- What is Angelman syndrome and what causes it?
- What are the symptoms of Angelman syndrome?
- How is it diagnosed?
- What is the prognosis?
- What is the risk for other family members or future babies?
- What treatments/therapies/medications are recommended or available?
- How will my child and our family be impacted?
- My child's teacher says that my child is having seizures at school but her neurologist is unimpressed and does not yet want to start medication. Why?
- We don't have insurance and our child needs a second, very expensive medication for his seizures. What can we do?
My child's teacher says that my child is having seizures at school but her neurologist is unimpressed and does not yet want to start medication. Why?
We don't have insurance and our child needs a second, very expensive medication for his seizures. What can we do?
Madison's Foundation - Support for Parents
Information for parents about rare, life-threatening diseases in children, and connections to other parents fighting the same diseases.
Angelman Syndrome Forum
A forum of general and specific topics related to AS.
A national organization that provides information about epilepsy; programs to improve epilepsy treatment; materials to assist in helping people with epilepsy find jobs; activities in schools to educate the public; activities to educate policymakers; funds for research; and news about conferences and other items of interest.
Angelman Syndrome Families of Utah
A blog that helps families of children with Angelman syndrome find resources and support.
Angelman Syndrome Foundation
Information, resources, and discussion forums for individuals with AS and their families. This organization also raises money for research on AS.
Angelman Syndrome (Genetics Home Reference)
Excellent, detailed review of condition for patients and families; U.S. National Library of Medicine.
Angelman Syndrome (Emory University)
Information about the genetics of Angelman and Prader-Willi syndromes.
Prescription Assistance Programs (American Epilepsy Society)
Information and links to various prescription assistance programs.
Angelman Syndrome (Orphanet)
Information and links about AS.
Angelman Syndrome (Mayo Clinic)
Information about symptoms, causes, risk factors, complications, tests, treatment, and coping strategies.
American Epilepsy Society
Information and resources regarding epilepsy for professionals and families.
Genetics in Primary Care Institute (AAP)
The goal of this site is to increase collaboration in the care of children with known or suspected genetic disorders. Includes health supervision guidelines and other useful resources; a collaboration among the Health Resources & Services Administration, the Maternal and Child Health Bureau, and the American Academy of Pediatrics.
See all Developmental Pediatrics services providers (5) in our database.
See all Early Intervention Programs services providers (52) in our database.
See all Occupational Therapy, Pediatric services providers (42) in our database.
See all Pediatric Gastroenterology services providers (3) in our database.
See all Pediatric Neurology services providers (10) in our database.
See all Pediatric Ophthalmology services providers (8) in our database.
See all Pediatric Orthopedics services providers (16) in our database.
See all Pediatric Sleep Medicine services providers (3) in our database.
See all Physical Therapy services providers (62) in our database.
See all Preschool/Early Childhood Education services providers (78) in our database.
See all Psychologist, Child-18 services providers (150) in our database.
See all School Districts services providers (46) in our database.
See all Speech/Language Therapy services providers (80) in our database.
For other services related to this condition, browse our Services categories or search our database.
|Content Last Updated:||10/2015|