Provides extensive data about CSHCN for the nation and for each state; offered by the Child and Adolescent Health Measurement Initiative (CAHMI).
National Ambulatory Medical Care Survey
A national survey designed to meet the need for objective, reliable information about the provision and use of ambulatory medical care services in the United States. Findings are based on a sample of visits to nonfederally employed office-based physicians who are primarily engaged in direct patient care. Physicians in the specialties of anesthesiology, pathology, and radiology are excluded from the survey. The survey was conducted annually from 1973 to 1981, in 1985, and annually since 1989.
National Hospital Discharge Survey
A national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States. The NHDS collects data from a sample of approximately 270,000 inpatient records acquired from a national sample of about 500 hospitals. Only hospitals with an average length of stay of fewer than 30 days for all patients, general hospitals, or children's general hospitals are included in the survey. Federal, military, and Department of Veterans Affairs hospitals, as well as hospital units of institutions (such as prison hospitals), and hospitals with fewer than six beds staffed for patient use, are excluded.
Medical Home Training and Education (AAP)
From the American Academy of Pediatrics, this page provides resources for medical providers to improve care for patients and includes toolkits, links to information about Medical Home, CME resources, and more.
Genetics in Primary Care Institute (AAP)
The goal of this site is to increase collaboration in the care of children with known or suspected genetic disorders. Includes health supervision guidelines and other useful resources; a collaboration among the Health Resources & Services Administration, the Maternal and Child Health Bureau, and the American Academy of Pediatrics.
Children & Youth with Special Health Care Needs Knowledge Path (MCH Library)
Compilation of reports, websites, data, etc. from the National Center for Education in Maternal and Child Health's MCH Library, based at Georgetown University.
Kids and Teens with Special Health Care Needs Resources for Families (MCH Library)
Compilation of materials, websites, and other resources for parents and families from the National Center for Education in Maternal and Child Healths's MCH Library, based at Georgetown University.
Caring for children with special needs: historical perspective.
Acad Pediatr. 2011;11(2):107-9. PubMed abstract
Long WE, Bauchner H, Sege RD, Cabral HJ, Garg A.
The value of the medical home for children without special health care needs.
Pediatrics. 2012;129(1):87-98. PubMed abstract
Romaire MA, Bell JF, Grossman DC.
Medical Home Access and Health Care Use and Expenditures Among Children With Special Health Care Needs.
Arch Pediatr Adolesc Med. 2011;. PubMed abstract
Bethell CD, Kogan MD, Strickland BB, Schor EL, Robertson J, Newacheck PW.
A national and state profile of leading health problems and health care quality for US children: key insurance disparities and across-state variations.
Acad Pediatr. 2011;11(3 Suppl):S22-33. PubMed abstract
Strickland BB, van Dyck PC, Kogan MD, Lauver C, Blumberg SJ, Bethell CD, Newacheck PW.
Assessing and ensuring a comprehensive system of services for children with special health care needs: a public health approach.
Am J Public Health. 2011;101(2):224-31. PubMed abstract
Palfrey JS, Huntington NL, Yusuf A, Foley SM, Nary D, Jenkins R.
Viewing services for children and youth with special health care needs through a community lens.
Pediatrics. 2010;126 Suppl 3:S107-10. PubMed abstract / Full Text
Kuo DZ, Bird TM, Tilford JM.
Associations of family-centered care with health care outcomes for children with special health care needs.
Matern Child Health J. 2011;15(6):794-805. PubMed abstract
|Author:||Chuck Norlin, MD - 1/2009|
|Content Last Updated:||1/2015|
McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, Perrin JM, Shonkoff JP, Strickland B.
A new definition of children with special health care needs.
Pediatrics. 1998;102(1 Pt 1):137-40. PubMed abstract
Newacheck PW, Kim SE.
A national profile of health care utilization and expenditures for children with special health care needs.
Arch Pediatr Adolesc Med. 2005;159(1):10-7. PubMed abstract
van Dyck PC, Kogan MD, McPherson MG, Weissman GR, Newacheck PW.
Prevalence and characteristics of children with special health care needs.
Arch Pediatr Adolesc Med. 2004;158(9):884-90. PubMed abstract