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Neural Tube Defects - Services & Other Resources

Information & Support

For Parents and Patients

Neural tube defects (MedlinePlus)
Provides a brief description and links to numerous reliable websites, from the National Library of Medicine.

Spina Bifida (KidsHealth)
Family-focused information about spina bifida, from the Nemours Foundation

Spina Bifida (March of Dimes)
Information for parents from the March of Dimes Foundation

Spina Bifida (MedlinePlus)
from the National Library of Medicine; basic information and numerous links to other reliable sources

Spina Bifida for Kids (KidsHealth)
Patient-focused information about spina bifida, from the Nemours Foundation

Spina bifida fact sheet (NINDS)
Extensive information on spina bifida compiled by the National Institute of Neurological Disorders and Stroke, NIH.

Support

Spina Bifida Association
A voluntary health agency, with 57 chapters, offers programs, education, advocacy, research updates and services nationwide.

For Professionals

Neural tube defects in the neonatal period (Emedicine)
Article by Richard G Ellenbogen, BA, MD, Professor and Chairman, Theodore S. Roberts Endowed Chair in Pediatric Neurosurgery, Department of Neurological Surgery, University of Washington; accessed 2/8/09.

Patient Education

Let's Talk About Spina Bifida (PDF Document)
from an educational series for parents and patients by Intermountain Healthcare

Spina bifida patient education materials (Intermountain Healthcare)
Several patient education documents on various aspects of spina bifida and neural tube defects, from Intermountain Healthcare; some available in Spanish

Services

Developmental Pediatrics

See all Developmental Pediatrics services providers (2) in our database.

Educational Advocacy

Children's Education Services, more info...
100 N Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-4914
http://intermountainhealthcare.org/xp/public/documents/pcmc/school.pdf

See all Educational Advocacy services providers (23) in our database.

General Pediatric Surgery

See all General Pediatric Surgery services providers (1) in our database.

Genetics, Prenatal

Spina Bifida Clinic, more info...
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-1675
http://intermountainhealthcare.org/xp/public/primary/docsclinics/clinics/spinabifida.xml

See all Genetics, Prenatal services providers (4) in our database.

Neuropsychology

See all Neuropsychology services providers (4) in our database.

Nutrition/Dietary

See all Nutrition/Dietary services providers (44) in our database.

Occupational Therapy

See all Occupational Therapy services providers (20) in our database.

Pediatric Condition-Specific Clinics

Spina Bifida Clinic, more info...
100 Mario Capecchi Drive
Salt Lake City, UT 84113
Phone: 801-662-1675
http://intermountainhealthcare.org/xp/public/primary/docsclinics/clinics/spinabifida.xml

See all Pediatric Condition-Specific Clinics services providers (16) in our database.

Pediatric Dermatology

See all Pediatric Dermatology services providers (1) in our database.

Pediatric Endocrinology

Division of Pediatric Endocrinology, more info...
615 Arapeen Dr., Suite 100
Salt Lake City, UT 84108
Phone: 801-581-7761
Fax: 801-587-3920
http://healthcare.utah.edu/utahdiabetescenter/pediatric/endocrinology.html

See all Pediatric Endocrinology services providers (2) in our database.

Pediatric Gastroenterology

See all Pediatric Gastroenterology services providers (2) in our database.

Pediatric Neurology

Pediatric Neurology, more info...
100 N. Mario Capecchi Dr.
Salt Lake City, UT 84158
Phone: 801-662-5696
Fax: 801-587-7539
http://medicine.utah.edu/pedsneurology/

See all Pediatric Neurology services providers (3) in our database.

Pediatric Neurosurgery

See all Pediatric Neurosurgery services providers (1) in our database.

Pediatric Orthopedics

See all Pediatric Orthopedics services providers (2) in our database.

Pediatric Physical Medicine & Rehab

Primary Children's Rehabilitation Salt Lake, more info...
100 Mario Capecchi Drive, Ste. 4400
Salt Lake City, UT 84113
Phone: 801-662-4949
Fax: 801-662-4964
http://intermountainhealthcare.org/hospitals/primarychildrens/services/pages/Service.aspx?index=Physical%20Medicine%20and%20Inpatient%20Rehabilitation

See all Pediatric Physical Medicine & Rehab services providers (2) in our database.

Pediatric Plastic Surgery

See all Pediatric Plastic Surgery services providers (2) in our database.

Pediatric Urology

See all Pediatric Urology services providers (1) in our database.

Physical Therapy

See all Physical Therapy services providers (25) in our database.

Speech/Language Therapy

See all Speech/Language Therapy services providers (29) in our database.

For other services related to this condition, browse our Services categories or search our database.

Studies

CHOP maternal fetal surgery for myelomeningocele
CHOP is one of the US centers that is part of the MOMS trial for maternal fetal surgery for myelomeningocele.

UCSF maternal fetal surgery for myelomeningocele
UCSF is one of the centers participating in the MOMS trial for maternal-fetal surgery for myelomeningocele