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Disability Awareness Programs

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Description: Voluntary health organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness. Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, help them experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (AIRS PH-6200.1850)

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Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

Academy for Eating Disorders
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
 Phone: 703-234-4079
Service Categories:
Disability Awareness Programs
Address: 11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-435-4390
Service Categories:
Disability Awareness Programs
URL: http://www.aedweb.org
Eligibility: Open to the public.
Services Provided: Provides research, educational forums, publications, subject matter experts and current information on treatment and prevention of eating disorders.
Original Source: United Way 2-1-1
Last Updated: 10/11/2018
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Alexander Graham Bell Assoc for the Deaf & Hard of Hearing
3417 Volta Place NW
Washington, DC 20007
 Phone: 202-337-5220
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Scholarships
Speech - Language Pathologists
Address: 3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Fax: 202-337-8314
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Scholarships
Speech - Language Pathologists
URL: http://www.agbell.org
Eligibility: Individuals who are deaf or hard of hearing.
Services Provided: A resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.
Original Source: MedHome Portal
Last Updated: 7/17/2018
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American Diabetes Association
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Service Categories:
Disability Awareness Programs
Internet Information Resources
Address: 2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Service Categories:
Disability Awareness Programs
Internet Information Resources
URL: http://www.diabetes.org/
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Original Source: MedHome Portal
Last Updated: 7/17/2018
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American Kidney Fund
11921 Rockville Pike Ste 300
Rockville, MD 20852
 Phone: 800-638-8299
Service Categories:
Disability Awareness Programs
Internet Information Resources
Medical Care Expense Assistance
Address: 11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Toll Free Phone: 866-300-2900
Service Categories:
Disability Awareness Programs
Internet Information Resources
Medical Care Expense Assistance
URL: http://www.kidneyfund.org/
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy and resource referrals for patients and health care professionals. Programs for children include summer enrichment activities and the annual Calendar Kids Art Contest. FInancial assistance includes:
Health Insurance Premium Program (HIPP)
Safety Net grants
Disaster relief grants
Grants for children
Prescription drug resources
Provider Profiles: Internet Information Resource
Original Source: United Way 2-1-1
Last Updated: 9/5/2018
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American Society for Deaf Children (ASDC)
PO Box 3355
Gettysburg, PA 17325
 Phone: 717-334-7992
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Address: PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
URL: http://www.deafchildren.org
Services Provided: Families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.
Original Source: MedHome Portal
Last Updated: 1/10/2019
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Arc of the United States: for People with Intellectual and Developmental Disabilities
1825 K Street NW, Suite 1200
Washington, DC 20006
 Phone: 301-565-3842
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Address: 1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
URL: http://www.thearc.org/
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Original Source: MedHome Portal
Last Updated: 1/10/2019
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Autism Speaks
1 East 33rd Street, 4th Floor
New York, NY 10016
 Phone: 888-772-9050
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Address: 1 East 33rd Street, 4th Floor
New York, NY 10016
Phone: 888-772-9050
Toll Free Phone: 888-288-4762
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
URL: https://www.autismspeaks.org/
Eligibility: People with autism, their families and caregivers.
Services Provided: Provides the latest autism science and information; funding research into the causes, prevention, treatments and a cure for autism; awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Original Source: United Way 2-1-1
Last Updated: 9/18/2018
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Cancer Care
275 Seventh Avenue
New York, NY 10001
 Phone: 212-712-8400
Service Categories:
Disability Awareness Programs
Medical Care Expense Assistance
National Support Services, Disab/Diag
Address: 275 Seventh Avenue
New York, NY 10001
Phone: 212-712-8400
Toll Free Phone: 800-813-4673
Fax: 212-712-8495
Service Categories:
Disability Awareness Programs
Medical Care Expense Assistance
National Support Services, Disab/Diag
URL: http://www.cancercare.org
Eligibility: Cancer patients, survivors and caregivers. Liimited grants for certain expenses related to cancer treatment.
Services Provided: Provides online, telephone and in-person counseling, support groups, educational workshops, publications, financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.
Original Source: United Way 2-1-1
Last Updated: 3/7/2018
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CdLS Foundation, Cornelia de Lange Syndrome Foundation
302 West Main Street #100
Avon, CT 06001
 Phone: 860-676-8166
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Organization Name: Cornelia de Lange Syndrome Foundation
Address: 302 West Main Street #100
Avon, CT 06001
Phone: 860-676-8166
Toll Free Phone: 800-753-2357
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
URL: http://www.cdlsusa.org/what-we-do/family-support-services.htm
Services Provided: A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Toll free help lines, Ask the Expert emails, Connect with a Family, and more.
