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Respite Care

Respite care through the Division of Services for People with Disabilities (DSPD)

In Utah, state funded respite care through the Division of Services for People with Disabilities (DSPD) may include funding home respite through an agency or providing funding to a family who desires to hire their own respite worker. Applications are taken through DSPD services. Unfortunately, waiting lists are very long, although some adjustments are made for critical needs. Families should get on the waiting list early even if the need for respite care has yet to be recognized.

To qualify for funded respite care, the family must qualify for Medicaid, either financially or through a waiver. It is important to understand that none of the parent's income or assets are counted in considering eligibility for a waiver with regards to a minor. There are two types of waivers for children with special health care needs. One is for children with developmental disablities and/or mental retardation who would otherwise require the level of care provided in an intermediate care facility. There is also a waiver for technology dependent children (0-21 years old, technology includes: mechanical ventilation, tracheostomy-based respiratory support, c-pap, bi-pap, and a central venous catheter for TPN or IV therapy). Under these waiver programs, eligible children receive an array of supports not ordinarily covered by medicaid including skilled nursing respite. They are administered through the Children with Special Health Care Needs Community Based Services Program (801)584-8505 or 1-800-829-8200.

Respitality: A Night Out for Parents Parents are offered hotel accomodations, dinner, and child care for a 24 hour getaway through the generosity of the Kennecott Corporation, the Church of Jesus Christ of Latter-day Saints Foundation, the Radisson and other local hotels, restaurants and public donations.

COSH: Private Pay Respite Care Community Oriented Services for the Handicapped. COSH offers hourly and daily respite care for both state funded and private pay clients. The cost runs around $13 per hour. COSH offers services in Cache, Box Elder, Weber, Davis, Morgan, Salt Lake, Grand, and San Juan Counties.

Frontline services offers family support services and respite care in Salt Lake, Murray, West Valley, West Jordan, and other communities in the Salt Lake area (would be willing to provide services in Salt Lake County).

Other Options: Develop a Network. The clinician can empower a family to be creative in finding additional solutions such as pairing with another family to trade respite time, cultivating and train several "babysitters" who can be called upon to provide respite, hiring a local teen to be a "helper" who can work alongside the parent. See Cerebral Palsy of Utah/Foundations for Independence.

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Authors

Reviewing Author: Lynne M Kerr, MD, PhD - 10/2008
Content Last Updated: 6/2011