- What is traumatic brain injury and what causes it?
- What are the symptoms of traumatic brain injury?
- How is it diagnosed?
- What is the prognosis?
- What is the risk for other family members or future babies?
- What treatments/therapies/medications are recommended or available?
- How will my child and our family be impacted?
- Our child's doctors told us that it would be years before we would know how our toddler would recover from his fall. Why can't they tell us now?
Our child's doctors told us that it would be years before we would know how our toddler would recover from his fall. Why can't they tell us now?
Brain Injury Association of America
Links to resources, publications, and information about policy/legislation and state chapters.
Brain Injury Alliance of Utah
Education and support for the prevention and recovery of brain injury. Lists services (support groups, helpline, community education, conferences, legislative liaisons) and offers family education (simple definitions, a map of the brain with explanations of function, consequences of injury and more).
Q&As about Pediatric TBIs (NRC)
Answers for patients, parents, and families to questions about basic problems and special issues after brain injury; National Resource Center for Traumatic Brain Injury.
TBI Resource Guide (CSN)
Comprehensive list of national , informational, educational, and organizational resources related to traumatic brain injury; Children's Safety Network.
TBI Resources for Educators (USOE)
Presentations, reports, and guides to provide strategies in working with students with traumatic brain injury; Utah State Office of Education.
Traumatic Brain Injury (CDC)
Educational initiatives and campaigns for clinicians, parents, educators, coaches, and individuals including children with TBI. Free, downloadable materials and fact sheets; Centers for Disease Control and Prevention.
Traumatic Brain Injury (NINDS)
Overview and links to publications and relevant organizations - not pediatric-specific; National Institute of Neurological Disorders and Stroke.
Traumatic Brain Injury (NICHCY)
Parent-focused page about TBI, includes information about education; National Dissemination Center for Children with Disabilities.
National Resource Center for Traumatic Brain Injury
Practical information for professionals, persons with brain injury, and family members.
Family Functioning Following Pediatric Traumatic Brain Injury ( 80 KB)
Information about family adaption after TBI and characteristics of healthy families, re-entry into community and school, role of the pediatrician, and family functioning research; Brain Injury Association of Washington.
Pediatric Neuropsychology: A Guide for Parents ( 456 KB)
Describes pediatric neuropsychology, how it differs from a school psychological assessment, reasons for referral, what is assessed, what it will tell you about your child, and how to prepare for the test.
Types of Memory ( 59 KB)
A five-page handout developed by Dr. Glen Johnson, Clinical Neuropsychologist, that describes the types of memory, things that affect memory, and tips for improving memory.
Fatigue ( 41 KB)
Courtesy of Dr. Glen Johnson, Clinical Neuropsychologist, this handout describes fatigue and ways to adjust to the fatigue factor.
Traumatic Brain Injury (MedlinePlus)
Offers an overview and an extensive compilation of links to reliable web sites and organizations related to TBI; National Library of Medicine and National Institutes of Health.
Brainline Kids – Helping Kids with Brain Injury
BrainLine Kids, a feature of Brainline.org, provides information about children ages birth through 22 years who are affected by Traumatic Brain Injury.
Abusive Head Trauma / Shaken Baby Syndrome (Nemours)
Signs, symptoms, outcomes, and prevention of abusive head trauma/shaken baby syndrome; KidsHealth.
Nonprofit organization offering services for individuals with disabilities and their families. Primary services include medical rehabilitation, early intervention, physical and occupational therapy, speech and hearing therapy, child care, recreation, and transition.
When your Child is in the Hospital
Information about TBI specific to the Boston area. Good tools/resources for families in any state; Children’s Hospital, Boston.
Pressure Ulcer Resource Guide (PressureUlcer.net)
Information for families and caregivers about pressure ulcer types, causes, treatments, preventions, and remedies.
Brain Injury: The ABC Years ( 90 KB)
According to the Centers for Disease Control and Prevention (CDC), an estimated 5.3 million Americans currently live with disabilities resulting from brain injuries. A publication of the Brain Injury Association of America.
Infant Head Injury
Any kind of head injury can be scary, but when the injured is a young child or baby, it becomes even harder to assess the damage.
Traumatic Brain Injury, Susan's Story (NICHCY)
Explanation of traumatic brain injury, tips for parents and teachers, and a listing of resources and organizations; National Dissemination Center for Children with Disabilities.
The Road to Rehabilitation Series (BIAUSA) ( 758 KB)
Eight articles (total 80 pages) for TBI patients and families about dealing with pain, headaches, cognition and memory, behavior changes, speech and language, drug therapy, spasticity, and concussion/mild brain injury; Brain Injury Association of America.
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Brain Injuries in Children (clinicaltrials.gov)
Listing of clinical trials related to brain injuries in children.
|Content Last Updated:||1/2016|