1. Home
  2. Nationwide Services Directory
  3. Education About Disabilities/Diagnoses (35)

Education About Disabilities/Diagnoses

Suggest a New Provider

Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, visible differences, and mental health and mental illness. Includes information for individuals and families with these conditions, as well as information to help others experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (Adapted from AIRS PH-6200.1850 Disability Awareness Programs )

If you know of a Service that should be listed but isn't, please Suggest a New Provider. If you find errors in a listing, please let us know by using the "Suggest an Edit" form on the provider's detail page.

ADDitude Magazine
108 West 39th Street, Suite 805
New York, NY 10018
 Phone: 6463660830
Service Categories:
Address:
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 6463660830
Service Categories:
Education About Disabilities/Diagnoses
Email: customerservices@additudemag.com
URL: https://www.additudemag.com/
Services Provided: Online resources and information related to Attention Deficit Hyperactive Disorder (ADD and ADHD) for children, adults, parents, schools, and more.
Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2020
Show more details ...
American Academy for Cerebral Palsy and Developmental Medicine
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
 Phone: 414-918-3014
Service Categories:
Address:
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Service Categories:
Education About Disabilities/Diagnoses
Email: info@aacpdm.org
URL: http://www.aacpdm.org/index.php
Services Provided:

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.
Source: MHP-Nationwide
Last Updated: 6/8/2020
Show more details ...
American Academy of Pediatrics (AAP)
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
 Phone: 847-434-4000
Service Categories:
Address:
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Fax: 847-434-8000
Service Categories:
Education About Disabilities/Diagnoses
URL: https://www.aap.org/en-us/Pages/Default.aspx
Services Provided: Professional association dedicated to the health, safety, and well-being of all infants, children, adolescents, and young adults.
Source: MHP-Nationwide
Last Updated: 1/10/2020
Show more details ...
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
 Phone: 214-373-6300
Service Categories:
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Toll Free Phone: 888-242-2453
Service Categories:
Education About Disabilities/Diagnoses
Specialized Information Resources
URL: https://www.heart.org/en/
Services Provided: Information for individuals, families, and professionals regarding heart-related concerns. Includes general health information, information regarding specific conditions, and information about CPR and First Aid training.

The [https://www.heart.org/en/ American Stroke Association] is a division of the American Heart Association focused on stroke prevention and treatment.
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
Show more details ...
Association for X and Y Variations (AXYS)
PO Box 659
Paoli, PA 19301
 Phone: 888-999-9428
Service Categories:
Address:
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Email: info@genetic.org
URL: https://genetic.org/
Services Provided: Information about chromosome variation for for parents and parents-to-be, individuals, and medical professionals.

Services include:
-Helpline: 888-999-9428 or helpline@genetic.org
-Support meetings, conferences, and webinars
-Information about chromosome variations
-[https://genetic.org/professional-directory-info/ Professional Directory]
-[https://genetic.org/im-adult-looking-answers/clinics/ AXYS Clinic and Research Consortium] clinic list
-[https://genetic.org/im-adult-looking-answers/support-groups/ Support Groups]
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
Show more details ...
Autism Society
4340 East-West Highway Suite 350
Bethesda, MD 20814
 Phone: 301-657-0881
Service Categories:
Address:
4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Toll Free Phone: 800-328-8476
Service Categories:
Education About Disabilities/Diagnoses
Email: info@autism-society.org
URL: https://www.autism-society.org/
Services Provided: We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

Disability Awareness Programs
Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Show more details ...
Batement Horn Center (BHC)
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
 Phone: 801-359-7400
Service Categories:
Address:
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-359-7400
Fax: 801-359-7404
Service Categories:
Education About Disabilities/Diagnoses
Email: support@batemanhornecenter.org
URL: https://batemanhornecenter.org/
Wheelchair Access: Complete
Eligibility: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), and other related illnesses. Must have a primary care provider and complete an application.
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.

Engages in research and provides treatment. Educational Resources available for providers and patients.

