National Fabry Disease Foundation

Address:
Phone: 800-651-9131
Services Provided: Information about Fabry disease, counseling through the Fabry Family Assistance Program, physician locator, stories, links to publications, videos, books for children, and more.

The National Fabry Disease Foundation (NFDF) organizes the Charles Kleinschmidt Fabry Family Weekend Camp, an annual camp for children ages 6-16 with Fabry Disease and their immediate families. The camp is held annually in September at Victory Junction camp in Randleman, North Carolina. Campers are chosen by an application process. Camp expenses, including airfare, are paid for by NFDF sponsors.
Original Source: MedHome Portal
Last Updated: 4/6/2015