Parent Project Muscular Dystrophy

1012 14th Street NW, Suite 500
Washington, DC 20005
Phone: 201-250-8440
Toll Free Phone: 800-714-5437
Fax: 201-250-8435
Services Provided:

Provides information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.

Source: MHP-Nationwide
Last Updated: 1/20/2022