Contact Information:
Clinic Phone: (801) 359-7400
Research Phone: (801) 532-8311
Research Fax: (801) 364-3528
Clinic Fax: (801) 359-7404
Source: Nationwide Suggest Providers Queue
Last Updated: 4/17/2020
Show more details ...
Beach Center on Disability, University of Kansas
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
 Phone: 785-864-7600
Service Categories:
Organization Name: University of Kansas
(Show others in Organization)
Address:
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: https://beachcenter.lsi.ku.edu/
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Show more details ...
CDC Information Line, Centers for Disease Control and Prevention
1600 Clifton Road
Atlanta, GA 30333
 Phone: 800-232-4636
Service Categories:
Organization Name: Centers for Disease Control and Prevention
(Show others in Organization)
Address:
1600 Clifton Road
Atlanta, GA 30333
Phone: 800-232-4636
TDD: 888-232-6348
Toll Free Phone: 800-232-4636
Service Categories:
Education About Disabilities/Diagnoses
Medical Information Services
Public Health Services
URL: https://www.cdc.gov/cdc-info/index.html
Eligibility: Open to the public.
Services Provided: Information provided on more than 750 health topics, including travel immunizations, disease outbreaks, natural disasters, and other emergencies
Source: MHP-Nationwide
Last Updated: 1/24/2020
Show more details ...
Cystic Fibrosis Foundation
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
 Phone: 301-951-4422
Service Categories:
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Service Categories:
Cystic Fibrosis Clinics
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Sweat Testing
URL: https://www.cff.org/
Services Provided: The mission of the Cystic Fibrosis (CF) Foundation is to cure cystic fibrosis and provie all people with CF the opportunity to lead long, fulfilling lives.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Source: MHP-Nationwide
Last Updated: 2/7/2020
Show more details ...
Depression and Bipolar Support Alliance
55 East Jackson Blvd., Suite 490
Chicago, IL 60604
 Phone: 800-826-3632
Service Categories:
Address:
55 East Jackson Blvd., Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Toll Free Phone: 800-826-3632
Fax: 312-642-7243
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: https://www.dbsalliance.org/
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Source: MHP-Nationwide
Last Updated: 1/17/2020
Show more details ...
Epilepsy Foundation of America
8301 Professional Place East, Ste 230
Landover, MD 20785-2356
 Phone: 301-459-3700 Crisis Line: 800-332-1000
Service Categories:
Address:
8301 Professional Place East, Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Crisis Line: 800-332-1000
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: ContactUs@efa.org
URL: https://www.epilepsy.com/
Wheelchair Access: Full Wheelchair Access
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.

Spanish-language line: 866-748-8008
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Source: Nationwide Suggest Providers Queue
Last Updated: 1/24/2020
Show more details ...
Fabry Support & Information Group (FSIG)
108 NE 2nd St
PO Box 510
Concordia, MO 64020
 Phone: 660-463-1355
Service Categories:
Address:
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Toll Free Phone: 866-303-2279
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Email: info@fabry.org
URL: https://fabry.org/
Services Provided: Information about Fabry disease, support group, discussion page, information about research, links to resources, and more.
Source: MHP-Nationwide
Last Updated: 1/31/2020
Show more details ...
Frank Porter Graham Child Development Institute (FPG), University of North Carolina at Chapel Hill
CB 8180
Chapel Hill, NC 27599-8180
 Phone: 919-966-2622
Service Categories:
Organization Name: University of North Carolina at Chapel Hill
(Show others in Organization)
Address:
CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Service Categories:
Education About Disabilities/Diagnoses
URL: https://fpg.unc.edu/about-fpg
Services Provided: Enhances the lives of children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families. About 275 researchers, implementation and technical assistance specialists, staff, and students work on more than 75 projects related to developmental disabilities; early care and education; physical and social health; professional development, technical assistance, and implementation science; public policy and evaluation; and racial, ethnic, linguistic, cultural, and socioeconomic diversity.
Source: Medical Home Portal
Last Updated: 1/10/2019
Show more details ...
Hear Now, Starkey Hearing Foundation
6801 Washington Ave S, Suite 200
Minneapolis, MN 55349
 Phone: 800-328-8602
Service Categories:
Organization Name: Starkey Hearing Foundation
(Show others in Organization)
Address:
6801 Washington Ave S, Suite 200
Minneapolis, MN 55349
Phone: 800-328-8602
Toll Free Phone: 800-328-8602
Fax: 952-947-4997
Service Categories:
Assistive Technology Equipment
Assistive Technology Purchase/Rental
Education About Disabilities/Diagnoses
Email: hearnow@starkeyfoundation.org
URL: https://www.starkeyhearingfoundation.org/Hear-Now
Eligibility: Deaf or hard of hearing; Low income adults or children at or below 175% poverty + asset test
Services Provided: A national nonprofit program committed to assisting those who are deaf or hard of hearing and have no other resources to acquire hearing aids.

