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NF1: Growth

Individuals with neurofibromatosis type 1 are generally shorter than the general population with a larger head (relative macrocephaly). Specific growth charts for NF1 individuals are available and can prove useful in differentiating NF1-related issues from general pediatric causes of short stature. [Friedman: 1999] [Clementi: 1999]

Resources

Tools

The growth charts below are for children with neurofibromatosis type 1 and are adapted from [Szudek: 2000].

Boys with NF1 - Head Growth 1-36 months (PDF Document 95 KB)

Boys with NF1 - Head Growth 2-18 years (PDF Document 117 KB)

Boys with NF1 - Height Growth 2-18 years (PDF Document 113 KB)

Boys with NF1 - Length Growth 1-36 months (PDF Document 97 KB)

Boys with NF1 - OFC/Ht 2-18 years (PDF Document 113 KB)

Boys with NF1 - Weight Growth 1-36 months (PDF Document 97 KB)

Boys with NF1 - Weight Growth 2-18 years (PDF Document 104 KB)

Females with NF1 - BMI 2-40 years (PDF Document 117 KB)

Full Set of Growth Charts for Boys and Girls with NF1 (PDF Document 1.5 MB)

Girls with NF1 - Head Growth 1-36 months (PDF Document 95 KB)

Girls with NF1 - Head Growth 2-18 years (PDF Document 108 KB)

Girls with NF1 - Height Growth 2-18 years (PDF Document 106 KB)

Girls with NF1 - Length Growth 1-36 months (PDF Document 94 KB)

Girls with NF1 - OFC/Ht 2-18 years (PDF Document 110 KB)

Girls with NF1 - Weight Growth 1-36 months (PDF Document 95 KB)

Girls with NF1 - Weight Growth 2-18 years (PDF Document 101 KB)

Males with NF1 - BMI 2-40 years (PDF Document 109 KB)

Authors & Reviewers

Initial publication: September 2008; last update/revision: February 2009
Current Authors and Reviewers:
Author: David A. Stevenson, MD
Reviewers: Karin Dent, MS, CGC
David Viskochil, MD, Ph.D.

Page Bibliography

Clementi M, Milani S, Mammi I, Boni S, Monciotti C, Tenconi R.
Neurofibromatosis type 1 growth charts.
Am J Med Genet. 1999;87(4):317-323. PubMed abstract
Article reports growth differences in NF1.

Friedman JM, Gutmann DH, MacCollin M, Riccardi VM.
Neurofibromatosis: Phenotype, Natural History, and Pathogenesis.
3rd ed. Baltimore, MD: Johns Hopkins University Press; 1999. 080186285X
Excellent overview of NF1 by some of the world experts on NF1.

Szudek J, Birch P, Friedman JM.
Growth charts for young children with neurofibromatosis 1 (NF1).
Am J Med Genet. 2000;92(3):224-8. PubMed abstract
Contains growth charts specific for NF1.