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To High School

Roles of the Medical Home in Transition

  • Continue to teach the youth about her own special health care needs and medications.
  • Continue teaching self-advocacy: how and who to ask for help.
  • Continue to encourage the youth in self-care issues and in self-management of her own appointments and ordering supplies.
  • Encourage the youth to update his family history and to start a transition action plan in preparation for transitioning to adult health care services. See Transition Self Assessment (PDF Document 83 KB) and Family History (Word Document 110 KB) or Family History (PDF Document 20 KB) .
  • Encourage the youth to take responsibility for and update his own medical history, immunization record, and list of specialists. See Medical Summary (PDF Document 18 KB) and Care Notebook.
  • Encourage the youth and her family to start looking for adult care providers. See Community & Professional Services.
  • Encourage the youth and his family to investigate appropriate health insurance and funding.
  • Encourage the family to address possible guardianship issues.
  • Communicate with the school and transition team all pertinent information on the youth's health care needs and abilities.
  • Add to the IEP (Individualized Education Program)/504 goals self-management and understanding of medications, side-effects, and therapies.
  • Encourage the youth to participate in the school team meetings as appropriate.
  • Assess the youth's strengths and career interests.
  • Ensure that the youth is involved in the school transition team* meetings, as appropriate.
  • Continue to assess the youth's strengths, career interests, and goals.
  • Refer to job training, vocational training, or appropriate daytime activities.
  • Discuss sexuality and refer to appropriate resources depending on the youth's development and disabilities.
*"School team" may refer to the IEP, 504, Health plan, or shool accommodation team.
Education issues during adolescence need to be continually addressed and the IEP/504/Health Care plan updated as the student's health, goals, or competencies change. There are however, some key points along the way that need particular attention as listed in Timeline for Transition, below.

Timeline for Transition

Ages 10-14

  • By age 14, the student should be included in all meetings if appropriate - his/her input in decisions is crucial.
  • With the school team and the Medical Home, address social skills, communication, appropriate academics, self-help, and self-advocacy skills, and determine the necessary related service supports. See Self-Advocacy.
  • Develop and use a plan to increase independence at home.
  • Consider social issues, including recreation and sexuality. See Social Issues, Recreation Activities, and Sexuality/Reproduction.
  • Start thinking about graduation goals and become familiar with state and school district's graduation requirements and diploma options.

Ages 14-16

The following recommendations apply for all students, however the transition plan MUST be initiated as part of the IEP process when the student is 16. Focus on the student's goals for post-high school living.
  • Identify classes and credits required to complete graduation and schedule classes and curriculum accordingly.
  • Consider driver education. See Travel/Transportation.
  • Identify job interests and abilities including activities such as career exploration, job sampling, and some job training. See Employment/Daytime Activities.
  • Begin to identify community services that provide job training and placement.
  • Consider summer employment or volunteer experience.
  • Prepare a job placement file with references and skills that have been acquired.
  • Begin applying to adult service agencies like State Services for People with Disabilities, Vocation Rehabilitation, and applicable independent living services. Some agencies may have long waiting lists.
  • Ask the school team about required examinations or competency tests all students for graduation, if applicable.

Ages 16-18

Contact appropriate adult services programs regarding:

Ages 17-18

Depending on the extent of disability, some students may remain in school until their 22nd birthday if they are receiving special education services to accomplish their transition goals.

Graduation Options in Utah

The lists below show the exit document options and requirements for Utah's students. Check with your IEP/school team for any changes. [Utah Secondary School Completion & Diploma Rules]

Basic High School Diploma*

  • Student must successfully complete all state and district course requirements for graduation.
  • Student must pass all subtests of the Utah Basic Skills Competency Test (UBSCT).

Alternative Completion Diploma*

  • Student must successfully complete all state and district course requirements for graduation.
  • Student must provide documentation of at least three attempts to take and pass all subtests of the Utah Basic Skills Competency Test (UBSCT)**.

