Utah's voice on mental illness by ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education, and advocacy. Provides free educational classes and support groups for individuals with mental illness and their family members. Credentialed Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities.
Provider Profiles: NAMI asks that individuals who sign up for classes be committed to attending for the duration of the classes.
Original Source:
Last Updated: 4/11/2017
Address: 865 North Freedom Boulevard
Provo, UT 84604
Phone: 877-272-7337
Fax: 801-323-7018
Eligibility: Serves military families.
Services Provided: The American Red Cross exists to provide compassionate care to those in need. Our network of generous donors, volunteers, and employees share a mission of preventing and relieving suffering, here at home and around the world, through five key service areas: Disaster Relief, Supporting America's Military Families, Blood Donation, Health and Safety Service and International Services.
Original Source:
Last Updated: 11/8/2017

Riverton, UT

Address: 2056 West Carriage Ave (13700 South)
Riverton, UT 84065
Phone: 801-997-9400
Eligibility: The program focuses on children, but services are available to those of any age.
Services Provided: Helps blind and visually-impaired students, ages 5-25, adjust to and deal with their vision loss, develop confidence in their abilities, and understand their potential as they grow towards independence with educational programs, sports/recreation and other activities. The opportunity to be in a group environment of peers helps to develop leadership skills.
Original Source:
Last Updated: 6/26/2018

Salt Lake City, UT

Address: 3920 South 1100 East Ste 240
Salt Lake City, UT 84124
Phone: 801-484-4456
Toll Free Phone: 800-586-4872
Fax: 801-484-5461
Email: UTInfo@Lungs.org
Eligibility: School counselors, nurses, teachers, facilitators, etc.
Wheelchair Accessible: Not At All
Services Provided: Offers practical help to people living with asthma, emphysema, and other lung diseases. Also confronts lung disease at the root level by educating children about the dangers of smoking, pushing for more smoke-free workplaces, and working to reduce air pollution.
Camp Wyatt summers ages 7-14, week-long
Provider Profiles: Live Well Breathe Well online education for adults with asthma
Original Source:
Last Updated: 10/18/2017
729 Arapeen Drive, U of U Imaging and Neurosciences Ctr
Salt Lake City, UT 84108
Phone: 877-740-4372
Address: 729 Arapeen Drive, U of U Imaging and Neurosciences Ctr
Salt Lake City, UT 84108
Phone: 877-740-4372
Eligibility: People who suffer Huntington’s Disease or a relative
Services Provided: Disseminate information about Huntington's Disease to patients, caregivers, physicians, nursing homes etc, to provide support to people concerned with Huntington's Disease.
Original Source:
Last Updated: 5/8/2014
Organization Name: University of Utah Health Care
Address: 81 North Mario Capecchi Drive
Primary Children's Hospital
Salt Lake City, UT 84113
Phone: 801-213-3599
Fax: 801-587-7539
Eligibility: Newborn to young adult. Cystic Fibrosis, or presumed diagnosis desiring confirmation.
Wheelchair Accessible: Complete
Services Provided: Our team of specialists include nurses, respiratory therapists, physicians, nurse practitioners, social workers, dietitians, pharmacists, exercise physiologists, research coordinators, and biostatisticians. Our comprehensive team approach provides patients with individualized treatment plans and the best care possible.
Provider Profiles: For appointments or referrals, call 801 213-3599 and choose option #1, then ask to speak with the Referral Team. This will give you the most comprehensive and coordinated experience.
Original Source:
Last Updated: 4/24/2018
3471 South West Temple
Salt Lake City, UT 84115
Phone: 801-935-4447
Organization Name: NAMI Utah
Address: 3471 South West Temple
Salt Lake City, UT 84115
Phone: 801-935-4447
Eligibility: Minimum age 16. No violent offenders.
Services Provided: Latino Behavioral Health Services is a peer, community based nonprofit that provides support and educational programs at no cost. Enhances the awareness and well-being of people with mental illness, their caregivers and loved ones through support, education, empowerment, facilitation of resources and services with responsiveness to cultural, socioeconomic and linguistics characteristics.
Original Source:
Last Updated: 3/7/2018
Organization Name: NAMI Utah
Address: Salt Lake City, UT
Phone: 801-201-4532
Languages Spoken: Spanish services available
Services Provided: Classes and support for individuals living with mental illness and their families, some in Spanish. Volunteer-led, peer-to-peer, mentoring, for adolescents, for suicide survivors. Family Resource Facilitators provide support as well.
Spanish speaking support groups.
Provider Profiles: Gayle Hollingsworth 801 631-5003
Original Source:
Last Updated: 3/6/2018
Address: 1440 Foothill Drive Ste 200
Salt Lake City, UT 84108
Phone: 801-424-0113
Toll Free Phone: 800-344-4867
Fax: 801-424-0122
Eligibility: Individuals with MS and their families
Wheelchair Accessible: Complete
Services Provided: Provides a wide variety of programs, fundraisers, activities, and services throughout the area to people with MS, their families, and friends.
Original Source:
Last Updated: 12/14/2017
Address: 1002 East South Temple Ste 408
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Provides information on chronic fatigue and fibromyalgia through monthly meetings and newsletter.
Original Source:
Last Updated: 12/18/2014
Address: 1408 South 1100 East
Salt Lake City, UT 84105
Phone: 801-487-2323
Fax: 801-486-3978
Eligibility: Case managers will refer clients to statewide locations of HIV testing, resource referrals to physicians, attorneys, dentists, mental health professionals, and medical services; limited crisis intervention; mailings of AIDS-related materials.
Wheelchair Accessible: Entry and Bathroom(s)
Services Provided: Offers assistance and expertise to anyone struggling with the complex issues that surround HIV. Works with community members to form partnerships that mend health, promote compassion, and extend companionship to everyone who has been affected by HIV.
Original Source:
Last Updated: 4/2/2018
Organization Name: Utah Department of Health
Address: 288 North 1460 West
PO Box 142107
Salt Lake City, UT 84114-2107
Languages Spoken: Spanish
Eligibility: For individuals with uncontrolled asthma living in Salt Lake and Utah Counties. No cost, no health insurance required.
Services Provided: The Utah Asthma Home Visiting Program will help families of children with asthma who have uncontrolled asthma. The program includes three visits and two phone calls and provides asthma self-management education, home trigger education and assessment, and trigger remediation referral. Providers can provide qualifying patients to the service, and patients desiring additional resources can self-refer as well.

