Local Support Groups, Disability/Diag

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Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

Nationwide Provider
161 North Clark Street Ste 3550
Chicago, IL 60601
Nationwide Provider
Address:
161 North Clark Street Ste 3550
Chicago, IL 60601
Toll Free Phone: 800-572-1717
Email: mda@mdausa.org
Services Provided:

A voluntary health agency that works to combat muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related muscle-debilitating diseases. The organization is committed to finding treatments and cures while providing a comprehensive program to empower families with support to help them thrive and stay independent including summer camps for kids, peer support, equipment resources and more. Related volunteer opportunities available.COVID-19 Update: following all CDC and state guidelines.

  • Voluntary Health Organizations
  • Assistive Technology Expense Assistance
  • Health/Disabilities Related Volunteer Opportunities
  • Therapeutic Camps
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
10586 West Pico Boulevard, Unit 196
Los Angeles, CA 90064
Phone: 260-225-3736
Nationwide Provider
Address:
10586 West Pico Boulevard, Unit 196
Los Angeles, CA 90064
Phone: 260-225-3736
Email: info@kesem.org
Eligibility:

children with parents with cancer

Services Provided:

Kesem is a nationwide community, driven by passionate college student leaders, that supports children through and beyond their parent’s cancer. Offering innovative, fun-­filled programs that foster a lasting community, we aim to ensure that every child impacted by a parent’s cancer is never alone.

Provider Profiles:

Camp locator on website

Source: MHP-Nationwide
Last Updated: 4/7/2022
Nationwide Provider
PO Box 268
Lakewood, CA 90714
Phone: 888-970-0777
Nationwide Provider
Address:
PO Box 268
Lakewood, CA 90714
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Email: director@fivepminus.org
Eligibility:

Parents and health care providers of children with Cri Du Chat syndrome.

Services Provided: Provides disease/disability information and support groups, and comprehensive resources for accurate, up-to-date information, support, and acceptance to maximize the quality of life for individuals with 5p- and their families. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children. Also supports five Regional Family Get-Togethers per year.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Nationwide Provider
Address:
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Toll Free Phone: 800-227-2345
Services Provided:

Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
PO Box 1102
Olney, MD 20830
Nationwide Provider
Address:
PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Fax: 630-604-6078
Email: thyca@thyca.org
Languages Spoken: Spanish
Eligibility:

Thyroid cancer patients, survivors, caregivers and medical professionals.

Services Provided:

Provides current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. Receives ongoing input and review from numerous thyroid cancer specialists.

COVID-19 UPDATE: Some groups are being held virtually; please call or visit website to verify.

  • Internet Information Resources
  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
Nationwide Provider
300 Rosewood Drive, Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Nationwide Provider
Address:
300 Rosewood Drive, Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Toll Free Phone: 800-722-4673
Fax: 978-463-5809
Email: info@scleroderma.org
Eligibility:

Those affected by scleroderma and their families.

Services Provided:

Provides awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/29/2022
Nationwide Provider
1415 West 22nd Street, Tower Floor
Oak Brook, IL 60523
Phone: 312-337-5661
Nationwide Provider
Address:
1415 West 22nd Street, Tower Floor
Oak Brook, IL 60523
Phone: 312-337-5661
Toll Free Phone: 866-221-0302
Email: info@recoveryinternational.org
Services Provided:

The mission of Recovery International is to use the cognitive-behavioral, peer-to-peer, self-help training system developed by Abraham Low, MD, to help individuals gain skills to lead more peaceful and productive lives.

Online Resources Include:

  • Local meeting locator
Source: Nationwide Suggest Providers Queue
Last Updated: 5/9/2022
Nationwide Provider
120-34 Queens Blvd #320
Kew Gardens, NY 11415
Phone: 718-803-3782
Nationwide Provider
Address:
120-34 Queens Blvd #320
Kew Gardens, NY 11415
Phone: 718-803-3782
Toll Free Phone: 800-962-9629
Fax: 718-803-0414
Email: askus@unitedspinal.org
Eligibility:

Membership is free and open to all individuals who are living with a spinal cord injury or disease, their family members, friends, and healthcare providers.

Services Provided:

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. Offers options to request assistance, connect with a mentor, connect with a chapter, advocacy, and product and service information.

Spinal Cord Resource Center: Submit questions on any aspect of Spinal Cord Injury/Disease or get information and resources that may help you resolve a situation including local support.

Disability Products & Services Guide: Search the United Spinal Association Disability Products & Services Directory to discover providers and organizations that specialize in optimizing the health, independence and quality of life of people with a spinal cord injury or disease.

  • Health/Disability Related Support Groups
  • Information and Referral
  • Legislative Advocacy
  • Self Advocacy Support
Source: Nationwide Suggest Providers Queue
Last Updated: 3/1/2022