Condition-Specific Transition Tools (ACP)
A set of guides and tools for clinicians for transitioning patients with conditions like intellectual/developmental disabilities, congenital heart disease, type 1 diabetes, Turner syndrome, sickle cell disease, end-stage renal disease, juvenile idiopathic arthritis, and others; from the American College of Physicians, in collaboration with the American Academy of Pediatrics.
Center for Health Care Transition Improvement, a national resource for improving health care transition supports for youth moving into the adult health care system, for health care professionals, families, youth, and state policy makers. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.
Healthcare for Adults with Intellectual & Developmental Disabilities - Toolkit for Primary Care Providers (Vanderbilt)
Online compilation of knowledge resources, checklists, "Health Watch Tables" for autism, Down syndrome, fragile X, Prader-Willi, Williams syndrome, and 22q11.2 deletion syndrome, and other resources to support the adult primary care (and transition thereto) of individuals with developmental and intellectual disabilities; from the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
Coding for Transition-related Services (GotTransition.org) ( 642 KB)
Detailed overview of CPT coding options for the provision of transition-related services, from GotTransition.org.
Transitions (National Center for Medical Home Implementation)
Information for clinicians about transitioning pediatric patients to adult health care. Includes links to AAP guidance, videos, tools, and resources
Competencies for Young People Transitioning ( 24 KB)
A suggested list of competencies that young adults should have as they transition to post-secondary school or work. Topics include health condition; medical providers; insurance, independent living, recreation, and other general skills from the Kentucky TEACH Project.
Transition Timeline, Shriners ( 40 KB)
This sample transition assessment form covers ages 16 to 20 and topics including school, work, health care, transportation, and more from Shriners Hospitals for Children/Twin Cities.
Parent's/Caregiver's Transition Worksheet ( 52 KB)
A worksheet to help parents and caregivers determine strengths and needs to help their youth transition to adulthood; from the Utah Family Voices Health Information & Support Center.
Transition Referral Form ( 22 KB)
Sample form to track referrals to other agencies providing transition services. From the Utah Collaborative Medical Home Project.
Utah's Transition Action Guide: for Students with Disabilities and Agencies ( 151 KB)
Provides color-coded lists of what to expect from and responsibilities of different groups (students, teachers, agencies) involved in high-school transition; developed by the Utah Employment Partnership and adapted from the Wisconsin Transition Action Guide for Post-School Planning.
Life Span Skills for Health ( 95 KB)
For providers, this list includes skills that youth and young adults should develop as they change roles and take charge of their own healthcare, from understanding their condition to managing appointments and medications. From Healthy and Ready to Work.
Checklist for Transition ( 96 KB)
For providers, this list includes knowledge and skills that practices should develop in order to support youth as they transition to adulthood including policies; family and youth involvement; screening; and more. From Healthy and Ready to Work.
A Guide for Health Care Providers: Transition Planning for Adolescents with Special Health Care Needs and Disabilities
Information and checklist for providers to help youth transition to adulthood. Includes the topics of health care, law, education, employment, recreation, and more. Companion manual for families and teens available; produced by the Institute for Community Inclusion at Children's Hospital, Boston 2000.
Transition Resources for Providers, University of Illinois
Division of Specialized Care for Children (DSCC), from the University of Illinois at Chicago, provides transition information from childhood to adulthood including fact sheets, tools, transition timelines, and other materials for providers.
Adolescent Health Transition Project, University of Washington
A resource for adolescents with special health care needs, chronic illnesses, physical or developmental disabilities. Center on Human Development and Disability (CHDD) at the University of Washington.
From the University of Kansas, Department of Special Education, this site provides information, resources, and training for providers to help them help youth transition to adulthood. Training includes best practices, cultural diversity, assessment, working with families and more.
Help Me Grow Utah
Information service that connects families of young children to community resources; developmental screening tool provided to parents; and monitoring of referrals to resources. Services are available in English and Spanish. Help Me Grow’s target population is children ages 0-8 years-old who live in Utah.
Introduction. Improving transition for adolescents with special health care needs from pediatric to adult-centered health care.
Pediatrics. 2002;110(6 Pt 2):1301-3. PubMed abstract
Cooley WC, Sagerman PJ.
Supporting the health care transition from adolescence to adulthood in the medical home.
Pediatrics. 2011;128(1):182-200. PubMed abstract
|Author:||Alfred Romeo, RN, PhD - 1/2009|
|Content Last Updated:||9/2015|