Provides FREE house cleaning to any household with a man, woman, or child battling any type of cancer. Patients are eligible if they are recovering from cancer surgery, in cancer treatment, or in hospice care. 

Apply at https://cleaningforareason.org/patients/

Matches patients with a local cleaning service. Patients may receive one round of services, which is two free home cleanings (one general cleaning per month for up to two months). Service depends on the availability of a local company.

Educates health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain.

Services Include:

• Educational materials about a variety of pain issues
• [https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communications. Access to continuing education opportunities, professional resources, advocacy and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC.

[https://www.nsgc.org/page/find-a-genetic-counselor Find a Genetic Counselor].

The mission of Recovery International is to use the cognitive-behavioral, peer-to-peer, self-help training system developed by Abraham Low, MD, to help individuals gain skills to lead more peaceful and productive lives.

Online Resources Include:

• Local meeting locator

An online resource that supports families with seriously ill children through: Education, information, and tools, to address parent's psychological and emotional issues.
Provides community to connect families and minimize isolation and advocacy for pediatric palliative care.

Online Resources Include:

• [http://www.infanthearing.org/states/index.html information about state EHDI programs]
• Resources for professionals and families.
• Information about national and state legislative efforts.

Families and school personnel (including those in training) who have at least one student with a disability can sign up for free membership.

Provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind.

Services Include:

• On-Demand Accessible Media
• Learning Center and eLearning Resources
• Guidelines for Captioning and Describing Media

Provides resources for advocacy and research as well as resources for professionals, caregivers, and others.

Provides resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.

Provides programs that develop future leaders and strengthen inclusive communities for people with disabilities.

Services Include:

• Building Exceptional Leaders
• Honoring Exceptional Leaders
• Supporting Inclusive Communities

Provides patient, family, and public education, to advocate for early diagnoses, and to promote and fund medical research for treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS).

Offers information for patients and families, including online support groups.

Provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Offers support groups for families, friends, clinicians, researchers and others whose lives have been touched by a Fatty Acid Oxidation disorder. Provides education, grief support, and networking forums.

Helps patients and families affected by Homocystinuria (HCU), Methylenetetra hydrofolate reductase (MTHFR) and selected cobalamin deficiencies by providing educational resources and community connections.

Provides information about PKU, research, advocacy, and resources.

Services Include:

• Find a PKU Clinic by state, zip code, or map.
• PKU Guide for New Parents
• PKU Patient Registry
• Clinical Trial Locator
• Support Programs
• Educational Videos
• Insurance Coverage 101
• School Information
• Cooking & Food

Provides guidance and information to families and others affected by urea cycle disorders. Creates a caring community, networking families together for support. Educates healthcare professionals on the identification, diagnosis and treatment of UCD.    

Parents of children in the NICU, anticipating a difficult birth, or transitioning home

Supports, comforts, informs, and guides families who experience a premature birth.

Services Include:

• NICU, transition home, and remembrance care package programs
• Trained preemie parent mentors available 24/7 via email, phone, and text
• MyPreemie, the market-leading app for parents of premature babies
• Online communities with tens of thousands engaged parents making new connections

Helps families before, during, and after a NICU stay and infant loss by providing powerful resources for the whole family, and most importantly, one-on-one mentoring from someone who has been there.

Services Include:

• Peer Support
• Online Community
• Resources (hospital, online, podcast)

Resources to help prepare youths for living on their own.

Services Include:

• Consulting: Ongoing strategic consultation at no cost to child welfare systems and tribes.
• Public Policy: Comprehensive child welfare information to support policymakers
• Research and Analysis: Information to support decision-making, bolster system integration, build capacity, and support sustainability.
• Casey Life Skills: Free practice tool and framework for working with youth in foster care. It assesses independent living skills and provides results instantly. Intended to be done between a youth and their social worker, case manger, or other mentor.
• Direct Services: Operates nine field offices in five states (Arizona, California, Idaho, Texas, and Washington) that provide direct services to urban, suburban, and rural communities.

Provides foster, kinship and adoptive families with opportunities for advocacy, networking, and education.