Provider Profiles: M - F 8:30 - 5 ET
Original Source: MedHome Portal
Last Updated: 8/14/2018
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Crohn's & Colitis Foundation of America
733 Third Ave Ste 510
New York, NY 10017
 Phone: 800-932-2423
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Address: 733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
URL: http://www.ccfa.org
Eligibility: Crohn's and Colitis patients, their families and medical professionals.
Services Provided: Funds research studies at major medical institutions, nurtures investigators at the early stages of their careers, finances underdeveloped areas of research, and provides educational workshops and programs related to Crohn's Disease and colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.
Original Source: United Way 2-1-1
Last Updated: 9/11/2018
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Epilepsy Foundation
8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
 Phone: 866-748-8008
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Internet Information Resources
Address: 8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 866-748-8008
Toll Free Phone: 800-332-1000
Fax: 301-459-1569
Service Categories:
Disability Awareness Programs
Education About Disabilities/Diagnoses
Internet Information Resources
Email: ContactUs@efa.org
URL: http://www.epilepsy.com
Languages Spoken: Spanish
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: MedHome Portal
Last Updated: 7/17/2018
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Five P Minus Society, 5p- (five p minus) Society
6229 Eckleson Street
Lakewood, CA 90713
 Phone: 888-970-0777
Service Categories:
Disability Awareness Programs
Local Support Groups, Disability/Diag
National Support Services, Disab/Diag
Organization Name: 5p- (five p minus) Society
Address: 6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Service Categories:
Disability Awareness Programs
Local Support Groups, Disability/Diag
National Support Services, Disab/Diag
URL: http://www.fivepminus.org
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.
Original Source: MedHome Portal
Last Updated: 1/10/2019
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Genetic Alliance
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
 Phone: 202-966-5557
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Address: 4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
Phone: 202-966-5557
Fax: 202-966-8553
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
URL: http://www.geneticalliance.org/
Services Provided: A partnership of self-help groups and professionals, Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community-based family history. Current programs include: Advocacy ATLAS, Community Centered Family Health History, Consumer Focused Newborn Screening, and Access to Credible Genetics Resources Network
Original Source: MedHome Portal
Last Updated: 12/18/2017
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Gigi's Playhouse, Down Syndrome Achievement Centers
2350 West Higgins Road
Hoffman Estates, IL 60169
 Phone: 847-885-6147
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Organization Name: Down Syndrome Achievement Centers
Address: 2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Service Categories:
Disability Awareness Programs
National Support Services, Disab/Diag
Email: info@gigisplayhouse.org
URL: https://gigisplayhouse.org/
Eligibility: Individuals with Down syndrome, their families and the community
Services Provided: Through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community, we offer free therapeutic and educational programming to individuals with Down syndrome and their families. At GiGi’s Playhouse families are never alone. From a prenatal diagnosis to career skills, we make a lifetime commitment to remain by their side. Families are empowered with all the tools their child needs to succeed!
Original Source: MedHome Portal
Last Updated: 7/17/2018
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Laurent Clerc National Deaf Education Center, Gallaudet University
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
 Phone: 202-651-5051
Service Categories:
Crisis Helplines/Hotlines
Disability Awareness Programs
Internet Information Resources
Organization Name: Gallaudet University
Address: KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Service Categories:
Crisis Helplines/Hotlines
Disability Awareness Programs
Internet Information Resources
URL: http://clerccenter.gallaudet.edu/
Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.
Original Source: MedHome Portal
Last Updated: 7/16/2018
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Lucile Packard Foundation for Children's Health
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
 Phone: 650-497-8365
Service Categories:
CSHCN Administration & Programs
Disability Awareness Programs
Internet Information Resources
Address: 400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Service Categories:
CSHCN Administration & Programs
Disability Awareness Programs
Internet Information Resources
URL: http://www.lpfch.org/
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Original Source: MedHome Portal
Last Updated: 2/21/2018
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ME/CFS and Fibromyalgia Center of Excellence, Bateman Horne Center of Excellance
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
 Phone: 801-328-8080
Service Categories:
Continuing Medical Education
Disability Awareness Programs
Education About Disabilities/Diagnoses
Local Support Groups, Disability/Diag
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Service Categories:
Continuing Medical Education
Disability Awareness Programs
Education About Disabilities/Diagnoses
Local Support Groups, Disability/Diag
Email: support@batemanhornecenter.org
URL: http://batemanhornecenter.org/
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: MedHome Portal
Last Updated: 11/14/2018
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Muscular Dystrophy Association, National
222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
 Phone: 800-572-1717
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Address: 222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Email: ResourceCenter@mdausa.org
URL: https://www.mda.org/
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy. A web-based locator to find local services and summer camps in many states.
