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Independent Living

For people with disabilities, the everyday tasks of independent living can present unique challenges, but with sufficient assistance and social supports in place, these individuals can enjoy many of the same opportunities and control in their everyday lives that their non-disabled neighbors, family, and friends take for granted. This page provides brief overviews of several areas to consider with links to pages with more information, local service providers, and other web sites.

Financial Supports

While the name of the state agency that provides funding and support for individuals with disabilities may vary across states, each state has identified agencies that provide supports. Individuals who receive government benefits such as Supplemental Security Income (SSI) may have more available resources for financial assistance and services than those who do not qualify for government benefits. They may also have access to more information about service providers available. Individuals who do not receive government benefits and are employed may access services through community organizations such as independent living centers or councils. For more information, see Disability.gov and National Council on Independent Living (NCIL).

Housing

Community Living Supports

These supports cover a wide range, from dependent-based facilities to a more independent environment where individuals are encouraged to develop necessary skills to become homeowners. Some things to consider are:
  • Level of care;
  • Types of disabilities served at the facility;
  • Private or government financing;
  • Compliance with regulatory agencies;
  • Social, educational, and recreation activities offered;
  • Type, level, and licensing of professional staff;
  • Ability of the individuals to leave the facility for social or employment opportunities:
  • Location in the community or distance from family and relatives; and
  • the general feel of the facility (like a hospital or a home).
State disabiliy agencies can provide information about options in your state and community. For more information: see all Adult Day Programs services providers (23) in our database, see all Group Homes services providers (38) in our database, and see all Independent Living services providers (102) in our database.

Home-Ownership/Renting

Today, people with disabilities have many options for owning their own home, but it may take time, persistence, and patience to realize this goal. Many of the available resources have long waiting lists for housing services. Resources to facilitate home ownership include: housing authorities who can provide rental subsidies; community development agencies; resources for making a home accessible; and financial assistance and savings programs. For more information: see all State Disability Agencies services providers (50) in our database and see all Housing, Other services providers (144) in our database.

Transportation

Individuals with a disability have many transportation options, including public transportation, private services, or obtaining a driver's license. Whether mobility is achieved through accessing public transportation, using private services, or obtaining a driver's license will depend on the desires and abilities of each individual. For more information, see Transportation - Where's My Ride.

Money Management

Many individuals with disabilities can learn to manage their own money and there are many options for those who need additional instruction and help. Money Management is a learned set of skills that encompassess many topics, including: identifying the value of coins and paper money, making change, managing income from employment or programs like SSI, paying bills, writing checks, saving money, and balancing bank accounts. Budgeting income and expenses, handling credit cards, applying for loans, and investing for retirement are more complex skills that many adults struggle with but can be learned with more effort. For youth who are still in the school system, basic money management skills can be included in their Individualized Education Plan (IEP). There are also community-based resources such as independent living centers and financial counseling organizations that teach money management skills. If an individual is in a supported living situation, money management skills can be provided and/or taught within that environment. For individuals with complex disabilities, a fiscal agent can manage their money. For more information: see all Financial Counseling services providers (42) in our database.

Employment

If employment is an option, government agencies and community organizations offer services and programs to help prepare young adults for jobs. For more information, see Employment/Daytime Activities.

Social and Recreation

Many people with disabilities have difficulty engaging in social opportunities outside of the home. However, it is important for young adults to have social outlets in areas of their interests e.g. arts, crafts, dances and recreational pursuits. For more information, see Recreation Activities and Social Opportunities.

Sexuality

If we accept that sexual expression is a natural and important part of human life, then perceptions that deny sexuality for people with disabilities deny a basic right of expression. The perception of people with disabilities as non-sexual can present a barrier to safe sex education, both for health care workers who may be influenced by these views and for people with disabilities themselves in terms of gaining access to information and acceptance as sexual beings. For more information, see Healthy Relationships.

Spirituality

For special needs youth seeking increasing independence from family, spirituality may become more important, whether or not it is connected with any particular religion. For information, see Spiritual Needs.

