A medical home is not a house, office, or hospital, but rather an approach to providing comprehensive primary care. In a medical home, a primary care clinician and her/his team work as a team with the family/patient to make sure that the medical and non-medical needs of the child/youth are met. The clinical team can help the family/patient find and arrange specialty care, school services, out-of-home care, family support, and other public and private services that are vital to the total health and well-being of the child and family.

• Accessible
• Continuous
• Comprehensive
• Family-centered
• Coordinated
• Compassionate
• Culturally effective care

Though many uses of the medical home model focus on children and youth with special health care needs (CYSHCN), "every child deserves a Medical Home." AAP Policy Statements ([American: 2004], [Rushton: 2005], [Cooley: 2004], [Council: 2005]) have recognized the role of pediatricians and other primary care clinicians in providing comprehensive care for children with chronic and complex conditions and defined the medical home concept.

Children and Youth with Special Health Care Needs (CYSHCN) are "those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally." [McPherson: 1998] Studies have found the prevalence of children in the United States meeting these criteria to be 12.8% [van: 2004] to 15.6% [Newacheck: 2005]. The National Survey of Children with Special Health Care Needs 2017/2018 found 18.5% of the nation's children met this definition of children with special health care needs. More information about the study and data from each state is at Data Resource Center for Child & Adolescent Health.

Title V funding comes federally from the Health Resources and Services Administration (HRSA) and the Maternal and Child Health Bureau (MCHB). Everystate receives Title V Funding based on their population. Find out more about your state's Title V organization: State Title V Snapshots.

This funding allows states to:

• Assure access to quality health care services.
• Reduce infant mortality.
• Increase regular screenings and follow-up diagnostic care.
• Services for CSHCN.
• Coordinated care for CSHCN.
• Medicaid application assistance through toll-free hotlines.

Information about the medical home concept and related topics is available at the National Center for Medical Home Implementation, sponsored by the American Academy of Pediatrics. The site offers useful information about national and local resources linked to medical home and CYSHCN.

The mission of the Center for Medical Home Improvement is to set up and support networks of parent/professional teams to improve the quality of primary care medical homes for children and youth with special health care needs and their families. Useful tools and resources are available on their web site.