Also accepts donation of used hearing aids.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/24/2020
Show more details ...
Immune Deficiency Foundation
110 West Road Ste 300
Towson, MD 21204
 Phone: 800-296-4433
Service Categories:
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Email: frontdesk@primaryimmune.org
URL: https://www.primaryimmune.org/
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.

IDF Physician Finder to locate a physician by location, last name, specialty and more.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Show more details ...
JDRF
200 Vesey Street, 28th Floor
New York, NY 10281
 Phone: 800-533-2873
Service Categories:
Address:
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Fax: 212-785-9595
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Email: info@jdrf.org
URL: https://www.jdrf.org/
Services Provided: JDRF's (formerly Juvenile Diabetes Research Foundation) primary objective is to fund research into Type 1 diabetes.
Also provides:
•Informational Guides
•Virtual community
•Local chapters
•Fundraising and social events
Source: Nationwide Suggest Providers Queue
Last Updated: 1/3/2020
Show more details ...
John Tracy Clinic for Young Children with Hearing Loss
806 West Adams Boulevard
Los Angeles, CA 90007
 Phone: 213-748-5481
Service Categories:
Address:
806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Fax: 213-749-1651
Service Categories:
Education About Disabilities/Diagnoses
URL: https://www.jtc.org/
Eligibility: Infants and preschool children with hearing loss.
Services Provided: A leading diagnostic and education center for young children with hearing loss. It provides free, parent-centered services. The Clinic offers worldwide family services, local family services, professional education, preschool, and hearing testing. The Clinic has over 60 years of expertise in the spoken language option, called "oralism," serving 25,000 families each year.

Hearing Screening
Parent Support Groups
Preschools
Online courses
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Show more details ...
Lupus Foundation of America
2121 K Street NW, Suite 200
Washington, DC 20037
 Phone: 202-349-1155
Service Categories:
Address:
2121 K Street NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-558-0121
Fax: 202-349-1156
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Specialized Information Resources
Email: info@lupus.org
URL: https://www.lupus.org/about-us
Services Provided: Provides education and support services to people affected by lupus. We collaborate with experts to provide clear, easy-to-use information, programs and resources to help you navigate every step of your journey with lupus. An online community, an expert series, a resource database, a nurse and certified health educator call line.
Source: MHP-Nationwide
Last Updated: 8/6/2019
Show more details ...
Maple Syrup Urine Disease Family Support Group
9517 Big Bear Ave
Powell, OH 43065
 Phone: 740-972-5619
Service Categories:
Address:
9517 Big Bear Ave
Powell, OH 43065
Phone: 740-972-5619
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: http://www.msud-support.org/
Eligibility: Any persons with interest in MSUD
Services Provided: The MSUD Family Support Group membership includes families and professionals worldwide.

The MSUD Family Support Group is dedicated to:
• Providing opportunities for support and personal contact for those with MSUD and their families.
• Distributing information and raising public awareness of MS
• Strengthening the liaison between families and professionals.
• Encouraging newborn screening programs and research for MSUD.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/24/2020
Show more details ...
Multiple Sclerosis Associations of America
375 Kings Highway North
Cherry Hill, NJ 08034
Service Categories:
Address:
375 Kings Highway North
Cherry Hill, NJ 08034
Toll Free Phone: 800-532-7667
Fax: 856-661-9797
Service Categories:
Education About Disabilities/Diagnoses
Financial Assistance, Other
National Support Services, Disab/Diag
Email: MSquestions@mymsaa.org
URL: https://mymsaa.org/
Eligibility: Individuals with MS
Services Provided: Ongoing support and direct services.

