Resources of the Month 2020

Summaries of 2020 Meetings

UCCCN June 2020 Resources of the Month
Presentation: Discussion about helping families with CYSCHN plan for emergencies, presentation by Tia Dickson about the Utah Emergency Medical Services for Children (EMSC)'s CHIRP program (Children’s Health Information Red Pack).
Cases:Case about a family with a 3 young children, two of whom likely have autism; needs a heavy duty wagon for all 3, with seatbelts/harnesses. Suggestions included the UCAT, Shriners Wheelchair and Carseat services, and SureStop Folding Stroller designed for multiples with special needs. QI win: Pat Rowe said a small team at SelectHealth was able to open up enteral formula policy; it's now much less restrictive.
UCCCN May 2020 Resources of the Month
Presentation: Medical Home Portal custom service provider lists. Demonstrated recent improvements making it easier than ever to create your own list of local providers from scratch, name it and give it a description, make it shareable or private, share it by copying and sending the URL, save it as a PDF to print or email that way, and copy another list and make it your own.
Cases: Case about a baby boy with SMA Type I, born to a mom from Asia on a work Visa that expires in October. The baby is responding to the transfusions. Suggestions for help with immigration: US Citizenship and Immigration Services, Catholic Community Services, Asian Association of Utah, the International Rescue Committee; immigration packet from National Family Voices.
UCCCN April 2020 Resources of the Month
Presentation: Tania Tetz, UDOH, Being an Askable Adult - someone an adolescent trusts, considers to be approachable, makes a space for any questions, a source of information and values. Helps to act as a protective factor. CYSCHN participate in more risky behaviors … substance use, sex at a younger age. A toolkit to help improve communication between adults and adolescents that have IEPs. Also videos and 4 hours of in-person (live online) training. Teachers, paraprofessionals and parents can sign up for in-person. Open to all, but priority is for families with kids with IEPs.
Cases: Case: a family needs a spacer for inhaler; it’s $30 out of pocket. Suggestion to call the SL County Asthma Program - they should be able to provide that for free.
UCCCN February 2020 Resources of the Month
Presentation: Avery Pince-Hyder, Program Manager with the Utah Developmental Disabilities Council, presented on their findings about health access throughout the state, mentioned 3 bills in front of the Utah Legislature this session, and asked for input from the group.
Cases: included an update on transitioning 26 yo young man, now on the wait list (one year) for the UNI HOME program, and an Intermountain patient getting discharged back to home in Vernal; having trouble getting access to formula, oxygen, other needs because of the rural area; it was suggested that they work with the UDOH ISP team there. Also, a request for more Motivational Interviewing training.
UCCCN January 2020 Resources of the Month
Presentations: on Utah asthma programs and resources, including local health departments, home visiting programs, and UPIQ quality improvement options; SPARK for Autism Utah project to gather genetic information from families to further autism research.
Cases: Case about a 14 yr old young man with autism who is self-stimulating, attends an autism school, has both a home and a school ABA provider. Becoming an issue at school. Dr. Carbone suggested a team approach (both ABA providers on the same page with the family). Explore family’s beliefs, becoming a sexual being is normal, how to accommodate so accepted by family, where it’s appropriate.

Authors & Reviewers

Initial publication: February 2019; last update/revision: August 2019
Current Authors and Reviewers:
Author: Mindy Tueller, MS, MCHES