Provides information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.

Provides research.

An online database for pediatric genetics centers, containing the locations of genetics clinics that have requested to be listed.
Check Pediatric Genetics under "Search by genetic service type(s)”.

American College of Medical Genetics and Genomics (ACMG)

The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communications. Access to continuing education opportunities, professional resources, advocacy and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC.

[https://www.nsgc.org/page/find-a-genetic-counselor Find a Genetic Counselor].

Tests kits can be ordered by individuals or a medical provider. Accepts private pay. Will bill to insurance if requested and Patient Assistance is available by application.

Provides a variety of in-home saliva genetic testing options.

Provides telephone-based genetic counseling services to patients, clinical providers and organizations in all 50 states.

Provides telephone-based genetic counseling services.