Guardianship

When a child turns 18, he or she is considered a legal adult, which brings with it the rights, responsibilities and consequences of their choices. For a child whose disability renders him/her unable to make decisions in his/her own best interest, parents should consider applying for guardianship when the young adult is approaching 18. Parents do not automatically remain the child's natural guardian. For more information, see Guardianship/Estate Planning.

Health Care Funding

Continuing health care coverage is essential for those with special needs. Some individuals may continue indefinitely on their parents' insurance policy. Others may qualify for Medicaid, Medicaid D (disability) or insurance from their employer. For more information, contact your state Medicaid agency. For more information see Health Insurance/Financial Aids.

Personal Needs

Personal needs can encompass independent living supports such as transportation, skill training, job coaches, and personal assistants for completing activities of daily living. Independent living centers, state government services, and community organizations are available resources to help identify providers for the spectrum of personal needs. For more information: see all Independent Living services providers (102) in our database, see all Vocational Education services providers (180) in our database, and see all State Disability Agencies services providers (50) in our database.

Resources

Information & Support

For Parents and Patients

Utah 2-1-1
A free information and referral line for health, human and community services. 2-1-1 provides information and referral on topics such as emergency food pantries, rental assistance, public health clinics, child care resources, support groups, legal aid, and a variety of nonprofit and governmental agencies. Call for quick answers. The online directory provides anytime access to the same information. Confidential and free.

American Bar Association Commission on Mental and Physical Disability Law
Provides information on all aspects of the Americans with Disabilities Act, the Family and Medical Leave Act, and related legislation, including caregiver rights.

Disability Law Center, Utah
A nonprofit organization designated by the Governor to protect the rights of people with disabilities in Utah. Mission: to enforce and strengthen laws that protect the opportunities, choices and legal rights of people with disabilities in Utah.

National Council on Independent Living (NCIL)
Provides information and advocacy for independent living with links to locate state councils and local centers.

Utah Statewide Independent Living Council (USILC)
Non-profit organization that promotes full inclusion, independence, and empowerment of people with disabilities through advocacy/systems change, planning/organization, education, networking, resource development and independent living service enhancement.

Utah Assistive Technology Program (UATP)
Nonprofit organization at Utah State University located at the Center for Persons with Disabilities (CPD). In coordination with community organizations and others who provide independence-related support to individuals with disabilities, they provide Assistive Technology devices and services, and train university students, parents, children with disabilities and professional service providers about AT.

Utah Center for Assistive Technology (UCAT)
Offering information and technical services to help people identify and obtain the technology that will help them become more independent in their lives. Augmentative communication, bicycle, steering wheel, and wheelchair assistance: assessment and cost estimate. Utah Augmentative Alternative Communication and Technology Teams evaluate children for assistive technology needs for school.

Division of Service for People with Disabilities (DSPD)
Provides programs and services for people with disabilities including community living, day services, supported employment services, and other services.

Center for Parent Information and Resources (DOE)
A large resource library related to children with disabilities. Parent Centers in every state provide training to parents of children with disabilities. Lists local conferences, support groups, advocacy tips, and suggestions for finding schools and other local services; Department of Education, Office of Special Education.

Utah Parent Center
A non-profit organization that provides training, information, referral, and assistance to parents of children and youth with all disabilities including physical, mental, hearing, vision, learning, behavioral, and emotional. Staff consists primarily of parents of children and youth with disabilities.

Utah School for the Deaf and the Blind
Information about programs including programs for infants and toddlers, school-age students, and residential services. Information about the Braille Literacy Advisory Committee, school calendar, newsletters and more.

Vocational Rehabilitation, Utah
Assists and empowers eligible individuals with disabilities to achieve and maintain meaningful employment.

Disability.gov
Comprehensive federal website of disability-related government resources with links to state information: Benefits, Civil Rights, Community Life, Education, Emergency Preparedness, Employment, Health, Housing, Technology, Transportation.

US Department of Transportation
Provides information for travelers. Hosts a Toll Free Hotline for air travelers with disabilities. Hotline Duty Officers provide general information about the rights of air travelers with disabilities. For information about the rights of persons with disabilities in air travel, or for help in resolving disability-related air travel problems, visit the web site at http://airconsumer.ost.dot.gov/hotline.htm, or call the Hotline at: 1-800-778-4838.