In Salt Lake County, call: 385-468-4085
In Utah County, call: 801-851-7509
Provider Profiles: Andrea Jensen, Utah County 801 851-7509
Tiffany Brinton, Salt Lake County 385 468-4085
Original Source:
Last Updated: 10/18/2017
Address: 772 East 3300 South Ste 210
Salt Lake City, UT 84106
Phone: 877-463-6893
Fax: 801-746-2488
Services Provided: Provides education, advocacy, outreach, and networking for people with bleeding disorders. These services empower individuals with bleeding disorders and their families to lead healthier and more self-sufficient lives.
Original Source:
Last Updated: 2/9/2016
3098 Highland Drive Ste 205
Salt Lake City, UT 84106
Phone: 801-464-2000
Organization Name: Utah Schools for the Deaf and the Blind - Administration and Ogden Campus
Address: 3098 Highland Drive Ste 205
Salt Lake City, UT 84106
Phone: 801-464-2000
Toll Free Phone: 800-990-9328
Eligibility: Children birth to 3 years of age for Parent Infant Program.Education available for children 3 to 21 years.
Services Provided: Provides consultation, resources, and direct educational services to children with hearing and/or visual impairment and their families.
Original Source:
Last Updated: 4/25/2018

St. George, UT

Dixie Reional Medical Center
St. George, UT 84770
Phone: 435-688-5085
Address: Dixie Reional Medical Center
St. George, UT 84770
Phone: 435-688-5085
Original Source:
Last Updated: 2/3/2014
Call for information
St. George, UT 84770
Phone: 435-674-3533
Address: Call for information
St. George, UT 84770
Phone: 435-674-3533
Services Provided:
Original Source:
Last Updated: 10/25/2013
88 West 100 South
Southwest Behavioral Health Center
St. George, UT 84770
Phone: 541-331-0711
Organization Name: NAMI Utah
Address: 88 West 100 South
Southwest Behavioral Health Center
St. George, UT 84770
Phone: 541-331-0711
Eligibility: People with mental illnesses as well as family members, no cost
Services Provided: Serves as Utah's voice on mental illness by ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education, and advocacy. Trained Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities.
Original Source:
Last Updated: 3/7/2018

Taylorsville, UT

Address: 5709 South 1500 West
Taylorsville, UT 84123
Phone: 801-657-5207
Fax: 801-288-9899
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Advocates for and provides services which aim to improve the general welfare of the deaf and hard of hearing people in Utah.
Original Source:
Last Updated: 4/12/2017

West Valley City, UT

Organization Name: NAMI Utah
Address: 1600 West 2200 South Suite 202
West Valley City, UT 84119
Phone: 801-869-2874
Languages Spoken: Spanish
Eligibility: Gratuitos
Services Provided: Lo que encontraras en NAMI:
• Amistades que se preocupan y que entiendan acerca de la depresión, ansiedad y más.
• Educación gratuita, apoyo, y guía
• Ideas que te ayudaran a cuidar de ti mismo y a tu familia
• La oportunidad de compartir tus experiencias y aprender de los demás
• Información sobre trastornos emocionales, tratamiento y servicios
NAMI affiliate
Original Source:
Last Updated: 5/10/2016
Address: 1600 West 2200 South Ste 202
West Valley City, UT 84119
Phone: 801-323-9900
Toll Free Phone: 877-230-6264
Fax: 801-323-9799
Eligibility: Open to the public, for individuals living with mental illness
Wheelchair Accessible: Complete
Services Provided: NAMI Utah represents the State's voice on mental illness ensuring the dignity and improving the lives of those who live with mental illness and their families through support, education and advocacy.
Credentialed Family Resource Facilitators provide assistance to families and youth in accessing appropriate mental health services within their communities. Thirteen affiliate offices including Salt Lake, Utah County, Southwest, Cache Valley, Davis.
PROGRESSION support group--for youth 15 - 20ish with any type of mental health diagnosis (anxiety, ADHD, depression) taught by a young adult, free, statewide.
CONNECTIONS Program is a free 12-week course that brings together people who share the experience and knowledge of mental illness to empower each other.
NAMI mental health advocate, for courts and elsewhere
Provider Profiles: mental health advocate
Statewide programming
Original Source:
Last Updated: 10/12/2017

