Works to "prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.”

Addresses the health, safety, and well-being of all infants, children, adolescents, and young adults. See also Prevention of Pediatric Overweight and Obesity at https://publications.aap.org/pediatrics/article-abstract/112/2/424/63348/Prevention-of-Pediatric-Overweight-and-Obesity?redirectedFrom=fulltext.

Individuals who are deaf or hard of hearing.

Serves as a resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.

Provides support for parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.

Serves children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Provides comprehensive online information including six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

Find a Provider: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

Tourette Syndrome Centers of Excellence: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.

mental health

Provides public policy and advocacy at the federal, state, and regional levels; education and outreach with screening tools and research; and information and referral services.

Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Provides online support groups and parent community options across the country.

National

Provides mental health information on the following topics: getting help, statistics, clinical trials, outreach, research, opportunities for funding, and labs at NIMH. Provides links to descriptions of clinical trials, related to numerous mental health conditions, including ADHD, anxiety, and depression.

Differs by specific pharmaceutical company.

Provides a list of pharmaceutical companies that offer medications through medication assistance programs to low-income individuals and families.

Internet-based resource

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities. Provides the Drooling Impact Scale at https://www.aacpdm.org/UserFiles/file/The-Drooling-Impact-Scale.pdf.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.

Promotes and funds research, provides education, and offers support to enhance the quality of life of those impacted by Prader-Willi syndrome. 

Helping mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.

Provides information about home care and hospice including patient rights, selecting a provider, and legal issues. A locator search feature to help consumers find a local provider.

Works to cure cystic fibrosis and provide all people with CF the opportunity to lead long, fulfilling lives. Conducts research on cystic fibrosis.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.

Individuals affected by relationship abuse.

Provides lifesaving tools and immediate support to enable victims to find safety and live lives free of abuse. Highly trained, experienced advocates offer support, crisis intervention, education, safety planning, and referral services.

Provides Service Dogs to children worldwide. Enriches the lives of children with disabilities by training and placing quality, task-trained service dogs. Provides increased independence for the children, and assistance to their families.

No charge for services.

Provides service and companion dogs to people who have mobility difficulties, type I diabetes, epilepsy, and other medical needs. Provides a Disabilities Awareness Education Program and K-9 Kids Reading Program for school-age children as well as Animal Assisted Therapy services.

Any child with hearing loss between the ages of newborn and twenty years, with financial need, may apply.

Assists children with hearing loss to achieve improved communication. Provides financial assistance for hearing aids, enclosed caption converters for television, tactile units, FM units (into which a hearing aid is plugged for amplification), computers to assist deaf children in communicating, etc.

• The child must be 18 years of age or younger (a person 19–21 may be considered if they are in a child-like mental state).
• The child must be under the care of a physician.
• The request must be clinically relevant to a specific healthcare need of the child.
• There must be no existing insurance coverage for the requested expenses.
• One request per 12 months, per child for a maximum of three times in a child’s lifetime.

Provides pediatric grants that cover a wide variety of clinical, equipment, travel and lodging, and vehicle modification costs related to children's healthcare needs.

People with facial differences and their families

Addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. Annual Family Retreat & Educational Symposium is held each June to provide an opportunity to interact with others who have endured similar experiences.