Managing and Coordinating Care

What you will find in the pages of this section

Children and youth with special health care needs often have several health care providers. This section is designed to help parents become a part of their child's medical home team (see About Medical Home). Good communication, record-keeping, and preparing for emergencies are some of the topics covered here. Use the Feedback link at the bottom of the page to let us know what other topics would be useful.
Care Notebook
This page, one of the most visited pages on this web site, has care notebooks and links to more samples to help parents and young adults track their personal information such as medications, appointments, insurance bills, nutrition, surgeries, breathing treatments, and much more. Versions are free to download in Word and PDF, in English and Spanish.
Communication Guide
Communicating well with your medical home will help you learn more about your child's health and be more involved in the choices about your child's care. This page gives tips for ways to talk to health care providers, avoid conflicts, and get what your child needs.
Keeping and Sharing Information
Along with your Care Notebook, there are a number of online systems and networks that can help you and your child's health care providers to meet the best outcome.
Planning for Emergencies
An emergency can happen at home, in school, during vacation, or any place else. This page offers tips to help you be more prepared to face emergencies.
Working with Outside Caregivers
Your child may need care from personal assistants, nurses, therapists, or other providers. This page talks about your rights and responsibilities.

Authors & Reviewers

Initial publication: January 2009; last update/revision: April 2019
Current Authors and Reviewers:
Author: Tina Persels