Nationwide

555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Address: 555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Services Provided: A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
Original Source:
Last Updated: 3/22/2018
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Organization Name: The University of Kansas
Address: Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Based at the University of Kansas.
Original Source:
Last Updated: 12/18/2017
730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Address: 730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Original Source:
Last Updated: 12/18/2017
8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Address: 8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Email: ContactUs@efa.org
Languages Spoken: Spanish
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source:
Last Updated: 7/17/2018
270 Sparta Ave. Suite 104
Sparta, NJ 07871
Phone: 973-726-6218
Address: 270 Sparta Ave. Suite 104
Sparta, NJ 07871
Phone: 973-726-6218
Toll Free Phone: 800-372-7368 x234
Services Provided: For positive change for the special needs community, award winning publication provides practical advice, emotional support and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals who are involved in their care and development. The eMagazine is available for free, the monthly print publication is available as a paid subscription.
Provider Profiles: Internet-based and print
Original Source:
Last Updated: 4/9/2018
721 West Abram Street
Arlington, TX 76013
Phone: 817-277-0727
Address: 721 West Abram Street
Arlington, TX 76013
Phone: 817-277-0727
Toll Free Phone: 800-489-0727
Fax: 817-277-2270
Services Provided: Resources, publications, conferences, and links to providers for autism and Asperger's Syndrome.
Original Source:
Last Updated: 3/22/2018
Address: 110 West Road
Towson, MD 21204
Phone: 800-296-4433
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.
Original Source:
Last Updated: 7/17/2018
Address: P.O. Box 4067
Parker, CO 80134
Services Provided: The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe.
Original Source:
Last Updated: 12/18/2017
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Address: 9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Original Source:
Last Updated: 4/17/2018
Address: 31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Eligibility: communication disorders
Services Provided: Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.
Original Source:
Last Updated: 3/22/2018
Address: Danbury, CT
Toll Free Phone: 800-634-7207
Services Provided: The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Co-pay Assistance Program.
Patient Assistance Program, RareCare: helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Original Source:
Last Updated: 2/13/2018
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses.
Services Provided: Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes:
Subsidizing the cost of health insurance premiums
Providing pharmacy and treatment copayment assistance
Assisting with Medicare Part D co-insurance
Providing travel assistance for transportation reimbursement

Call, e-mail or visit website for information.
Provider Profiles: Online resources
Original Source:
Last Updated: 3/28/2018
8120 Penn Avenue S Ste 470
Bloomington, MN 55431
Phone: 952-946-7998
Address: 8120 Penn Avenue S Ste 470
Bloomington, MN 55431
Phone: 952-946-7998
Eligibility: Anyone experiencing depression or thoughts of suicide, their families and loved ones.
Services Provided: A grassroots group of passionate survivors dedicated to preventing suicide and providing education about depression and other mental health conditions.
Original Source:
Last Updated: 3/22/2018
100 Morrissey Boulevard
Boston, MA 02125
Phone: 617-287-4310
Organization Name: Institute for Community Inclusion at the University of Massachusetts Boston
Address: 100 Morrissey Boulevard
Boston, MA 02125
Phone: 617-287-4310
TDD: 617-287-4350
Services Provided: Information, discussion board, listserve, resources, student stories, and links to colleges and programs that support youth with intellectual disabilities.
Original Source:
Last Updated: 2/21/2018
42-40 Bell Blvd Suite 205
Bayside, NY 11361
Phone: 718-224-2999
Address: 42-40 Bell Blvd Suite 205
Bayside, NY 11361
Phone: 718-224-2999
Fax: 718-279-9596
Services Provided: The only national organization serving children, individuals and families affected by Tourette Syndrome (TS.) Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.
Original Source:
Last Updated: 12/18/2017
Organization Name: University of Wisconsin-Madison
Address: 1500 Highland Avenue
Madison, WI 53705-2280
Services Provided: The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases. The Waisman Center encompasses laboratories for biomedical and behavioral research, a brain imaging center, and a clinical biomanufacturing facility for the production of pharmaceuticals for early stage human clinical trials. In addition to its research efforts, the Center provides an array of services to people with developmental disabilities, offers numerous educational, and outreach programs to young children and their families, and trains scientists and clinicians who will serve our nation in the future.
Original Source:
Last Updated: 3/22/2018