Keeping It Real: How to Get the Supports You Need for the Life You Want
This curriculum supports students as the transition from high school to adulthood and provides information and tools relating to transition; self-assessment; supports; employment and careers; education and training; living arrangements, recreation and leisure; and resources; from the University of Medicine and Dentistry of New Jersey.

Youth Leadership Toolkit
Guide book and DVD videos for youth/young adults, parents, medical providers, and other professionals with tips from young adults to assist in transitioning to adulthood. Includes transportation, finding adult health care, healthy relationships, employment/volunteering, self-advocacy and independent living. Developed by Independent Living Research Utilization (ILRU) in collaboration with the Center for Persons with Disabilities and the Becoming Leaders for Tomorrow Project.

Transition Handbook: From 'No' Where to 'Know' Where (PDF Document 1.1 MB)
This handbook, from the Utah Parent Center, is designed for parents of children with disabilities to help them be active participants in developing transition goals and activities as their children transition to adulthood and includes information about steps to transition, graduation, laws, roles of players, transition planning, employment, training, independent living, timelines, advocacy, SSI, health care, guardianship, estate planning, and a directory of related Utah organizations.

Life Map 14-16 Year Old (PDF Document 34 KB)
A self-assessment for the young person that covers staying healthy, managing healthcare, independence, emotional health, and school & work; from Kentucky Cabinet for Health Services.

Youth Transition Plan (PDF Document 97 KB)
A self assessment for the young person that covers health, daily living, education & employment, living arrangements, transportation, and social; from Healthy Transition New Mexico.

Youth Transition Survey (Word Document 61 KB)
A self assessment for the young person that covers education & employment, IEPs, health, time management, relationships, communication, independent living, money management, hygiene, transportation and more; from Healthy and Ready to Work.

Competencies for Young People Transitioning (Word Document 24 KB)
A suggested list of competencies that young adults should have as they transition to post-secondary school or work. Topics include health condition; medical providers; insurance, independent living, recreation, and other general skills from the Kentucky TEACH Project.

Systematic Transition Plan (PDF Document 76 KB)
A sample transition plan for collecting information about providers, skills, and goals. See the Word version for editing for personal use.

Living Away From Home (PDF Document 37 KB)
This handout provides brief tips for young adults as they consider living on their own; from the Kentucky Commission for Children with Special Health Care Needs.

Services

Adult Day Programs

See all Adult Day Programs services providers (23) in our database.

Career Counseling

See all Career Counseling services providers (117) in our database.

College Disability Centers

See all College Disability Centers services providers (17) in our database.

Disability Employment

See all Disability Employment services providers (172) in our database.

Disability Transportation

See all Disability Transportation services providers (20) in our database.

Financial Counseling

See all Financial Counseling services providers (42) in our database.

Group Homes

See all Group Homes services providers (38) in our database.

Housing, Other

See all Housing, Other services providers (144) in our database.

Independent Living

See all Independent Living services providers (102) in our database.

Local Support Groups, Disability/Diag

See all Local Support Groups, Disability/Diag services providers (174) in our database.

Residential Services, Disability

See all Residential Services, Disability services providers (47) in our database.

State Disability Agencies

See all State Disability Agencies services providers (50) in our database.

Vocational Education

See all Vocational Education services providers (180) in our database.

For other services related to this condition, browse our Services categories or search our database.

Authors

Contributing Authors: Robin Pratt - 12/2005
Barbara Ward, RN BS - 12/2005
Gina Pola-Money - 12/2005
Joyce Dolcourt - 12/2005
Kristine Ferguson - 12/2005
Teresa Such-Neibar, DO - 12/2005
Lynn Foxx Pease - 12/2005
Helen Post - 12/2005
Roz Welch - 12/2005
Reviewing Author: Alfred Romeo, RN, PhD - 11/2008
Content Last Updated: 12/2008

Funding/Support

Thank you to the Utah Medical Home Young Adult Advisory Committee for reviewing this section.