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Tourette Syndrome - Services & Other Resources
Information & Support
For Parents and Patients
Tourette Syndrome Association
The only national organization serving children, individuals, and families affected by Tourette Syndrome (TS). Includes six
online CME/CNE programs, programs on Recognition, Diagnosis and Treatment, as well as training for Allied Professionals and
Educators. The website also contains resources for patients and families.
Tourette Syndrome Association, Utah Chapter
Utah chapter of the TSA offering educational advocacy; family support and get togethers; and educational materials.
Tourette syndrome (Genetics Home Reference)
Information for patients/families about Tourette syndrome from Genetics Home Reference, sponsored by the National Library
of Medicine
Tourette syndrome internet community
Provides an online interactive community for families and children with TS including email, pen-pals, message boards and chat
rooms.
For Professionals
Tourette Syndrome Association
The only national organization serving children, individuals, and families affected by Tourette Syndrome (TS). Includes six
online CME/CNE programs, programs on Recognition, Diagnosis and Treatment, as well as training for Allied Professionals and
Educators. The website also contains resources for patients and families.
Tourette Syndrome Association, Utah Chapter
Utah chapter of the TSA offering educational advocacy; family support and get togethers; and educational materials.
Patient Education
TS: Plus
Information about TS and related disorders from Leslie Packer, Ph.D., a psychologist and wife/mother of individuals with TS.
This website offers information aimed at parents and patients about many aspects of TS, with sections on behavior and education.
Tools
TS medication table, PDF format
(
134 KB)
This table, including a list of medications for TS and related information, is adapted from Zinner, 2004.
Tic Severity Checklist
(
16 KB)
An easy to use tic severity scale originally from dbpeds.org. An accurate record of the type and frequency of tics is helpful
to assess the need for and response to medications. This checklist can be downloaded for family use.
Services
For other services related to this condition, browse our Services categories or search our database.
