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Cerebral Palsy - Services & Other Resources
Information & Support
For Parents and Patients
CP information (MedlinePlus)
from the National Library of Medicine; basic information and links to many additional sources of reliable information
Cerebral Palsy Handout
(
407 KB)
This 10-page document explains cerebral palsy, medical terms, types of CP, management, pressure sores, and more, from the
Southwest Institute for Families and Children with Special Needs.
NINDS Cerebral Palsy Information Page
A webpage of the National Institute of Neurological Disorders and Strokes (NINDS) providing a thorough overview of CP plus
links to multiple organizations, publications, and education tools. For physicians as well as patients and families
North American Growth in Cerebral Palsy Project
A website from the University of Virginia Health Sciences Center offering professional and technical articles about assessing
growth in children with CP and information about the Growth in Cerebral Palsy Project.
Other resources on the United Cerebral Palsy website
Other resources are listed on the UCP - Utah website.
Resource list, Autism Council of Utah
A list of extensive local resources is available on this web site.
Support
Cerebral palsy support groups (Children's Disability Information)
A list of support groups for different types of CP as well as other resources
United Cerebral Palsy
This national non-profit organization, provides information on a variety of topics including advocacy, conferences, insurance,
sexuality, policy, and other items for the public and providers.
For Professionals
CP information - NIH
Information about cerebral palsy from the National Institutes of Health.
Cerebral Palsy - Critical Elements of Care
( 156 KB)
From Center for Children with Special Needs, Children's Hospital and Regional Medical Center, Seattle, WA, 2006.
Denver II
Commercial site offers ordering of Denver II developmental testing forms.
Developmental Behavioral Pediatric update course (dbpeds.org)
Slides from lectures given at the DBPeds Prep Course, 2008, with various links, including genetic cases, learning disabilities,
sleep disorders, and others.
Information on spasticity, choreoathetosis, more (WE MOVE)
The Worldwide Education and Awareness for Movement Disorders.
MD Virtual University: Pediatric Movement Disorders
The information is not specific to CP but includes information about CP.
Practice Parameter: Diagnostic Assessment of the Child with Cerebral Palsy
( 103 KB)
Two-page outline from the American Academy of Neurology provides information about metabolic and genetic testing, EEG, screenings,
and includes a decision tree.
Patient Education
Kidswithtubes.org
Information on tube-feeding for families from a now-inactive group of parents. The information available on the site remains
valuable (see Newsletters and Of Interest...).
Tools
Bowel management (general)
( 74 KB)
General information on bowel function and management of constipation for families and providers.
Bowel management algorithm
( 47 KB)
Algorithm for management of chronic constipation developed in collaboration with pediatric gastroenterology.
Constipation evaluation tool
( 84 KB)
Provides a format for evaluation of chronic constipation in children.
Home toileting record
( 49 KB)
An easy-to-use form for keeping track of a child's toileting habits.
Musculoskeletal Assessment in the Primary Care Setting
( 99 KB)
A concise, easy to use tool to document the limitations of a child's musculoskeletal abilities and exam.
Parent Concerns Questionnaire - CP
( 37 KB)
One-page list of issues to aid parents and physicians in organizing their thoughts and the visit.
Services
Child Care, Special Needs
See all Child Care, Special Needs services providers (15) in our database.
Developmental Pediatrics
Child Development Clinic,
more info...
44 Mario Capecchi Drive
Salt Lake City, UT 84114
Phone: 801-584-8510
Toll Free Phone: 800-829-8200
Fax: 801-584-8579
http://health.utah.gov/cshcn/cdc/
See all Developmental Pediatrics services providers (2) in our database.
Early Intervention Programs
See all Early Intervention Programs services providers (36) in our database.
Gynecology (Ped/Adol, Special Needs)
See all Gynecology (Ped/Adol, Special Needs) services providers (40) in our database.
Information & Referral/Hotlines
See all Information & Referral/Hotlines services providers (36) in our database.
Information Services, Web
American Academy for Cerebral Palsy and Developmental Medicine,
more info...
555 E. Wells Street, Ste 1100
Milwaukee, 53202
Phone: 414-918-3014
http://www.aacpdm.org/index?service=page/Home
See all Information Services, Web services providers (60) in our database.
Pediatric Gastroenterology
See all Pediatric Gastroenterology services providers (2) in our database.
Pediatric Medical Genetics
See all Pediatric Medical Genetics services providers (3) in our database.
Pediatric Physical Medicine & Rehab
See all Pediatric Physical Medicine & Rehab services providers (6) in our database.
Recreation Programs/Activities
See all Recreation Programs/Activities services providers (177) in our database.
SSI, Supplemental Security Income
See all SSI, Supplemental Security Income services providers (8) in our database.
Services for People with Disabilities
See all Services for People with Disabilities services providers (66) in our database.
Sleep Studies/Polysomnography
See all Sleep Studies/Polysomnography services providers (6) in our database.
Social & Recreational Opportunities
See all Social & Recreational Opportunities services providers (29) in our database.
Special Needs Schools, Other
See all Special Needs Schools, Other services providers (21) in our database.
For other services related to this condition, browse our Services categories or search our database.
Studies
Australian study - CP and genetics
This study is currently in the recruitment phase to examine the genetic contributions to CP with 2500 control families and
2500 families of a child with CP to be included.