Local Support Groups, Disability/Diag

Description: Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

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Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

Address: PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Toll Free Phone: 800-328-8476
Eligibility: Open to all.
Services Provided: An online resource for families, individuals, and medical professionals who deal with the challenges of Autism and Autism Spectrum Disorders. Internet Information Resources
Original Source: United Way 2-1-1
Last Updated: 10/11/2018
Organization Name: 5p- (five p minus) Society
Address: 6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.
Original Source: MedHome Portal
Last Updated: 1/10/2019
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Email: support@batemanhornecenter.org
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: MedHome Portal
Last Updated: 11/14/2018
4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Organization Name: CHADD
Address: 4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Fax: 301-306-7090
Email: Affiliate_Services@chadd.org
Eligibility: Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.
Services Provided: Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD, Children and Adults with Attention-Deficit/Hyperactivity Disorder.
Provider Profiles: Internet based resource
Original Source: MedHome Portal
Last Updated: 8/1/2018