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Family Support Services

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Programs that provide a wide variety of social services that are designed to support healthy family development, improve the family's ability to resolve problems and prevent the need for unnecessary placement of children in foster care, group homes, inpatient substance abuse or mental health treatment programs, residential training schools or other alternative environments when family problems reach crisis proportions. (AIRS PH-2360)

PACER Center: Parents Helping Parents View on Map
8161 Normandale Blvd.
Bloomington, MN 55437
 Phone: 952-838-9000
Service Categories:
Address:
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Service Categories:
Assistive Technology Equipment
Disability Awareness Programs
Family Support Services
National Support Services, Disab/Diag
Specialized Information Resources
URL: https://www.pacer.org/
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Source: MHP-Nationwide
Last Updated: 1/7/2020
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Hand to Hold View on Map
13740 Research Blvd., Suite L5
Austin, TX 78750
 Phone: 855-424-6428
Service Categories:
Address:
13740 Research Blvd., Suite L5
Austin, TX 78750
Phone: 855-424-6428
Toll Free Phone: 855-424-6428
Service Categories:
Family Support Services
Email: info@handtohold.org
URL: https://handtohold.org/
Services Provided:

Hand to Hold® helps families before, during, and after a NICU stay and infant loss by providing powerful resources for the whole family, and most importantly, one-on-one mentoring from someone who has been there.

Services:

  • Peer Support
  • Online Community
  • Resources (hospital, online, podcast)
Source: MHP-Nationwide
Last Updated: 8/19/2020
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Graham's Foundation View on Map
P.O. Box 755
Perrysburg, OH 43552
 Phone: 888-466-2948
Service Categories:
Address:
P.O. Box 755
Perrysburg, OH 43552
Phone: 888-466-2948
Toll Free Phone: 888-466-2948
Service Categories:
Family Support Services
National Support Services, Disab/Diag
URL: https://grahamsfoundation.org/
Eligibility: Parents of children in the NICU, anticipating a difficult birth, or transitioning home
Services Provided:

Mission of Graham's Foundation is to support, comfort, inform, and guide families who experience a premature birth.

Programs:
Source: MHP-Nationwide
Last Updated: 8/19/2020
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Courageous Parent Network
Service Categories:
Address:
Service Categories:
Family Support Services
Email: Connect@courageousparentsnetwork.org
URL: https://courageousparentsnetwork.org/
Services Provided: Primarily online resource that supports families with seriously ill children through:
Education, information, and tools, to address parent's psychological and emotional issues
Community to connect families and minimize isolation
Advocacy for pediatric palliative care
Source: Nationwide Suggest Providers Queue
Last Updated: 4/2/2020
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VFW National Home for Children, Veterans of Foreign Wars of the United States View on Map
3573 South Waverly Road
Eaton Rapids, MI 48827
 Phone: 800-424-8360
Service Categories:
Organization Name: Veterans of Foreign Wars of the United States
(Show others in Organization)
Address:
3573 South Waverly Road
Eaton Rapids, MI 48827
Phone: 800-424-8360
Toll Free Phone: 800-313-4200
Service Categories:
Family Support Services
Email: info@vfwnationalhome.org
URL: https://www.vfwnationalhome.org
Eligibility: Veterans, active duty military, and their families.
Services Provided:

Onsite program: families may live at the National Home for up to 4 years where they will be provided with: housing, education, daycare, basic needs, recreation, and case management.

Remote program: Military and Veteran Family Helpline can be reached at 800-313-4200.
Source: Nationwide Suggest Providers Queue
Last Updated: 10/5/2020
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Parent to Parent USA View on Map
P.O. Box 472
State College, PA 16804
 Phone: 484-272-7368
Service Categories:
Address:
P.O. Box 472
State College, PA 16804
Phone: 484-272-7368
Service Categories:
Family Support Services
National Support Services, Disab/Diag
Email: memberinfo@p2pusa.org
URL: https://www.p2pusa.org/
Services Provided:

Emotional and informational support for families of children who have special needs, Parent to Parent-USA (P2P-USA) is a national nonprofit organization committed to assuring access and quality in Parent to Parent support across the country. This site highlights state's organizations that have parent to parent support as a core program and are committed to implementing evidence-based practices.
Source: MHP-Nationwide
Last Updated: 8/19/2020
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Exceptional Family Member Program, Military Onesource
Phone: 800-342-9647
Service Categories:
Organization Name: Military Onesource
(Show others in Organization)
Address:
Phone: 800-342-9647
Toll Free Phone: 800-342-9647
Service Categories:
Family Support Services
URL: https://www.militaryonesource.mil/family-relationships/special-needs/exceptional-family-member
Eligibility: For military families with a special needs family member
Services Provided:

Online resource: A federal government web site, developed by the Educational Opportunities Directorate with support from Navy Lifelines, provides information for military families with special needs. It is designed to share information with military families on Department of Defense efforts and civilian community programs to support families with special needs within the military community.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/4/2020
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Federation of Families for Children's Mental Health View on Map
9605 Medical Center Dr Suite 280
Rockville, MD 20850
 Phone: 240-403-1901
Service Categories:
Address:
9605 Medical Center Dr Suite 280
Rockville, MD 20850
Phone: 240-403-1901
Fax: 240-403-1909
Service Categories:
Family Support Services
National Support Services, Disab/Diag
URL: https://www.ffcmh.org/
Services Provided: We are a national family-run organization dedicated exclusively to helping children with mental health needs and their families achieve a better quality of life. Provide leadership to develop and sustain a nationwide network of family-run organizations. Focus the passion and cultural diversity of our membership to be a potent force for changing how systems respond to children with mental health needs and their families. Help policy-makers, agencies, and providers become more effective in delivering services and supports that foster healthy emotional development for all children.
Source: MHP-Nationwide
Last Updated: 1/6/2020
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Family Voices View on Map
PO Box 37188
Albuquerque, NM 87176
 Phone: 505-872-4774
Service Categories:
Address:
PO Box 37188
Albuquerque, NM 87176
Phone: 505-872-4774
Toll Free Phone: 888-835-5669
Fax: 505-872-4780
Service Categories:
Family Support Services
National Support Services, Disab/Diag
URL: https://familyvoices.org/
Services Provided: Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
Provider Profiles: Family Voices does not provide financial aid and is not a direct service provider. Contact Family Voices in your state.
Source: MHP-Nationwide
Last Updated: 1/6/2020
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National Resource Center for Supported Decision-Making, Kansas University View on Map
KS
 Phone: 202-448-1448
Service Categories:
Organization Name: Kansas University
(Show others in Organization)
Address:
KS
Phone: 202-448-1448
Service Categories:
Family Support Services
National Support Services, Disab/Diag
Email: JHJP@dcqualitytrust.org
URL: http://supporteddecisionmaking.org/
Eligibility: Persons with Developmental Disabilities and their families
Services Provided: Works to ensure that input is obtained from all relevant stakeholder groups including older adults, people with intellectual and developmental disabilities (I/DD), family members, advocates, professionals and providers.
Features a locator map to identify Developmental Disabilities statutes, presentations, and policy discussions. Resources library: Guardianship and Alternatives, Education and Transition Planning
Provider Profiles: A project of Quality Trust for Individuals with Disabilities, Burton Blatt Institute, Syracuse University, and Life Span Institute, University of Kansas (housing the Beach Center on Disability and the Kansas University Center on Developmental Disabilities)
Source: Medical Home Portal
Last Updated: 6/11/2020
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Sibling Support Project View on Map
6512 23rd Ave NW, Unit 213
Seattle, WA 98117
 Phone: 206-297-6368
Service Categories:
Address:
6512 23rd Ave NW, Unit 213
Seattle, WA 98117
Phone: 206-297-6368
Fax: 509-752-6789
Service Categories:
Family Support Services
National Support Services, Disab/Diag
Email: emilyholl@siblingsupport.org
URL: https://siblingsupport.org/
Services Provided:

A national program dedicated to the interests of brothers and sisters of people with special health and developmental needs.
Provider Profiles:

A Kindering Center program
Source: MHP-Nationwide
Last Updated: 2/2/2021
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National Autism Association
One Park Avenue, Suite 1
Portsmouth, RI 02871
 Phone: 401-293-5551
Service Categories:
Address:
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 401-293-5551
Toll Free Phone: 877-622-2884
Fax: 401-293-5342
Service Categories:
Education About Disabilities/Diagnoses
Family Support Services
National Support Services, Disab/Diag
Email: naa@nationalautism.org
URL: https://nationalautismassociation.org/
Eligibility: Individuals with autism who are non-verbal or minimally verbal and whose communication challenges put them at increased risk of injury or harm. For those in extreme financial need.
Services Provided:

Parent-led non-profit organization that responds to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.

  • Assistive Technology Expense Assistance
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 12/11/2020
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Center for Parent Information and Resources View on Map
35 Halsey Street 4th Floor
Newark, NJ 07102
 Phone: 973-642-8100
Service Categories:
Address:
35 Halsey Street 4th Floor
Newark, NJ 07102
Phone: 973-642-8100
Service Categories:
Family Support Services
National Support Services, Disab/Diag
Email: mrodriguez@spanadvocacy.org
URL: https://www.parentcenterhub.org/
Eligibility: Those who serve families of children with disabilities.
Services Provided: Website serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

  • Planning/Coordinating/Advisory Groups
Source: MHP-Nationwide
Last Updated: 10/13/2020
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Fatty Oxidation Disorders (FOD) Family Support Group View on Map
PO Box 54
Okemos, MI 48805-0054
 Phone: 517-381-1940
Service Categories:
Address:
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Fax: 866-290-5206
Service Categories:
Education About Disabilities/Diagnoses
Family Support Services
URL: https://fodsupport.org/
Services Provided:

Support group for Fatty Oxidation Disorders. Raises funds for Educational and Networking Services and Programs. Medical information, including information about newborn screening, and support resources.
Source: MHP-Nationwide
Last Updated: 8/19/2020
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