- Will they be independent as an adult or will they need a guardian to take care of them and assist them through adulthood?
- How does the Guardianship process work?
- Should they have a Special Needs Trust to protect money for their future needs?
- What types of accounts can they save money with and not have it affect benefits such as SSI and Medicaid?
A Family Handbook on Future Planning (ARC)
Helps families develop a plan that provides personal, financial, and legal protections for their children with cognitive, intellectual, or developmental disabilities after the parents either die or can no longer provide care; The Arc.
Special Needs Alliance
The Special Needs Alliance is a national, nonprofit organization of member attorneys who work regularly with public benefits, guardianships/ conservatorships, planning for disabilities and special education issues, much of it voluntary.
Guardianship Associates of Utah
Provides information and referral service for guardianship issues. Written materials, kits, and presentations are available; can help families obtain guardianship on an incapacitated family member; may be able to act as a legal guardian for incapacitated persons who have no family able to do so.
Office of Public Guardian, Utah
Provides public guardianship and conservatorship services to incapacitated adults. 801-538-8255.
Disability Law Center, Utah
A nonprofit organization designated by the Governor to protect the rights of people with disabilities in Utah. Mission: to enforce and strengthen laws that protect the opportunities, choices and legal rights of people with disabilities in Utah.
National Guardianship Association
The website is an excellent source of information on the rights and responsibilities of the incapacitated individual, as well as the guardian. The site also has resources and provides educational training and network opportunities for guardians.
American Bar Association Commission on Mental and Physical Disability Law
Provides information on all aspects of the Americans with Disabilities Act, the Family and Medical Leave Act, and related legislation, including caregiver rights.
Special Needs Trust
A comprehensive discussion of special needs trusts from the National Institute on Life Planning for Persons with Disabilities.
Financial Planning, Exceptional Parent Magazine
An in-depth resource that provides information about trusts, the legal side of financial strategies, divorce, and more. Exceptional Parent Magazine, search "financial."
Sound Financial Strategies ()
Provides information about special needs trusts including trustees and oversight.
Information on estate planning and the disabled from the University of Pittsburgh School of Law.