Managing and Coordinating Care

What you will find in the pages of this section

Children and youth with special health care needs often see many different health care providers. This section is designed to help parents become an active part of their child's Medical Home team. Effective communication, accurate record-keeping, and preparing for medical emergencies are some of the topics covered here. Use the Feedback button at the top of the page to let us know what other topics would be useful.

Communication Guide
Communicating effectively with your Medical Home will help you learn more about your child's condition and be more involved in the decisions about your child's care. This page gives hints and tips for ways to talk to providers, avoid conflicts, and get what your child needs.

HIPAA Many parents may be confused about HIPAA and the rules about sharing health information among providers. This page provides an overview of the law, your rights, and how to give consent to share information so providers can care for your child.

Planning for Emergencies
Emergencies can happen at home, in schools, during vacations, or anywhere else. This page offers hints and tips to help you be more prepared to face these emergencies.

Working with Caregivers in Your Home
Your child may need in-home services from personal assistants, nurses, therapists, or other providers. This page offers information about your rights and responsibilities.

Care Notebook
This page, one of the most visited pages on this web site, offers sample care notebooks and links to more samples to help parents and young adults track their medical and other information including medications, appointments, insurance bills, nutrition, surgeries, respiratory treatments, and much more. Versions are available in Word, PDF, and Spanish.

Authors

Compiler:

Information compiled by Medical Home Portal authors and staff

Content Last Updated:

12/2011