A voluntary health agency that works to combat muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related muscle-debilitating diseases. The organization is committed to finding treatments and cures while providing a comprehensive program to empower families with support to help them thrive and stay independent including summer camps for kids, peer support, equipment resources and more. Related volunteer opportunities available.COVID-19 Update: following all CDC and state guidelines.

• Voluntary Health Organizations
• Assistive Technology Expense Assistance
• Health/Disabilities Related Volunteer Opportunities
• Therapeutic Camps
• Health/Disability Related Support Groups

children with parents with cancer

Kesem is a nationwide community, driven by passionate college student leaders, that supports children through and beyond their parent’s cancer. Offering innovative, fun-­filled programs that foster a lasting community, we aim to ensure that every child impacted by a parent’s cancer is never alone.

Camp locator on website

Parents and health care providers of children with Cri Du Chat syndrome.

Provides disease/disability information and support groups, and comprehensive resources for accurate, up-to-date information, support, and acceptance to maximize the quality of life for individuals with 5p- and their families. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children. Also supports five Regional Family Get-Togethers per year.COVID-19 UPDATE: Following all CDC and State guidelines.

• Health/Disability Related Support Groups
• Disease/Disability Information

Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.

Thyroid cancer patients, survivors, caregivers and medical professionals.

Provides current information about thyroid cancer and support group services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as caregivers. Receives ongoing input and review from numerous thyroid cancer specialists. Provides internet information as well as specialized information and referral.COVID-19 UPDATE: Some groups are being held virtually; please call or visit website to verify.

• Specialized Information and Referral
• Internet Information Resources
• Health/Disability Related Support Groups

Those affected by scleroderma and their families.

Provides awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.

The mission of Recovery International is to use the cognitive-behavioral, peer-to-peer, self-help training system developed by Abraham Low, MD, to help individuals gain skills to lead more peaceful and productive lives.

Online Resources Include:

• Local meeting locator

Membership is free and open to all individuals who are living with a spinal cord injury or disease, their family members, friends, and healthcare providers.

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. Offers options to request assistance, connect with a mentor, connect with a chapter, advocacy, and product and service information.

Spinal Cord Resource Center: Submit questions on any aspect of Spinal Cord Injury/Disease or get information and resources that may help you resolve a situation including local support.

Disability Products & Services Guide: Search the United Spinal Association Disability Products & Services Directory to discover providers and organizations that specialize in optimizing the health, independence and quality of life of people with a spinal cord injury or disease.

• Health/Disability Related Support Groups
• Information and Referral
• Legislative Advocacy
• Self Advocacy Support