Individual Advocacy
Information and Referral
Equipment Distribution Program by application
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
Show more details ...
Multiple Sclerosis Foundation (MSFOCUS)
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Service Categories:
Address:
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Toll Free Phone: 800-225-6495
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: https://msfocus.org/
Wheelchair Access: Ramps
Services Provided: Nonprofit organization, our primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

Disease/Disability Information
Information and Referral
Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Show more details ...
National Cancer Institute
9609 Medical Center Drive
Bethesda, MD 20892-9760
 Phone: 800-422-6237
Service Categories:
Address:
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Service Categories:
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: cancergovstaff@mail.nih.gov
URL: https://www.cancer.gov/
Wheelchair Access: Complete
Eligibility: None
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Show more details ...
National Eye Institute
31 Center Dr, MSC 2510
Bethesda, MD 20892-2510
 Phone: 301-496-5248
Service Categories:
Address:
31 Center Dr, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Service Categories:
Education About Disabilities/Diagnoses
Email: 2020@nei.nih.gov
URL: https://www.nei.nih.gov/
Services Provided: National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision
Source: Nationwide Suggest Providers Queue
Last Updated: 1/24/2020
Show more details ...
National Institute of Diabetes and Digestive and Kidney Diseases
3 Information Way
Bethesda, MD 20892-3580
 Phone: 800-860-8747
Service Categories:
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Service Categories:
Clinical Trials Research
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: healthinfo@niddk.nih.gov
URL: https://www.niddk.nih.gov/
Eligibility: Contact for specific information.
Services Provided: NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.
Source: Nationwide Suggest Providers Queue
Last Updated: 7/30/2019
Show more details ...
National Institute on Deafness and Other Communication Disorders
31 Center Dr., MSC 2320
Bethesda, MD 20892
 Phone: 800-241-1044
Service Categories:
Address:
31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Speech - Language Pathologists
URL: https://www.nidcd.nih.gov/
Eligibility: communication disorders
Services Provided: Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.
Source: MHP-Nationwide
Last Updated: 1/7/2020
Show more details ...
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06810
 Phone: 203-744-0100
Service Categories:
Address:
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06810
Phone: 203-744-0100
Toll Free Phone: 800-999-6673
Fax: 203-263-9938
Service Categories:
Education About Disabilities/Diagnoses
Medical Care Expense Assistance
National Support Services, Disab/Diag
Prescription Drug Patient Assistance Programs
Transportation Expense Assistance
URL: https://www.rarediseases.org/
Languages Spoken: Spanish
Eligibility: Persons with a rare disease, financial need.
Services Provided: A patient advocacy organization for individuals with rare diseases and the organizations that serve them. NORD provides Patient Assistance Programs that provide financial assistance. In addition, NORD provides links to other financial assistance resources.
Patient Assistance Program, RareCare, provides medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Source: MHP-Nationwide
Last Updated: 9/12/2019
Show more details ...
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
 Phone: 201-250-8440
Service Categories:
Address:
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Toll Free Phone: 800-714-5437
Fax: 201-250-8435
Service Categories:
Education About Disabilities/Diagnoses
Genetics Laboratories
Medical Care Expense Assistance
Email: info@parentprojectmd.org
URL: https://www.parentprojectmd.org/
Services Provided: Information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.
Source: MHP-Nationwide
Last Updated: 5/9/2019
Show more details ...
Patient Services Inc (PSI)
PO Box 5930
Midlothian, VA 23112
 Phone: 800-366-7741
Service Categories:
Address:
PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Service Categories:
Education About Disabilities/Diagnoses
Medical Care Expense Assistance
Prescription Drug Patient Assistance Programs
Specialized Information Resources
Transportation Expense Assistance
Email: psiops@uneedpsi.org
URL: https://www.patientservicesinc.org/
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses. Assistance is focused on a limited number of around 20 diseases, and the list always changes.
Services Provided: Provides online disease and treatment information as well as limited financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes: subsidizing the cost of health insurance premiums; providing pharmacy and treatment copayment assistance; assisting with Medicare Part D co-insurance; providing travel assistance for transportation reimbursement.
Provider Profiles: Online resources
Source: MHP-Nationwide
Last Updated: 7/11/2019
Show more details ...
Propionic Acidemia Foundation
1963 McCraren Rd.
Highland Park, IL 60035
Service Categories:
Address:
1963 McCraren Rd.
Highland Park, IL 60035
Toll Free Phone: 877-720-2192
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Email: paf@pafoundation.com
URL: http://www.pafoundation.com/
Services Provided:

