Home > Diagnoses & Conditions > Autism Spectrum Disorders > Services & Other Resources
Autism Spectrum Disorders - Services & Other Resources
Information & Support
For Parents and Patients
ASD Connections
ASD Connections is a nonprofit organization to which families may apply for funding to pay for autism-related treatments such
as ABA therapy, Floortime, Speech and Occupational Therapy, and Social Skills Groups.
Asperger syndrome (MedlinePlus)
Site sponsored by National Library of Medicine and National Insitutes of Health, offers many links to high-quality sources
of information for patients and their families. The Asperger's page is relatively short and manageable.
Association for Science in Autism Treatment
This non-profit organization provides information, lists of conferences, suggested readings, and articles about evidence-based
treatment for providers and parents.
Autism (MedlinePlus)
From the National Library of Medicine & National Insitutes of Health, offers a brief overview and numerous links to high-quality
sources of information for patients and their families.
Autism Council of Utah
An independent council working to foster collaboration, communication, and learning among families and agencies. Site offers
information, resources, and links aimed at families of children with autism.
Autism Information Center (CDC)
Parent-oriented information regarding autism spectrum disorders from the Centers for Disease Control, with focused information
on early warning signs and vaccines and autism
Autism Information for Parents (AAP)
from the American Academy of Pediatrics, primarily consists of links to other websites and to Academy publications
Autism Parent Resources, Utah Sample
(
36 KB)
A list of local community organizations that serve children with Autism, from an Intermountain Healthcare clinic.
Autism Referral Resources, Utah Sample
( 51 KB)
A list of local clinics and services that serve children with Autism, from an Intermountain Healthcare clinic.
Autism Society of America
The ASA promotes autism awareness and is dedicated to providing information regarding research, treatment, advocacy, and family
support throughout the lifespan.
Autism Society of North Carolina
Great example of what one state can do, great set of links, a book store, and more.
Autism Speaks
A national organization dedicated to promoting autism-related research. The web site provides information regarding fundraising
for specific research projects as well as general parent information regarding autism spectrum disorders.
Autism Speaks - Technology and Autism
Communication applications for those with Autism Spectrum Disorders. For individuals with autism, some new technologies can
improve communication, assist in the development of social skills, and enhance the ability to learn.
Autism Watch
Part of QuackWatch, an online "Guide to Quackery, Health Fraud, and Intelligent Decisions." Provides reliable information
and links about proposed causes of autism and treatments, and lists of reliable and not reliable web sites for more information.
Autism.org
Sponsored by the Center for the Study of Autism (CSA) in the Salem/Portland, Oregon area, numerous short articles on topics
related to autism, primarily written by CSA staff.
Considerations when Looking for Services (UAI)
( 61 KB)
This handout has suggestions for selecting services for people with Autism Spectrum Disorders (ASD) and was developed by a
collaborative group through the Utah Autism Initiative. The suggestions are also helpful when looking for services for other
conditions.
Different Roads to Learning
On-line catalogs specializing in learning materials and playthings for children with developmental disabilities, including
autism. Focus on ABA resources.
Future Horizons, Arlington, Texas
Informaiton, training, and resources for families, teachers, and professionals about dealing with autism.
Kidstar Sumer Camp for Children with Autism
Day camp for children 8-16 to learn social skills and build self-esteem, from the University Neuropsychiatric Institute (UNI).
Campers are paired with buddies that model appropriate behaviors.
Online Asperger Syndrome Information and Support (OASIS)
Known as the OASIS (Online Asperger Syndrome Information and Support) and MAAP site, includes up-to-date information relevant
to all higher-functioning PDDs, including Asperger Disorder, high-functioning autism, and PDDNOS.
Special Education- Utah
Official site of Utah State Office of Education's Special Education program.
TEACCH program
Information about the TEACCH (Treatment and Education of Autistic and related Communication handicapped Children) program
in North Carolina.
Utah Families for Effective Autism Treatment
This website provides Utah resources for autism-related services.
Utah Parent Center Autism Resources
The Utah Parent Center website provides resources for families about Autism including list of community resources.
Utah Registry of Autism and Developmental Disabilities
Utah Department of Health website on autism spectrum disorders. An excellent resource for information about ASD and local
resources and trainings.
Yale Child Study Center
Information and resources from a respected center for research and clinical care in autism.
www.aspergersyndrome.com
A good site for basic information for parents and physicians about Asperger's Disorder, written by a clinical psychologist
in Michigan.
