Community Advocacy Organizations

Information about Fabry disease, research and clinical trials information, funding programs, and more. Programs, include:

• Annual conference
• Family camp
• Personal support
• Research and educational information

ASHA's work is focused around three important objectives:
Educate: Be the source of scientifically-based and accessible information
Build Alliances: Collaborate with other organizations to expand the understanding and acceptance of the sexual health model
Advocate: Advance supportive changes in sexual health policy

The NAACP is the oldest and largest civil rights group in the U.S. Its principal objective is to ensure political, educational, social, and economic equality among minority citizens.

The National Center for Children in Poverty (NCCP) is the nation's leading public policy center dedicated to promoting the economic security, health, and well-being of America's low-income families and children. NCCP has a list online of publications on the following topics:

• Child Poverty
• Children’s Mental Health
• Early Care and Learning
• Healthy Development
• Immigrant Families
• Infants and Toddlers
• Integrated Systems
• Low-Wage Work
• Social Security
• Welfare
• Work Supports

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism. ARI also disseminates research findings to parents and others worldwide seeking help. The ARI data bank, the world's largest, contains over 40,000 detailed case histories of autistic children from over 60 countries.

Services:

• Online educational events for parents and caretakers
• Continuing medical education credit for physicians, teachers, dietitians, and occupational therapists
• ATEC treatment assessment tool for individuals with Autism Spectrum Disorder
• Resource Line
• Research updates and newsletters

The mission of United Way is to improve people's lives by mobilizing the caring power of communities.

United Ways across the country activate community resources to make the greatest possible human impact. The United Way system includes approximately 1,400 community-based United Way organizations. Each is independent, separately incorporated and governed by local volunteers.

As community leaders, United Ways address the most critical local issues and mobilize resources beyond the dollars that are pledged through their fund-raising efforts. Community partners often include schools, government policy makers, businesses, organized labor, financial institutions, voluntary and neighborhood associations, community development corporations and the faith community.

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. Offers options to request assistance, connect with a mentor, connect with a chapter, advocacy, and product and service information.

Spinal Cord Resource Center: Submit questions on any aspect of Spinal Cord Injury/Disease or get information and resources that may help you resolve a situation including local support.

Disability Products & Services Guide: Search the United Spinal Association Disability Products & Services Directory to discover providers and organizations that specialize in optimizing the health, independence and quality of life of people with a spinal cord injury or disease.

• Health/Disability Related Support Groups
• Information and Referral
• Legislative Advocacy
• Self Advocacy Support