Certificate of Completion

  • Student has completed his/her senior year, is exiting the school system, and has not met all state or district requirements for a diploma.
  • Student may or may not have participated in the Utah Basic Skills Competency Test (UBSCT).
*These are both considered Regular High School Diplomas.
**Note: For a small percentage of students placed in special education, the IEP/school team may determine that participation in statewide assessment is through Utah's Alternative Assessment (UAA). For these students, three attempts of the UBSCT are not required. In order to be eligible to take the UAA, the student must meet all of the requirements outlined in Utah's Special Education Graduation Guidelines (PDF Document 82 KB) .

High School Graduation Decisions

Graduation issues must be addressed by the IEP team on an individual basis, preferably as the student enters high school. This discussion should include the student's participation in state-wide assessments, earning/awarding of course credits for graduation and possible implications of earning either a diploma or certificate of completion.

Resources

Information & Support

For Parents and Patients

Transition Tips for Parents of Teens with Disabilities (PDF Document 476 KB)
This pamphlet developed by Shriners Hospital for Children, also called Looking to the Future, provides information for parents on taking care of themselves; helping teens stay physically and emotionally healthy; addressing sexuality; helping teens succeed in school and work; teaching teens to manage their own health care; helping teens become more independent; and resources and websites.

Transition Tips for Teens with Disabilities (PDF Document 308 KB)
This pamphlet developed by Shriners Hospital for Children, also called Looking to the Future, provides information for teens on staying physically and emotionally healthy; taking charge of their own health care; succeeding in school; preparing for work; getting ready for the future; and resources and websites.

Transition Tips for Parents of Young Adults with Disabilities (PDF Document 346 KB)
This pamphlet developed by Shriners Hospital for Children, also called Moving On, provides information for parents on letting go; assisting young adults in becoming more independent; helping young adults find health insurance; helping young adults transition to adult health care; guardianship issues; and resources and websites.

Transition Tips for Young Adults (PDF Document 348 KB)
This pamphlet developed by Shriners Hospital for Children, also called Moving On, provides information for young adults on moving to adult health care; paying for health care; preparing for the future; getting around in the community; becoming more independent; and resources and websites.

Utah Parent Center
A statewide non-profit organization, founded in 1984, to provide training, information, referral and assistance to parents of children and youth with ALL disabilities, including physical, mental, hearing, vision, learning, behavioral and emotional. Staff consists primarily of parents of children and youth with disabilities. The Center provides information on support and advocacy for families of children with special health care needs.

Technical Assistance Alliance for Parent Centers
Funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP), the Alliance provides technical assistance for state Parent Centers - Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs). Provides links to local Parent Centers.

Utah State Office of Education
Provides information about Utah schools, the school board, rules, regulations, and more.

State Education Contacts and Information
From the U.S. Department of Education, links to each state's education agency.

Access Utah
A statewide information and referral service providing information on issues related to people with disabilities; provides a list of equipment for sale.

National Center on Secondary Education and Transition
Provides information about transition during high school and to opportunities after high school including jobs, vocational education, and college. Provides links to contacts in each state for 1) State Transition Contact, 2) Regional Resource Center Contact, 3) State Director of Special Education, 4) Part B Contact, and 5) State Director or Vocational Rehabilitation.

Services

Disability Employment

See all Disability Employment services providers (177) in our database.

Health Insurance, Other

See all Health Insurance, Other services providers (122) in our database.

Health Insurance/Funding, Transition

See all Health Insurance/Funding, Transition services providers (47) in our database.

Services for People with Disabilities

See all Services for People with Disabilities services providers (60) in our database.

Vocational Education

See all Vocational Education services providers (143) in our database.

For other services related to this condition, browse our Services categories or search our database.

Authors

Contributing Authors: Robin Pratt, 12/2005
Barbara Ward RN BS, 12/2005
Gina Pola-Money, 12/2005
Cheralyn Creer, 12/2005
Karen Ekker RN, 12/2005
Carolyn Green RN, 12/2005
Lynne Larsen-Miller, 12/2005
Elaine Pollock, 12/2005
Kathryn Post, 12/2005
Helen Post, 12/2005
Lisa Samson-Fang MD, 12/2005
Reviewing Author: Alfred Romeo RN, PhD, 11/2008
Content Last Updated: 11/2008