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Education About Disabilities/Diagnoses

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American Academy for Cerebral Palsy and Developmental Medicine
555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
 Phone: 414-918-3014
Service Categories:
Education About Disabilities/Diagnoses
Address: 555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Service Categories:
Education About Disabilities/Diagnoses
URL: http://www.aacpdm.org/index.php
Services Provided: A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
Original Source: MedHome Portal
Last Updated: 3/22/2018
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Beach Center on Disability, University of Kansas
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
 Phone: 785-864-7600
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Organization Name: University of Kansas
Address: Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: http://www.beachcenter.org/
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Original Source: MedHome Portal
Last Updated: 1/10/2019
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Depression and Bipolar Support Alliance
730 N Franklin St, Suite 501
Chicago, IL 60654-7225
 Phone: 800-826-3632
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Address: 730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
URL: http://www.dbsalliance.org
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Original Source: MedHome Portal
Last Updated: 12/18/2017
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Epilepsy Foundation
8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
 Phone: 866-748-8008
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Internet Information Resources
Address: 8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Internet Information Resources
Email: ContactUs@efa.org
URL: http://www.epilepsy.com
Languages Spoken: Spanish
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: MedHome Portal
Last Updated: 7/17/2018
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Frank Porter Graham Child Development Institute (FPG), University of North Carolina at Chapel Hill
CB 8180
Chapel Hill, NC 27599-8180
 Phone: 919-966-2622
Service Categories:
Education About Disabilities/Diagnoses
Organization Name: University of North Carolina at Chapel Hill
Address: CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Service Categories:
Education About Disabilities/Diagnoses
URL: https://fpg.unc.edu/about-fpg
Services Provided: Enhances the lives of children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families. About 275 researchers, implementation and technical assistance specialists, staff, and students work on more than 75 projects related to developmental disabilities; early care and education; physical and social health; professional development, technical assistance, and implementation science; public policy and evaluation; and racial, ethnic, linguistic, cultural, and socioeconomic diversity.
Original Source: MedHome Portal
Last Updated: 1/10/2019
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Immune Deficiency Foundation
110 West Road
Towson, MD 21204
 Phone: 800-296-4433
Service Categories:
Education About Disabilities/Diagnoses
Internet Information Resources
National Support Services, Disab/Diag
Address: 110 West Road
Towson, MD 21204
Phone: 800-296-4433
Service Categories:
Education About Disabilities/Diagnoses
Internet Information Resources
National Support Services, Disab/Diag
URL: http://www.primaryimmune.org
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.
Original Source: MedHome Portal
Last Updated: 7/17/2018
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ME/CFS and Fibromyalgia Center of Excellence, Bateman Horne Center of Excellance
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
 Phone: 801-328-8080
Service Categories:
Continuing Medical Education
Disability Awareness Programs
Education About Disabilities/Diagnoses
Local Support Groups, Disability/Diag
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Service Categories:
Continuing Medical Education
Disability Awareness Programs
Education About Disabilities/Diagnoses
Local Support Groups, Disability/Diag
Email: support@batemanhornecenter.org
URL: http://batemanhornecenter.org/
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: MedHome Portal
Last Updated: 11/14/2018
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National Cancer Institute
9609 Medical Center Drive
Bethesda, MD 20892-9760
 Phone: 800-422-6237
Service Categories:
Education About Disabilities/Diagnoses
Address: 9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Service Categories:
Education About Disabilities/Diagnoses
URL: http://www.cancer.gov
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Original Source: United Way 2-1-1
Last Updated: 4/17/2018
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National Institute on Deafness and Other Communication Disorders
31 Center Dr., MSC 2320
Bethesda, MD 20892
 Phone: 800-241-1044
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Speech - Language Pathologists
Address: 31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Speech - Language Pathologists
URL: http://www.nidcd.nih.gov
Eligibility: communication disorders
Services Provided: Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.
Original Source: MedHome Portal
Last Updated: 3/22/2018
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National Organization for Rare Disorders (NORD)
Danbury, CT
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Prescription Drug Patient Assistance Programs
Transportation Expense Assistance
Address: Danbury, CT
Toll Free Phone: 800-634-7207
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Prescription Drug Patient Assistance Programs
Transportation Expense Assistance
URL: https://www.rarediseases.org/
Services Provided: The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Co-pay Assistance Program.
Patient Assistance Program, RareCare: helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Original Source: MedHome Portal
Last Updated: 2/13/2018
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Patient Services Inc (PSI)
PO Box 5930
Midlothian, VA 23112
 Phone: 800-366-7741
Service Categories:
Education About Disabilities/Diagnoses
Internet Information Resources
Prescription Drug Patient Assistance Programs
Transportation Expense Assistance
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Service Categories:
Education About Disabilities/Diagnoses
Internet Information Resources
Prescription Drug Patient Assistance Programs
Transportation Expense Assistance
URL: https://www.patientservicesinc.org/
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses.
Services Provided: Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes: subsidizing the cost of health insurance premiums; providing pharmacy and treatment copayment assistance; assisting with Medicare Part D co-insurance; providing travel assistance for transportation reimbursement.
Provider Profiles: Online resources
Original Source: MedHome Portal
Last Updated: 8/1/2018
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Tourette Association of America
42-40 Bell Blvd Suite 205
Bayside, NY 11361
 Phone: 718-224-2999
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Tourette Syndrome Programs
Address: 42-40 Bell Blvd Suite 205
Bayside, NY 11361
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Service Categories:
Education About Disabilities/Diagnoses
National Support Services, Disab/Diag
Tourette Syndrome Programs
Email: support@tourette.org
URL: http://www.tourette.org/
Services Provided: A national organization serving children, individuals and families affected by Tourette Syndrome (TS.) Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.
Original Source: MedHome Portal
Last Updated: 8/22/2018
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