Mission: Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organization offers educational resources for families and patients, a patient registry, conferences and trainings, online support groups, and more.
Source: MHP-Nationwide
Last Updated: 6/8/2020
Show more details ...
Sensory Processing Disorder Foundation (SPD Foundation)
5420 S. Quebec Street, Suite 135
Greenwood Village, CO 80111
 Phone: 303-794-1182
Service Categories:
Address:
5420 S. Quebec Street, Suite 135
Greenwood Village, CO 80111
Phone: 303-794-1182
Fax: 303-322-5550
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: http://www.spdfoundation.net/
Services Provided:

The SPD Foundation offers online courses, resources, advocacy, and support groups for professionals, parents, and others interested in helping individuals with Sensory Processing Disorder.
Source: MHP-Nationwide
Last Updated: 6/8/2020
Show more details ...
Sickle Cell Disease Association of America, Inc.
7240 Parkway Drive, Suite 180
Hanover, MD 21076
 Phone: 410-528-1555
Service Categories:
Address:
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Toll Free Phone: 800-421-8453
Fax: 410-528-1495
Service Categories:
Education About Disabilities/Diagnoses
Medical Information Services
Sickle Cell Disease Centers
Email: admin@sicklecelldisease.org
URL: https://www.sicklecelldisease.org/
Services Provided: National nonprofit with chapters in multiple states. Supports research, public health education, professional health education, patient services, community services, and global organizations.
Provider Profiles: Mission: To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Show more details ...
The Childhood RND Educational Foundation, Inc, The Childhood RND Educational Foundation, Inc
PO Box 7762
Wilmington, DE 19803
Service Categories:
Organization Name: The Childhood RND Educational Foundation, Inc
(Show others in Organization)
Address:
PO Box 7762
Wilmington, DE 19803
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Pain Management
URL: https://stopchildhoodpain.org/
Services Provided: The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]
Source: MHP-Nationwide
Last Updated: 2/26/2020
Show more details ...
Tourette Association of America
42-40 Bell Blvd Suite 205
Bayside, NY 11361-2820
 Phone: 718-224-2999
Service Categories:
Address:
42-40 Bell Blvd Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Tourette Syndrome Programs
Email: support@tourette.org
URL: https://tourette.org/
Services Provided: A national organization serving children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

[https://tourette.org/find-a-provider/ Find a Provider]: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

[https://tourette.org/about-tourette/overview/centers-of-excellence/center-excellence-locations/ Tourette Syndrome Centers of Excellence]: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.
Source: MHP-Nationwide
Last Updated: 2/4/2020
Show more details ...
Understood
145 Hudson Street, Suite 5B
New York, NY 10013–2150
 Phone: (516) 654-7584
Service Categories:
Address:
145 Hudson Street, Suite 5B
New York, NY 10013–2150
Phone: (516) 654-7584
Service Categories:
Education About Disabilities/Diagnoses
Email: media@understood.org
URL: https://www.understood.org/
Eligibility: Individuals with learning and thinking differences and their families
Services Provided:

Resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.
Source: Nationwide Suggest Providers Queue
Last Updated: 6/26/2020
Show more details ...