- What is leukodystrophy and what causes it?
- What are the symptoms of leukodystrophy?
- How it is diagnosed?
- What is the prognosis?
- What is the risk for other family members or future babies?
- What treatments/therapies/medications are recommended or available?
- How will my child and our family be impacted?
- My child has an unknown type of leukodystrophy and I am pregnant with another child. What are the chances that this child will also have the leukodystrophy?
My child has an unknown type of leukodystrophy and I am pregnant with another child. What are the chances that this child will also have the leukodystrophy?
United Leukodystrophy Foundation Support Community (inspire.com)
An online support community providing opportunities to connect and communicate with other families of children with leukodystrophies; free sign-up required.
Metachromatic Leukodystrophy (MLD Foundation)
Provides information and support to families of children diagnosed with metachromatic leukodystrophy.
Offers a brief description of leukodystrophies and numerous links to general information about specific leukodystrophies; from the National Library of Medicine.
Leukodystrophy, Frequently Asked Questions (ULF)
Answers to frequently asked questions about leukodystrophies; United Leukodystrophy Foundation.
United Leukodystrophy Foundation (ULF)
Non-profit organization that offers information, lists of resources, and notices of conferences and other events.
Known Leukodystrophies (ULF)
A listing of known leukodystrophies, many with links to additional information; United Leukodystrophy Foundation.
Leukodystrophies (Genetics Home Reference)
Excellent, detailed review of condition for patients and families; sponsored by the U.S. National Library of Medicine.
Leukodystrophy Information Page (NINDS)
Contains a brief overview and links to clinical trials and other organizations; National Institute of Neurological Disorders and Stroke.
Overview of information on leukodystrophy. If registered, you will have access to detailed reports (a limited number of reports are free to those who register); National Organization for Rare Disorders.
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For other services related to this condition, browse our Services categories or search our database.
|Author:||Lynne M Kerr, MD, PhD - 10/2012|
|Content Last Updated:||11/2015|
Pagon RA, Adam MP, Ardinger HH, et al.
GeneReviews® ; (2014) http://www.ncbi.nlm.nih.gov/books/NBK184570/. Accessed on October 2015.