Original Source: MedHome Portal
Last Updated: 8/27/2018
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National ADAPT
Service Categories:
Disability Awareness Programs
Address:
Service Categories:
Disability Awareness Programs
Email: contactus@adapt.org
URL: https://adapt.org/
Services Provided: A national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. Key issue is affordable, accessible, integrated housing. Access Across America is a proposal to HUD for a national program.
Original Source: MHP-Nationwide
Last Updated: 2/5/2019
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National Association of Anorexia Nervosa and Associated Disorders
220 N Green Street
Chicago, IL 60607
 Phone: 630-557-1330
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Address: 220 N Green Street
Chicago, IL 60607
Phone: 630-557-1330
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
URL: http://www.anad.org
Eligibility: Eating disorders
Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.
Original Source: MedHome Portal
Last Updated: 8/1/2018
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National Association of the Deaf
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
 Phone: 301-587-1788
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
Internet Information Resources
Address: 8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Service Categories:
Camps for Children with Special Needs
Disability Awareness Programs
Internet Information Resources
URL: http://www.nad.org
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Original Source: MedHome Portal
Last Updated: 8/1/2018
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National Brain Tumor Society
55 Chapel Street, Ste 200
Newton, MA 02458
 Phone: 617-924-9997
Service Categories:
Disability Awareness Programs
Address: 55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Service Categories:
Disability Awareness Programs
URL: http://www.braintumor.org
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow.
Original Source: United Way 2-1-1
Last Updated: 4/5/2018
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National Kidney Foundation
30 East 33rd Street
New York, NY 10016
 Phone: 800-622-9010
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Address: 30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
URL: https://www.kidney.org/
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Original Source: MedHome Portal
Last Updated: 7/17/2018
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National Mental Health Information Center, Substance Abuse and Mental Health Services Administration (SAMHSA)
1 Choke Cherry Road
Rockville, MD 20857
 Phone: 800-662-4357
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Addiction
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: 1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Addiction
URL: https://findtreatment.samhsa.gov/locator?sType=mh
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Original Source: MedHome Portal
Last Updated: 8/1/2018
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Needs Beyond Medicine
PO Box 521618
Salt Lake City, UT 84152
 Phone: 385-645-4626
Service Categories:
Disability Awareness Programs
Financial Assistance, Other
Address: PO Box 521618
Salt Lake City, UT 84152
Phone: 385-645-4626
Service Categories:
Disability Awareness Programs
Financial Assistance, Other
URL: http://www.needsbeyondmedicine.org/
Eligibility: Cancer patients
Services Provided: Provides financial assistance grants and online educational materials / workshops for cancer patients. Financial assistance is for non-medical expenses, such as transportation, rent and other living costs. Does not provide medical advice, diagnosis or treatment.
Original Source: United Way 2-1-1
Last Updated: 9/6/2018
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PACER Center: Parents Helping Parents
8161 Normandale Blvd.
Bloomington, MN 55437
 Phone: 952-838-9000
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Family Support Centers/Outreach
Internet Information Resources
National Support Services, Disab/Diag
Address: 8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Family Support Centers/Outreach
Internet Information Resources
National Support Services, Disab/Diag
URL: http://www.pacer.org
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Original Source: MedHome Portal
Last Updated: 8/2/2018
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Pancreatic Cancer Action Network
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
 Phone: 310-725-0025
Service Categories:
Clinical Trials Research
Disability Awareness Programs
Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Service Categories:
Clinical Trials Research
Disability Awareness Programs
URL: http://www.pancan.org
Eligibility: Cancer patients, survivors, and their families
Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.
Original Source: United Way 2-1-1
Last Updated: 3/28/2018
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Rettsyndrome.org
4600 Devitt Drive
Cincinnati, OH 45246
 Phone: 800-818-7388
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Address: 4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Service Categories:
Disability Awareness Programs
Internet Information Resources
National Support Services, Disab/Diag
Email: admin@rettsyndrome.org
URL: http://www.rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Original Source: MedHome Portal
Last Updated: 8/23/2018
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