Support
Autism Parent Focus Group
( 22 KB)
Read what parents of children with autism have to say about getting a diagnosis, the impact on siblings, where parents get
information, and the financial impact on families. The transcript is from a focus group in July 2009.
Family to Family Network Support, Utah
Networking site for families of children with special health care needs in Utah.
Technical Assistance Alliance for Parent Centers
Links to local Parent Centers which serve as resources for education and training for parents of children with disabilities;
provide local conferences; provide support groups; provide autism information; assist parents in advocacy and finding school
and other local services; and more. Funded by OSEP.
Utah Parent Center
This statewide non-profit organization, founded in 1984, provides training, information, referral and assistance to parents
of children and youth with all disabilities, including physical, mental, hearing, vision, learning, behavioral, and emotional.
Staff consists primarily of parents of children and youth with disabilities. The Center provides information on support and
advocacy for families of children with special health care needs.
For Professionals
ASSERT
The Autism Support Services: Education, Research, and Training (ASSERT) program at Utah State University provides research-based
support to individuals with autism spectrum disorders (ASD) and their families, and teachers and other professionals who work
with individuals with ASD.
Association for Science in Autism Treatment
This non-profit organization provides information, lists of conferences, suggested readings, and articles about evidence-based
treatment for providers and parents.
Autism (OMIM)
from Online Mendelian Inheritance in Man, supported by the National Center for Biotechnology Information; provides extensive,
detailed background on genetic studies related to autism.
Autism Overview (GeneReviews)
From genetests.org, extensive clinical review with focus on heritable causes and candidate genes.
Autism Spectrum Disorders Knowledge Path
This site from the Maternal & Child Health Library at Georgetown provides many links to other sites that address autism including
links for professionals and families.
DSM-IV criteria for autism
Diagnostic Criteria for 299.00 Autistic Disorder
Developmental Behavioral Pediatrics Online (dbpeds.org)
Copious developmental and behavioral information and tools for the pediatrician and other health professionals.
Interdisciplinary Technical Assistance Center on Autism and Developmental Disabilities
From the Association of University Centers on Disabilities (AUCD), this site provides information, funding opportunities,
training events, and other resources to help improve care for children with autism spectrum disorders and other developmental
disabilities.
National Autism Center
The NAC provides information for professionals and families about the treatment of autism including the National Standards
Project which addresses evidence-based practice standards.
Patient Education
Autism Fact Sheet (NINDS)
From the National Institute of Neurologic Disorders and Stroke.
Autism Fact Sheet, Spanish (NINDS)
From the National Institue of Neurologic Disorders and Stroke.
Autism Speaks 100 Day Kit (81 pgs)
( 771 KB)
Family-oriented guide from Autism Speaks. Offers an overview of ASDs and aims to help parents organize and prioritize in their
approach to seeking services for their child. Practical information is provided emphasizing advocacy and family support. Several
forms are available to assist in the organization of medical records and tracking the effectiveness of treatments.
Autism Speaks 100 Day Kit, Spanish (84 pgs)
Family-oriented guide, in Spanish, from Autism Speaks, downloadable from the linked site. Offers an overview of ASDs and aims
to help parents organize and prioritize in their approach to seeking services for their child. Practical information is provided
emphasizing advocacy and family support. Several forms are available to assist in the organization of medical records and
tracking the effectiveness of treatments.
Autism Spectrum Disorders booklet (NIMH, 41 pgs)
The link takes you to the National Institute of Mental Health website, from which the autism booklet may be downloaded at
no cost.
Books on Autism Spectrum Disorders
( 24 KB)
For parents and professionals, a list of selected books to help address the needs of children and adults with autism spectrum
disorders.
Understanding Autism Spectrum Disorders pamphlet (AAP)
Family-oriented information pamphlet (44 pgs), available from the American Academy of Pediatrics bookstore for $35 for a package
of 10 ($30 for members).
Utah Parent Center Resources and Materials
The Utah Parent Center website provides family guides to understanding the IEP process in English and Spanish as well as many
other resources.
Tools
Abnormal Involuntary Movement Scale (AIMS)
( 17 KB)
This scale may be used to monitor for extrapyramidal side effects in the individual treated with antipsychotic medications.
It is intended for use with the Abnormal Involuntary Movement Scale-Instructions file.
Abnormal Involuntary Movement Scale (AIMS) Instructions
( 264 KB)
Instructions for use with the Abnormal Involuntary Movement Scale (AIMS).
