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Neural Tube Defects - Services & Other Resources
Information & Support
For Parents and Patients
Neural tube defects (MedlinePlus)
Provides a brief description and links to numerous reliable websites, from the National Library of Medicine.
Spina Bifida (KidsHealth)
Family-focused information about spina bifida, from the Nemours Foundation
Spina Bifida (March of Dimes)
Information for parents from the March of Dimes Foundation
Spina Bifida (MedlinePlus)
from the National Library of Medicine; basic information and numerous links to other reliable sources
Spina Bifida for Kids (KidsHealth)
Patient-focused information about spina bifida, from the Nemours Foundation
Spina bifida fact sheet (NINDS)
Extensive information on spina bifida compiled by the National Institute of Neurological Disorders and Stroke, NIH.
Support
Spina Bifida Association
A voluntary health agency, with 57 chapters, offers programs, education, advocacy, research updates and services nationwide.
For Professionals
Neural tube defects in the neonatal period (Emedicine)
Article by Richard G Ellenbogen, BA, MD, Professor and Chairman, Theodore S. Roberts Endowed Chair in Pediatric Neurosurgery,
Department of Neurological Surgery, University of Washington; accessed 2/8/09.
Patient Education
Let's Talk About Spina Bifida
(
)
from an educational series for parents and patients by Intermountain Healthcare
Spina bifida patient education materials (Intermountain Healthcare)
Several patient education documents on various aspects of spina bifida and neural tube defects, from Intermountain Healthcare;
some available in Spanish
Services
Educational Advocacy
Children's Education Services,
more info...
100 N Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-4914
http://intermountainhealthcare.org/xp/public/documents/pcmc/school.pdf
See all Educational Advocacy services providers (23) in our database.
Genetics, Prenatal
Spina Bifida Clinic,
more info...
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-1675
http://intermountainhealthcare.org/xp/public/primary/docsclinics/clinics/spinabifida.xml
See all Genetics, Prenatal services providers (4) in our database.
Pediatric Condition-Specific Clinics
Spina Bifida Clinic,
more info...
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-1675
http://intermountainhealthcare.org/xp/public/primary/docsclinics/clinics/spinabifida.xml
See all Pediatric Condition-Specific Clinics services providers (16) in our database.
Pediatric Endocrinology
Division of Pediatric Endocrinology,
more info...
615 Arapeen Dr., Suite 100
Salt Lake City, UT 84108
Phone: 801-581-7761
Fax: 801-587-3920
http://healthcare.utah.edu/utahdiabetescenter/pediatric/endocrinology.html
See all Pediatric Endocrinology services providers (2) in our database.
Pediatric Gastroenterology
See all Pediatric Gastroenterology services providers (2) in our database.
Pediatric Neurology
Pediatric Neurology,
more info...
100 N. Mario Capecchi Dr.
Salt Lake City, UT 84158
Phone: 801-662-5696
Fax: 801-587-7539
http://medicine.utah.edu/pedsneurology/
See all Pediatric Neurology services providers (3) in our database.
Pediatric Physical Medicine & Rehab
Primary Children's Rehabilitation Salt Lake,
more info...
100 Mario Capecchi Drive, Ste. 4400
Salt Lake City, UT 84113
Phone: 801-662-4949
Fax: 801-662-4964
http://intermountainhealthcare.org/hospitals/primarychildrens/services/pages/Service.aspx?index=Physical%20Medicine%20and%20Inpatient%20Rehabilitation
See all Pediatric Physical Medicine & Rehab services providers (2) in our database.
For other services related to this condition, browse our Services categories or search our database.
Studies
CHOP maternal fetal surgery for myelomeningocele
CHOP is one of the US centers that is part of the MOMS trial for maternal fetal surgery for myelomeningocele.
UCSF maternal fetal surgery for myelomeningocele
UCSF is one of the centers participating in the MOMS trial for maternal-fetal surgery for myelomeningocele
