Rett Syndrome - Services & Other Resources

For Parents and Patients

El Síndrome de Rett
Spanish language overview of Rett syndrome with links to other organizations, from the National Institute of Neurlogical Disorders and Stroke.

FAQ (IRSA)

International Rett Syndrome Association (IRSA)
This link contains information about RS, research, ongoing studies, and RS related news.

NINDS Rett Syndrome Information Page
An overview of Rett syndrome with links to other organizations, from the National Institute of Neurlogical Disorders and Stroke.

Rett syndrome (Genetics Home Reference)
Detailed information focused on the genetics of RS, from the National Library of Medicine.

Rett syndrome (MedlinePlus Encyclopedia)
overview of Rett syndrome, with links to more information; from the National Library of Medicine

Rett syndrome (MedlinePlus)
brief description of RS and numerous links to other reliable sources of information for parents and family members; from the National Library of Medicine.

Rett syndrome diagnosis (WE MOVE)
Succinct information regarding the diagnosis of Rett syndrome.

Rett syndrome fact sheet (NIH)
Information regarding the diagnosis of RS from the NIH

Rett syndrome information (Medscape)
Information regarding the diagnosis and management of RS.

For Professionals

MECP2-related disorders (GeneReviews)
Comprehensive information about MECP2-related disorders, including Rett Syndrome. Although there is some information about management, the focus is on diagnosis and genetics.

Rett syndrome diagnosis (WE MOVE)
Succinct information regarding the diagnosis of Rett syndrome.

Rett syndrome fact sheet (NIH)
Information regarding the diagnosis of RS from the NIH

Rett syndrome information (Medscape)
Information regarding the diagnosis and management of RS.

Adaptive Recreation

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After School Programs

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Art Therapy

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Assistive Technology

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Behavioral Pediatrics

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Behavioral Programs

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Bone Densitometry/DEXA

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Child Care, Special Needs

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Child Psychiatry

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Developmental Pediatrics

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Early Intervention Programs

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Electroencephalography (EEG)

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Estate & Future Planning

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General Pediatric Surgery

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Gynecology (Ped/Adol, Special Needs)

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National Support Groups, Disab/Diag

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Nutrition/Dietary

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Occupational Therapy

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Pediatric Cardiology

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Pediatric Endocrinology

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Pediatric Gastroenterology

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Pediatric Genetic Counseling

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Pediatric Genetics

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Pediatric Neurology

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Pediatric Orthopedics

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Pediatric Physical Medicine & Rehab

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Pediatric Pulmonology

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Pediatric Sleep Medicine

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Physical Therapy

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Respite Care

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Schools for Children with Autism

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Services for People with Disabilities

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Sleep Studies/Polysomnography

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Speech/Language Therapy

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Swallow Studies

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