Local Support Groups, Disability/Diag

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Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Organization Name: CHADD
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4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Fax: 301-306-7090
Email: Affiliate_Services@chadd.org
Eligibility: Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.
Services Provided: Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD, Children and Adults with Attention-Deficit/Hyperactivity Disorder. Find an affiliate using the website locator.
Provider Profiles: Internet based resource
Source: Nationwide Suggest Providers Queue
Last Updated: 11/27/2019
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Fax: 978-463-5809
Eligibility: Those affected by scleroderma and their families.
Services Provided: Raise funds and awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
120-34 Queens Blvd #320
Kew Gardens, NY 11415
Phone: 718-803-3782
Toll Free Phone: 800-962-9629
Fax: 718-803-0414
Email: askus@unitedspinal.org
Eligibility: Membership is free and open to all individuals who are living with a spinal cord injury or disease, their family members, friends, and healthcare providers.
Services Provided:

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. Offers options to request assistance, connect with a mentor, connect with a chapter, advocacy, and product and service information.

Spinal Cord Resource Center: Submit questions on any aspect of Spinal Cord Injury/Disease or get information and resources that may help you resolve a situation including local support.

Disability Products & Services Guide: Search the United Spinal Association Disability Products & Services Directory to discover providers and organizations that specialize in optimizing the health, independence and quality of life of people with a spinal cord injury or disease.

  • Health/Disability Related Support Groups
  • Information and Referral
  • Legislative Advocacy
  • Self Advocacy Support
Source: Nationwide Suggest Providers Queue
Last Updated: 10/13/2020
PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Toll Free Phone: 800-328-8476
Email: info@aspergersyndrome.org
Eligibility: Open to all.
Services Provided: An online resource for families, individuals, and medical professionals who deal with the challenges of Autism and Autism Spectrum Disorders.
Source: Nationwide Suggest Providers Queue
Last Updated: 4/18/2019
1415 W. 22nd St., Tower Floor
Oak Brook, IL 60523
Phone: 3123375661
Toll Free Phone: 8662210302
Fax: 3127264446
Email: info@recoveryinternational.org
Eligibility: Contact for specific information.
Services Provided:

The mission of Recovery International is to use the cognitive-behavioral, peer-to-peer, self-help training system developed by Abraham Low, MD, to help individuals gain skills to lead more peaceful and productive lives.

See the website for local and online meetings and resources.

Source: Nationwide Suggest Providers Queue
Last Updated: 10/5/2020
PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Fax: 630-604-6078
Email: thyca@thyca.org
Eligibility: Thyroid cancer patients, survivors, caregivers and medical professionals.
Services Provided: Provides current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. Receives ongoing input and review from numerous thyroid cancer specialists.

  • Specialized Information and Referral
  • Internet Information Resources
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
950 Pennsylvania Ave NW
Washington, DC 20210
Phone: 800-514-0301
TDD: 800-514-0383
Toll Free Phone: 800-514-0301
Fax: 202-307-1198
Services Provided: Provides Information and Referral literature/materials

ADA Implementation Assistance
Accessibility Related Standards/Legislation Compliance
Assistive Technology Equipment
Group Advocacy
Information and Referral
Issue Advocacy
Labor and Employment Law
Legislative Advocacy
Library Services
Protection and Advocacy for Individuals with Disabilities
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Email: director@fivepminus.org
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided:

Provides a comprehensive resource for accurate, up-to-date information, support, and acceptance to maximize the quality of life for individuals with 5p- and their families. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children. Also supports five Regional Family Get-Togethers per year.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 11/6/2020