Autism Resource Package Toolkit (AAP)
Includes a comprehensive guide to the diagnosis and management of autism spectrum disorders on CD-ROM, as well as 10 "Understanding
Autism Spectrum Disorders" pamphletss. The toolkit may be purchased for $105 ($90 for members) from the American Academy of
Pediatrics bookstore on-line.
M-CHAT (Modified Checklist for Autism in Toddlers)
( 117 KB)
The M-CHAT is copyrighted, and its use must follow these guidelines:
(1) Reprints/reproductions of the M-CHAT must include the copyright (© 1999 Robins, Fein, & Barton). No modifications can
be made to items or instructions without permission.
(2) It must be used in its entirety.
(3) Parties interested in reproducing the M-CHAT in print (e.g., a book or journal article) or electronically (e.g., as part
of digital medical records or software packages) must contact Diana Robins to request permission (drobins@gsu.edu).
More information is available at http://www2.gsu.edu/~psydlr/Diana_L._Robins,_Ph.D..html.
M-CHAT Follow-up Interview and Algorithm
( 310 KB)
Incorporating this interview in the screening process will reduce false positives (children who fail the MCHAT but do not
have an ASD), thus limiting unnecessary referrals. For more information, see http://www2.gsu.edu/~psydlr/Diana_L._Robins,_Ph.D..html
or, in Helpful Articles/Bibliography,
Robins (2008) and
Kleinman (2008).
M-CHAT Scoring Instructions
( 74 KB)
A child fails the checklist when 2 or more critical items are failed OR when any three items are failed. Yes/no answers
convert to pass/fail responses.
M-CHAT Scoring Overlay
( 52 KB)
This overlay may be printed on a transparency and placed over the completed MCHAT form to assist in scoring.
Services
Autism Treatment/Behavioral Specialists
Jeffrey Skibitsky, MA, BCBA,
more info...
Draper, UT
Phone: 801-487-2178
http://www.autismprograms.com
Robyn Anderson, Owner,
more info...
3134 Broadway Street
Magna, UT 84044
Phone: 801-560-5742
http://www.InfoOnAutism.blogspot.com
University of Utah Autism Clinic,
more info...
650 Komas Drive
Salt Lake City, UT 84108
Phone: 801-585-1212
See all Autism Treatment/Behavioral Specialists services providers (23) in our database.
Developmental Evaluation
Child Development Clinic,
more info...
44 Mario Capecchi Drive
Salt Lake City, UT 84114
Phone: 801-584-8510
Toll Free Phone: 800-829-8200
Fax: 801-584-8579
http://health.utah.gov/cshcn/cdc/
See all Developmental Evaluation services providers (8) in our database.
Developmental Pediatrics
Child Development Clinic,
more info...
44 Mario Capecchi Drive
Salt Lake City, UT 84114
Phone: 801-584-8510
Toll Free Phone: 800-829-8200
Fax: 801-584-8579
http://health.utah.gov/cshcn/cdc/
See all Developmental Pediatrics services providers (2) in our database.
Early Intervention Programs
See all Early Intervention Programs services providers (36) in our database.
General Dentistry for CSHCN
See all General Dentistry for CSHCN services providers (121) in our database.
Genetics Laboratories
Utah Autism Research Program,
more info...
650 Komas Drive Suite 206
Salt Lake City, UT 84108
Phone: 801-585-9098
http://medicine.utah.edu/autismresearch/
See all Genetics Laboratories services providers (3) in our database.
Health Insurance/Funding, Transition
See all Health Insurance/Funding, Transition services providers (47) in our database.
Scholarships, Education
Carson Smith Scholarship,
more info...
250 East 500 South
PO Box 144200
Salt Lake City, UT 84114-4200
Phone: 801-538-7500
http://schools.utah.gov/sars/Quick-Links/Carson-Smith-Scholarship.aspx
See all Scholarships, Education services providers (13) in our database.
Schools for Children with Autism
Northern Utah Autism Program,
more info...
137 27th St
Ogden, UT 84401
Phone: 801-625-3700
http://www.weberhs.org/home/Foundation.htm
Jeffrey Skibitsky, MA, BCBA,
more info...
Draper, UT
Phone: 801-487-2178
http://www.autismprograms.com
See all Schools for Children with Autism services providers (9) in our database.
Social Skills Classes
Jeffrey Skibitsky, MA, BCBA,
more info...
Draper, UT
Phone: 801-487-2178
http://www.autismprograms.com
See all Social Skills Classes services providers (8) in our database.
For other services related to this condition, browse our Services categories or search our database.
Studies
Yale Child Study Center Autism Research Projects
The Yale Child Study Center is recruiting patients for multiple autism-related studies.