Keeping children with seizures safer through activity restrictions, communication with other caregivers, and helmet use

Losing consciousness or physical control while having a seizure can be dangerous. For example, a child could drown while taking a bath or swimming, or they could crash if driving a car. “Activity restrictions” are recommended to keep kids safe from these horrible possible outcomes. Yet, restricting activities and navigating the balance between independence and safety, particularly for kids, can be difficult.

You can talk to your child’s doctor about the likelihood of a future seizure and the risk of injury. Explore alternatives for activities and the need for supervision, particularly in the following circumstances:

• Water (baths, pools, lakes, ocean): A young child with seizures should be supervised 1 to 1 by an adult within reaching distance while swimming. Older children/teens may swim with a “buddy” if a lifeguard is present.
• Heights (climbing trees, playground equipment, mountains)
• Using sports equipment that moves (bikes, boards, skis), even if wearing a helmet
• Using fire or equipment that may cause a burning injury (water heaters, cooking equipment, candles)
• Driving: State laws concerning driving with epilepsy vary by state; consult the Division of Motor Vehicles for each state.

Be aware that other people who care for your child (babysitters, family members, friends, teachers, respite workers, etc.) need to know what to do if your child has a seizure, when/how to use their rescue medication if necessary, how closely to monitor them, and how to reach you in an emergency. See Seizure Action Plan (Epilepsy Foundation).

Jim Beckel, The Oklahoman

Children who have frequent seizures, particularly atonic or drop attacks, will sometimes need to wear a special protective helmet to prevent head injury. You may need a referral from the child’s doctor to a rehabilitation program or prosthetics/orthotics specialist to get a fitted helmet, or your doctor’s team may need to write a letter of medical of necessity to help cover the cost of a helmet, but you can buy them online. See How to Choose a Protective Helmet (Epilepsy Foundation)