NF1: Recreation Needs

Some individuals with neurofibromatosis type 1 (NF1) have difficulty with coordination, which may impact their involvement in sporting activities. We recommend that they be encouraged to continue with various activities to maintain a healthy lifestyle.

Resources

Information & Support

The following charitable organizations aim to creat a community of support for individuals with NF.

For Parents and Patients

Neurofibromatosis, Inc.
NF, Inc. is a national organization whose mission is to create a community of support for those affected by NF through education, advocacy, coalitions, raising public awareness, and supporting research for treatments and a cure; sponsor a limited number of local groups.

Children's Tumor Foundation
The Children’s Tumor Foundation (CTF) is a non-profit medical foundation dedicated to improving the health and well-being of individuals and families affected by the neurofibromatoses. The "Find a Doctor" tab links to information about NF clinics and specialists across the country.

Services for Patients & Families Nationwide (NW)

For services not listed above, browse our Services categories or search our database.

* number of provider listings may vary by how states categorize services, whether providers are listed by organization or individual, how services are organized in the state, and other factors; Nationwide (NW) providers are generally limited to web-based services, provider locator services, and organizations that serve children from across the nation.

Authors & Reviewers

Last update/revision: June 2013
Current Authors and Reviewers:
Author: David A. Stevenson, MD
Reviewers: Karin Dent, MS, CGC
David Viskochil, MD, Ph.D.